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Worriedtodeath

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Everything posted by Worriedtodeath

  1. Worriedtodeath
    I couldn't remember what he said the blood tests were for. I thought they were for IGG's but he may have been talking about another test. He just said they were really expensive and too new to be highly realiable. My allergist didn't want to do blood tests because the diet trials were cheaper and if done right, 100% correct where as the blood test have...
  2. Worriedtodeath
    The skin tests are only for IGE allergies not IGG. Ige are the ones that cause you to break out in hives, stop breathing, swell, hay fever type symptoms - that sort of thing. You can be allergic to wheat and have Celiac. Eggs, soy, milk, wheat are the major allergens and the most likely to cause trouble. Apparently, they have to rule out IGe reactions...
  3. Worriedtodeath
    I think that it is sort of like an allergy though it isn't an allergy. Celiac is an autoimmune disease but once you remove the gluten some symptoms begin to disappear, as the offending culprit is no longer causing offense much like an allergy. And since it doesn't necessarily affect the entire intestine just patches of it, then the sick patches aren't...
  4. Worriedtodeath
    If you could have your biopsy samples read by another lab for a second opinion, what lab would be a good one to use? I would like to have the baby's biopsies read by a Celiac expert pathologist and not just the local guy who works in the gi lab my ped gi happens to do shop with it. SInce she is blood negative and would be early stages at best with little...
  5. Worriedtodeath
    Earthfare 3312-B Devine St. Columbia, SC 29205 rosewood Market 2803 Rosewood Drive Columbia, South Carolina 29205 GO to Earth fare first, head back to Fort Jackson area and Rosewood is on the left I think they are in the same driving area. Super bi-lo in Sandhills shopping center carries a small section on the last aisle of the store (away...
  6. Worriedtodeath
    OKay!!!!! I'm venturing into the make your own flour blend and cook with it. What is your favorite flour mix from scratch and what products do you use it to make??? I like premixes but so far most of them are really expensive and I think if I knew what made a great mix, I could figure out a way to make them much cheaper. So far we love love love Pamela...
  7. Worriedtodeath
    Take out the gb problems and constipation and that's me in a nut shell. I gave up at the young age of 23 of ever knowing what was wrong with me when I was dx with fibromyalge (sp?) and given a handful of pills to take. Now 3 weeks gluten-free , the joint pain is gone. My hands aren't swollen and I even sat down and crocheted a little without dying in...
  8. Worriedtodeath
    That's interesting. I'm glad I never drank beyond the teenage rebellious years on Friday night. I realized early on how quick it could get out of control since I had no built in limit system so I just stopped it. Plus I married a man who has never had a drink. I just know so many members of my family can drink LOADS and never get tipsy and others can drink...
  9. Worriedtodeath
    I haven't had a drink in years and years but even when I did, I was the designated driver because I was the only still standing. It would take close to a big bottle of strong stuff for me to even begin to feel slightly silly. I don't ever recall being seriously impaired or having a hangover beyond a small headache. Strange how bodies work.
  10. Worriedtodeath
    Back in my wild teenage days (okay they were not that wild ) I had the occasional drink. During that time, I was 110 soaking wet if that much. It was pretty common joke that I could drink anyone and I mean absolutely anyone under the table and still walk and drive perfectly fine. And I put many a big giant football guy (easily making two or three of...
  11. Worriedtodeath
    HI!!! WEll here I go for all the world to see!!!!!! 174 lbs In March 17 years ago, I was 110 wearing a heavily altered size 2 wedding dress!!!!!9 and I still had to stuff the top! UGH!!!! I doubt I will ever fit back into that thing!!! 3 kids and 3.5 years of breast feeding have changed some body parts and no amount of weight loss is gonna...
  12. Worriedtodeath
    Can i jump in??? I started trying to read all the posts and the thread is just too large to read right now. Are we doing weigh ins and am I supposed to report daily food?? Thanks Stacie
  13. Worriedtodeath
    We have one child put thru the ringer with testing and everything has come back normal. The other kids had the blood test done and it was not positive but they did have raised antibodies. So the kids and I went gluten free because we had to do something to save the baby as she was getting progressily worse on wheat (long story but food trials helped pinpoint...
  14. Worriedtodeath
    We are one of those moms!!! Our youngest and sickest child is according to the test results for everything perfectly normal and healthly. Other than a mild lactase deficeincy no reason for her failure to thrive and grow and bms several times a day. NO REASON!!! 3 weeks gluten free and a whole host of issues deemed "normal" by the ped are disappearing...
  15. Worriedtodeath
    I always like to see kid menus. If we took a trip to HI it would be with kids and that would dictate where we ate at. At that price range I would automatically exclude the resturant unless it had a kids menu because I would feel that it would not be a place to take kids - But if bringing kids were an option then I would except a gluten free kids menu as...
  16. Worriedtodeath
    Do keep a watch on yourself. there are delayed ige allergies (skin scratch test for those) and not all drs believe in those. I have made a few believers out of drs when my skin tests went hyper 12 hrs after the test and I had to be hauled back in for violent reactions to mushrooms, dust,mold, and pollen. I also have a delayed onset of insect stings and...
  17. Worriedtodeath
    Because a definitive dx would give us a direct path to follow with our kids instead of a very sick baby with 3 drs with 3 different ways thoughts on how to resolve her problems and how to proceed from here. One says it isn't Celiac but an allergy plus lactose intolerance - cut out wheat/diary, keep gluten in ,retry wheat in a few years to see if she...
  18. Worriedtodeath
    HI! Checked the marshmellows and it says modified corn starch. They all say that so I am assuming that is safe to consume. Perhpas it is just a healing thing and will take much longer to be normal. thanks for the quick response. I'm about to decide to just keep her and everyone else on fruits/veggies/plain meat until they are all normal and then...
  19. Worriedtodeath
    HI! We thought removing wheat and lactose had done the trick. But yesterday and this morning she has suddenly had green mucosy mushy movements again. SHe's only been off of lactose 10 days and wheat 6 days but her movements had "stiffened up" and returned to a normal color and dropped to one a day. NOw they are mushy green again and her second for the...
  20. Worriedtodeath
    I swear my ped is great and update on so much but just freaks whenever I go in and don't list the several glasses of milk, yougurt, cheese, and pudding. Must be her hang up. As she is intent on labeling the baby as Non Celiac even against the ped gi. So she's not bad.....probably has stock in the diary company Chia seeds as in Chia pets??? Those...
  21. Worriedtodeath
    For some strange reason, I can't wrap my mind around diary free/casein free/whey free diet. GLuten came really easy but this is much harder for some reason. I have 3 kids 10 yr, 7yr , 19 months. We know the 10 yr and 19 month old have lactose intolerance for sure. THey have both responded great to gluten free and due to the lactose need to be diary...
  22. Worriedtodeath
    Sorry you got in trouble. Thanks for bumping it though. I can't wait to try it. Do you use a lot of premade mixes or you just make them up (I'm thinking that's the flours you listed - all mix it up yourself?) THanks Stacie
  23. Worriedtodeath
    You were right LM, I've done alot of gluten baking and just started with the gluten free stuff. But I tend to look at baking as breads, speciality stuff not cookies and normal household stuff so I confuse a lot of people with. The crossiants will be what I consider to be a first attempt at gluten free baking though I have all ready made doughnut holes (can...
  24. Worriedtodeath
    I used to be a wild woman before kids and spent one saturday preparing food for a month of meals, one saturday cooking what parts could be cooked and frozen, and one saturday making breads & crossiants (yum yum yum when fresh) I've slowly got back to that and was getting back into bread making when all this hit. Plus I was a part time baker at one time...
  25. Worriedtodeath
    Update! 5 days of wheat and no lactose she is pooping several times a day. The nutrionist in the office told me to take her off of wheat and keep her diary free since she so obviously has a wheat allergy. They now want me to get her back to normal, go wheat free not gluten free, and then introduce the barley and rye. I asked if those cause her problems...
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