Lainey

  little d said:

I'm not in any pain it just feels like im ovulating since Aug 6 and i do have a dr appt with my obgyn on Sept 9 so she can tell me for sure what is going on.

donna

I just found out that I am preg. I tested 2 days before my period was due with a clear blue easy test.

I am not celiac but my youngest daughter is. I had no symptoms just a hunch that made me test early.

Good luck and hope that you are and all is okay!

Julie

I just found out that I am preg. my daughter has celiac and was wondering if I should eat gluten-free while preg. Anyone know anything about this? I am not celiac nor is my husband. We are not sure where she got it from. No one in the family has it. So I was wondering if I should eat gluten-free.

We just found out last year about my daughter, she is now 2 1/2yrs.

Any help is greatly appreciated. I have 3 other children from a previous marriage that are not celiac.

Thanks!!

Someone posted about being able to claim medical expenses related to celiac (food expense).

Can anyone tell me how much we needed to spend?

Also my Lainey (2yr old) had her scope on Wed last week and we should have the results today. The Dr said if there was no damage that we could still give her a normal diet. However her celiac panel blood test says +. Shouldnt I go gluten-free either way since the blood test was +? Just because the damage hasnt been detected yet- doesnt mean that it wont in the near future? My daughters pediatrician suggested go gluten free either way because she wasnt gaining weight fast enough. The GI Dr says feed her what she likes. This is all so confusing!! We have started the gluten free diet but we arent 100% yet. I am finding it difficult to find anything she likes. Is it ok to transition into this new diet? For the most part she eats breakfast gluten free and most lunch...its is dinner that she wont eat. Last night she had cereal for dinner cause she refused the gluten free chicken nuggets and mac n cheese. I dont want her to lose weight.

Any other suggestions would be great.

Thanks and I hope this post finds everyone well. We have had the flu around my house. YUCK!

Julie

Julie here...thanks so much to all that have gave me suggestions to the foods that my daughter might eat.

I need to answer a few questions and then I have a few more to ask.

First...my daughter was in the 5% for her weight since birth and about the 75% for height. She had lost 7oz and the Dr tried to get us to give her a more fatty diet to get some pounds on her. We tried. She regained her weight but the Dr still felt that she should weigh more. She is now in the 7% for weight and 38 for height. I thought that she was just petite. I am only 5'1". So the Dr decided to run some tests and a bladder kidney sonogram. She wanted to rull out certain things. We had taken her to have some blood drawn and then we got the news. We seen Dr Fishbein in Chicago and he feels from the blood test that she has celiac disease. But will do the scope to see whats going on in there.

I also forgot to ask the Dr....if my little girl has children...are they going to have this too?

I know...just let her be a kid for now!! Just wondering.

She doesnt like alot of foods....but all of her favorites are the things she shouldnt have and she has no problems or symptoms. So I am crossing fingers and toes and even eyes that the scope will come out normal, but I am getting prepared for going gluten free.

I looked at the Gerber Chicken sticks and they say they contain whey protein concentrate (from milk)????? IS this okay to eat or not. I thought that whey was an enemy too.

Also on the Kraft American Singles is says that it contains whey and whey protein. ???? This is forbidden too right???

I appreciate all help and advice here. I am still learning how to use this board too... forgive me for making any posts with no content.

Does anyone have a favorite gummy vitamin for my 2 yr old???

Thanks so much!! I have a million questions....just dont know where to start.

Thanks Barb! I am trying to read as much as possible about this. We are still wondering what side of the family it comes from. I have 3 older boys 5,13,& 16yrs old from a previous marriage. They all seem to be okay. I thought I was ok and my husband thinks he is fine and his side of the family. I am going to get tested as well as my husband.

I found it hard to believe when my daughter is happy almost all the time...no stool problems and none of the symptoms that I have read up on. So if that is the case that she has no symptoms...maybe I or my boys could have it too.

I would love to hear any toddler friendly menus. She loves Mc Ds Mc Nuggets. And she loves italian bread. Is there any cereal in the grocery store that she can eat? She loves Trix and Fruity Pepples and of course most others. I am a bit overwhelmed on all the little ingredients that she cant have. I thought that maybe someone has specifics on what is not forbidden. I am worn out just trying to find stuff she will like after the scope is done.

I would love to hear anyones KID TESTED FAVORITES!!!

My 2yr old doesnt drink milk... but has it in her cereal. But she wont drink it if its in a cup.

She doesnt like meat-except the chicken nuggets from McDonalds and the Gerber chicken sticks. But I know that those are out. She is not big on veggies except corn- I know...not much there.

Fruit is apples and that is about it. She is very picky. WOnt even try it if she doesnt like the way it looks.

YES- I need lots of HELP!!

  Cam said:

Hi Julie! And welcome! You will indeed get lot's of support and help from this wonderful group of people.

We were also surprised and shocked by the diagnosis of our daughter when she was 5. And, the food thing is just totally overwhelming and seems just impossible when you sit for a moment and think about it. But here is the good news - we've been at it for almost 2 years and it is fine! We are right back to our lives as usual with the one exception that we don't go out to eat anymore (and I am not belittling that - that is a huge adjustment and still difficult).

As for starting on the diet, it is true that if she is to be scoped in January, you should keep her on the regular diet until then, otherwise the results will be inconclusive. But in the meantime, I would highly recommend that you start to introduce some food substitutes now, along with her regular diet so that when you pull the plug it won't be all new foods at once. When we did this, I bought the gluten-free pasta (tinkyada brand is our favorite) and used the cheese pack from the Annie's that my kids were used to so it wasn't too different. Just break it in slowly. Like start to sub out some of the snack foods - glutino pretzels instead of regular pretzels, etc. It is true that there are many disgusting tasting gluten-free foods but there are many that are wonderful. I would be happy to share a list with you. Some essentials are Pamela's baking mix for pancakes and waffles, tinkyada pasta, Pamela's choc. choc. chunk cookies (too good!). Ian's and Bell & Evans both make gluten-free chicken nuggets.

Do you cook/bake? If you do - you will be able (in time) to recreate every single favorite she's got now, so don't worry! We eat pizza, lasagna, fries, mac 'n cheese, tacos, nuggets, you name it. It is just very hard to wrap your brain around this - but truly it will get easier. Also don't forget those many, many naturally gluten-free foods like fruits, veggies and probably even that American Cheese (we use Horizon). Please feel free to e-mail me if I can help with food lists or recipes.

Hang in there! The good news is that she is so little she actually won't remember what some of her old favorites tasted like - unlike us less resiliant adults!

barb

My name is Julie. Hello everyone! I am still in shock and overwhelmed. I know that here I can find some help.

First- I just got back from Chicagos Childrens Memorial to see a Dr to confirm blood test. We are scheduled to have the scope biopsy Jan 16. We are to continue the reg diet. However- prior to seeing this Dr- the pediatrician told us to start the gluten free diet. I went to the local health food store and was overwhelmed with the limited choices. I did buy a few of my picky eaters favorites. However- she wont eat them.

I would like to know if anyone has a list of kid favorites. Her favs are pastas and pizza and bread oh and dont forget the american cheese. I am beside myself on how to get her to eat this stuff. I tried some and I dont like them either. HELP.

My daughter was 2 in Oct. She weighs 22lbs 15oz and is 34".

She has no symptoms at all. So we are still shocked. And I dont know anyone in the family that has this either. Any help and or advice would be greatly appreciated.

Thanks!

Julie