AmyandSabastian

I drove 2 hours to get there, since there only one city in Louisiana that has one. When I walked in I swear I was in gluten-free heaven!! They even had gluten-free mac and cheese, all ready made bread, PIZZA, cereal, cookies, crackers, omg you name it. My husband and I decided that we will go once a month just to shop. Who ever told me about this place I call heaven a big thank you from Sabastian. I even got him some noodles that he LOVES to slirp up. If you could have seen the look on his face when his daily snack wasnt the same old rice crackers that is all I could find. He LOVED them. So big thank you from Sabastian and a happy mommy!!!

Well what is weird and made the doctors laugh at me is that Sabastian as you can see in all the pictures is not wasting away. IN fact his belly is soooo swollen that he was in the 110% for weight. When we went to a gluten-free diet his belly went down in 3 days and he LOST 3lbs. And as yall know for a baby is ALOT. Now he is in the 90% for weight and 100% for height so he is right on track. After speaking with the doc that dx'ed (a close friend of the family and 3000 miles away) he convinced me NOT to get Sabastian tested. That it was a waste of my time for right now and wasnt worth putting a 6 month old through going back to gluten (all the pain he was going through) and needle sticks and biopsys, wasn't worth it. And I wasn't ok with putting him under at such a young age for the biopsy with all the risks. So he talked me into waiting till he can tell me his tummy hurts before reindroducing gluten along with getting the tests done. So I am going through the emotional roller cooster ride of my life dealing with gluten-free diet.

Well the insurance we have to be referred to be covered. I do have an appointment with a GN on July 26th. I will let all of you know how it goers. Until then no gluten because I know how he reacts. I also did find there is no one in my city that have even been told they have celiac disease. According to the doc that told me about my son that was the first time he has seen it and he doesnt know anyone else that has seen it either. Real encouraging.

I thought this might help about teh Quaker Rice Cakes. I got this reply today.

RE: Quaker Quakes Crispy Mini's Rice Snacks , REF.# 5032837A

Hello Amy:

Thanks for your OatMail about Quaker Quakes Crispy Mini's Rice Snacks.

We understand that individuals sensitive to gluten cannot digest even trace amounts of gluten.  Since so many of our products contain grain ingredients and many products are made in the same facility, we cannot guarantee that any particular product is entirely free of gluten.  Although we would like to help you find products that meet your special dietary needs, we are not able to recommend any of our products.

We hope this information is helpful.

Michele

Looking for local support for my soon to be gluten free family. Anyone here near me in Louisiana?

I am really looking for some support. I just got off the phone with R.O.C.K. and with no luck there is no local support groups. So far every place I have contacted has no local groups. So I am really going to rely on this site to help. I am going to the bookstore to buy a few books recommended and read the cover to cover. All of my feelings are just so overwhelming.

Let me start at the begining. My son at birth was always cranky. He was exclusivly breastfed. He was "colky" from day one. He has such probelms with my breast milk and after I cut everything from my diet I decided to put him on forumla. Little to my knownledge it contained gluten. No why would they put it in an infants forumla?????? Well after 2 months of a screaming child, pooping probelms, swollen belly, horrible gas and gas pains, every type of tummy medicine, I knew something else was wrong. I then saw 4 different pedi that treated me like a dumb first time mom that didnt know what I was talking about and excpected a baby that didnt cry. I then called a close family friend that lives 3000 miles away who is an internalist for help. After an hour of me crying telling him all of my son's porobelms he said without a doubt take gluten out of his diet for 10 days to see. Changed his formula and took him off of his oatmeal cereal and wala a happy normal baby.

That was 3 weeks ago. Since then I have gone back to my normal pedi and told him our clonclusions and he laughed in my face saying babys cant have celiac disease. And refused to do the blood work. We went to dr after dr with the same reactions. I have had several mistakes with giving him gluten and each time within 30 minutes he is screaming in pain and his belly is swollen. So I am not putting him through the pain of a biopsy right now. I know.

This whole time I blamed myself for my toxic breastmilk, and shoveling oatmeal in hsi mouth daily. I wonder when I am ready for my second child if they will have celiac disease. I worry about him eating out with friends are just feeling different for the rest of his life. With no doctors to support me except one 3000 miles away over a phone I am not sure how I am going to do this. So any help, words of wisdom, anything would be great. Thank you for at least reading my little vent..

OK I have already messed up!! This is soo hard. Moms I need your help. What would you suggest I could get or recommend family to keep on hand for him to snack on and learn to eat with his hands?

Hi my name is Amy. I just found out my son who is 6 months old has celiac disease. I am having such a hard time dealing with it. I am trying to learn as much as possible here. But a few quick questions. I went shopping with my list in what he cant have. All the baby teething items have gluten in them and I am looking for other things to try. Mainstream would really help. Does anyone know if any mainstream cereals or cookies or chips he can have? I bought a box of Crispix and Pops and looked it up and down and I cant find any gluten in them. I know I might be missing something. I am sure they name it all different types of things. My husband and I are going gluten free as of Aug 1st. Just to give us some time to learn and also to make the house gluten free without wasting so much food. I want my son to be able to eat anything in his own house. I guess I am looking for support as well as some help with mainstream items. I have the order book for gluten free pantry and plan on placing an order soon. I just wish we knew what tasted good before and what kids liked. I also just bought a bread machine so I can make my little man some bread. Any help would be appriecated. I look forward to getting to know all of you on my quest of knowledge.

Amy and Sabastian