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healthygirl

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Everything posted by healthygirl

  1. Hi, It sounds like you have been through alot and I wish you the best. It seems to me that with your history of anorexia you should look at getting some expert assistance in terms of your diet and ensuring you stay on track. My GI set me up in a meeting with a nutritionist which was very helpful. Perhaps you would find it helpful to do that. As well...
  2. Well, my doctor is sure it was just a viral thing I had after all and not an allergic reaction so no allergy testing for me. It actually makes more sense it is viral based on all the flu like symptoms and the time it took to come and go. I am back into my regular routine, taught 2 spin classes and a conditioning class and went for a run over the last few...
  3. healthygirl

    Me And The Farm

    A guard donkey? I love it!! It is big, like a mule size, or just a cute little donkey?
  4. Okay, so I don't have pityriasis rosea and it wasn't a virus fluey thing that interfered with my marathon. Apparently I am experiencing a full body allergic reaction to something....oh fun. I was covered in big blotchy spots as of end of day yesterday and figured it was the pr I was diagnosed with yesterday...this morning woke up at 4, had to pee...
  5. So my first marathon in a year was this weekend...in short, it was a race gone bad. A few days before I started feeling vaguely fluish, but kept pushing the thought aside. If I don't think it, it can't happen, right? So after a couple of days of sore eyes, sore skin, and drenching night sweats, I stupidly headed out Sunday morning for the 8 am start...
  6. I am 1 1/2 weeks away from my first gluten free marathon. I really don't think food wise it will be any different than the others I have done. I use Cliff Bloks and Power Gels as food during the run...I had found previously I could tolerate Power Bars as well, but I think they have oat flour...if they don't I'll probably start using those for my next round...
  7. healthygirl

    Feelin' Groovy

    I'm so jealous of you two!!! I will never be able to convince my husband to move to an acreage...he is a city boy at heart. I grew up on an acreage with our own garden, our own cattle (so I grew up on grass fed beef) and everything was organic...didn't realize how lucky I was at the time. I am contemplating putting some vegetables...
  8. Hi Willow5, The main genes for autoimmune celiac are HLA DQ 2 and 8. However many experience gluten intolerance with other HLA DQ results, particularly if they are a double results (ie: HLA DQ 1,1 or 7,7). Hope this helps, healthygirl
  9. Thanks, Joni....I'll pass that on to my sister as well...
  10. Glad you found the thread and found it a helpful explanation for your hairloss. The more stories I can share with my sister, the more I am hoping she will try a gluten free diet to reduce her symptoms, the alopecia being just one of a few autoimmune disorders. Good luck and hopefully you find some more linkages in this site as to how an intolerance...
  11. Okay, so I think I now have an understanding of my results.... I am HLA DQ 1,1 (5,6), which means I am a double DQ1 with subtypes 5 & 6. According to Enterolabs (who I did not test through as I got genotype testing done for free here in Canada) I am positive for genes that predispose to gluten sensitivity and having the double copy DQ1 increases...
  12. Thanks Fedora, I know that I get unpleasant side affects from eating gluten and the side affects became more apparent and seemingly worse each time I give myself a gluten challenge (I did two, one after being off about 4 1/2 months and one after being off again for about 2 months). I don't plan on going back onto gluten so am happy to be gluten free for...
  13. So now I have more questions (you would think I could just let it go at this point!!). I have been digging around for more info on what DQ5 and DQ6 actually mean. It looks like they are a subtype of DQ1, so am I actually DQ1 (subtype 5,6) which would make me a double DQ1? This is so confusing...if anyone knows the answer please post it here for me and...
  14. Hello, I see a recent thread on HLA typing, but thought I would post this separately so it doesn't get lost in the previous thread...hope no one minds. I had my testing done through my GI's office, so didn't go through Enterolabs for results...However, I am hoping some of you experts out there can help me understand the results a little better. What...
  15. I got a call from the GI the other day indicating that I had not tested positive for either gene that would predispose me to Celiac disease...I requested a copy of the results be mailed to me and I am so glad that I did...and they arrived so quickly. Turns out I don't have the HLA DQB1 08 or 02 which are the 2 main celiac genes. However, what the GI...
  16. They last about 5 days...start with a a really light day, a couple of days heavier and then really light the last couple. I think it is normal, and I also think as we get closer to menopause (I am 42 and could be hitting peri-menopause) things start to change a bit anyways...
  17. Thank you both....After posting this question I did a little bit of searching on the relationship between alopecia and gluten and it appears there is a connection between the two. I believe her hair loss would be autoimmune related vs. vitamin deficiency...hers is true alopecia where she has a quarter sized spot absolutely bald, but the rest of her hair...
  18. Hi, my sister has not been diagnosed celiac or gluten intolerant, however, she has a number of symptoms of autoimmune disorders and the doctors just can't figure out the primary cause. Her most recent experience is alopecia (a larger than quarter sized patch of hairloss on the scalp that continues to get larger). She also has symptoms of sjogrens,...
  19. Hi Aleisha, Your doctor might want to run the Free T3 and Free T4 in addition to the T3 and T4 already done. They are different tests. Here's a brief explanation: What is the Difference Between T3 and Free T3? Triiodothyronine (T3) is a thyroid hormone that circulates in blood almost completely bound (]99.5%) to carrier proteins. The main transport...
  20. I didn't get my first period until I was 15 and was very irregular. No horrible cramps or anything though. When on birthcontrol I was regular, but off birthcontrol I can go sometimes 45 days, sometimes 30, then the next time 60 days inbetween. I have gone gluten free off and on for the last 9 months and notice off gluten I am much more regular.
  21. Yes, It is surprising the things you have to give up...check the labels on the soup stock you buy as well...you'll be amazed at how many contain wheat. The organic Imagine brand seems to be gluten free and you can also buy bullion cubes that are gluten free. I do like to cook and bake, both. I guess the things I miss are the baked items so that is...
  22. I am through the withdrawal and am feeling great!! I am experimenting with a few different bread mixes out there. The Bob's Red Mill Whole Grain one is very good if you like the taste of rye bread. I also like the Kinnikinik sunflower flax seed bread. That one is not a yeast bread, it is a little heavier and sweeter than most breads, but is very good...
  23. I will have to mark the day on my calendar!! That is a great idea and I can celebrate it yearly with a gluten free anniversary cake of some kind! I do have a bread machine, which works well with the Celimix bread mix. I have also used Kinnikinik bread mixes which aren't yeast based, so are pretty easy to make...those I just mix up and bake...
  24. I am also in Canada and had the TTG IGA only done. It took 3 weeks, reference range being <4 negative, 4 - 10 weak positive, >10 positive. It is obvious we two Canadians had different panels run (various labs will use different panels and will have different reference ranges). You may want to follow up with your doctor or the lab and see what the...
  25. Hi Krisloner, Check out the link above. It takes you to the related disorders and research forum of this site. There may be additional posts there that you find useful. In this thread, I think you will see that many have struggled as you have with the emotional as well as physical element of gluten intolerance/celiac disease. Ensure that your doctor...
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