karen149
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Everything posted by karen149
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ARCHIVED Miss Pringles? Found a gluten-free Alternative
karen149 replied to Ennis-TX's topic in Gluten-Free Foods, Products, Shopping & Medications
I would avoid the ones suggested at the Thrive market site. The Vinegar has barley and all state that they may contain Wheat on the packaging, as can be seen in close-up views. We've been eating Lay's Stax for years with no issue. Since we are also dairy-free, we stick to Original. -
ARCHIVED Support Group In Fresno, Ca
karen149 replied to glueless's topic in Introduce Yourself / Share Stuff
Hi, You can contact the Celiac Sprue Association to start a support group or be a resource for your area. I have a group in Manteca and have had people call me from the Fresno area or drive to my meetings so Fresno really could use a group. I think there used to be a group but no longer. -
Hi, I run the Central Valley Celiacs(CSA) support group based in Manteca. I just had a meeting(I post on the calendar here) April 30th and had people come from as far away as Lodi and Merced! I shop at Raley's, Pak'nSave, Trader Joe's and a few health food stores in Stockton and Tracy. I have eaten out locally at a Mexican restaurant and In'nOut (you have...
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ARCHIVED Good Milk Substitute For Kids?
karen149 replied to a topic in Parents, Friends and Loved Ones of Celiacs
Hi, We use Pacific Almond milk for cereal and cooking. OJ with calcium and vit. D for some drinking also. Vance's Chocolate DariFree goes over well with my kids. I mainly use the original flavor for baking bread that calls for dry milk. Kirkman Labs makes a nice liquid calcium supplement but I found the sucralose bothered us. Hope this helps! Karen -
ARCHIVED Gliadian Blood Test Results.
karen149 replied to blazer's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Has your doctor considered that you might have something going on with your pancreas? I've been gluten-free over 3 weeks and still having unusual stools. I have been eliminating dairy also. My GI is going to check this. Sometimes it's an issue of enzymes out of balance still producing the same results. Pancreatic issues can also present with stomach and... -
ARCHIVED Blood Tests And Gluten Challenge
karen149 replied to Elsie L's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here's a great site for explaining all those acrnyms: Open Original Shared Link I hope you find an answer soon. It sounds like you would definitely benefit from a gluten-free lifestyle. Hope this helps! Karen -
ARCHIVED Eye Problems
karen149 replied to gooser's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, I have dry eyes too. And dry mouth, etc. I was recently diagnosed with Sjogren's Syndrome. All kinds of celiac info links Sjogren's, but Sjogren's sites say nothing about celiac. I am scheduled to have plugs put in my eyes soon so I don't have to be using eye drops every hour. I'm glad you found an answer, though. Karen -
ARCHIVED 16 Month Old - Failure To Thrive
karen149 replied to klang77's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, My 3 y.o. daughter was recogized with failure to thrive. She, too, would lie around with her blankie rather than play and was always very calm on outings. Her tummy was getting big and she was screaming at everyone. She had a lot of gas and some rectal prolapse(I called it "the rose" when she had BM's, I had to push it back in)Her first doctor told me... -
Hi, my 3 year old was diagnosed with Celiac and Hashimotos a month ago. Her endocrinologist said the two usually go hand in hand. I would think since she went undiagnosed for so long her thyroid was also affected. Since one of the symptoms of hypothyroidism can be constipation, Celiac was not the first consideration when I took her to the doctor(they seem...
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ARCHIVED Feels Like Growing Pains?
karen149 replied to catfish's topic in Related Issues & Disorders
Hi, This is happening to my daughter right now. She's only 3, but I called her endocrinologist yesterday with the same question. My daughter cries that her arms hurt and she is waking up at night with pain. The doctor said it is most likely her system getting back into growing mode and starting to absorb nutrients. -
ARCHIVED Need For Biopsy?
karen149 replied to CarolynM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, Our 3 1/2 year old daughter just had an endoscopy done 3 weeks ago. I was hesitant at first and came here to ask questions and got a lot of good advice and questions I could ask such as: Could she have some numbing cream for where the IV would go?(they used some, I just had to make sure to remind them) Could I be in the room during the procedure?... -
ARCHIVED 3 Yr Old/endoscopy?
karen149 replied to karen149's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Nope, won't go back to the old diet. She also is anemic and was diagnosed with Hashimoto's thyroiditus so she has to take med. for that. I think I am having a hard time right now wondering where it all came from and wishing I had the knowledge to see it earlier. But I am happy the second doctor I took her to referred her to a specialist where we got an answer... -
ARCHIVED 3 Yr Old/endoscopy?
karen149 replied to karen149's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
We won't get biospy results for a few more days. Since my daughter is an obvious classic case for a child and bloodwork confirmed that, she started her new way of eating after we got home. Found a lot of good stuff at a nearby grocery, gluten free items are marked in the aisles and an employee walked me around the store and pointed out things. -
ARCHIVED 3 Yr Old/endoscopy?
karen149 replied to karen149's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you all for suggestions on questions to ask. Since we had to make a 140 mile round trip the doctor arrainged to do the endoscopy today. Yes, they used a numbing cream, took biospy samples from several areas and we were able to stay in the room while they did it and watch what was going on inside on screens(he had Nemo on another screen too-it was really... -
ARCHIVED 3 Yr Old/endoscopy?
karen149 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My 3yr old daughter has been diagnosed as a"classic" Celiac case after seeing an endocrinologist and donating major amounts of blood for many tests. We will see a gastroenterologist tomorrow for consultation. Doing a biopsy seems to be the next step. I do not feel comfortable about sedation, tubes, etc. Do these doctors present this as the only way to go...