Jump to content

mamasaidso

Advanced Members
 View Profile  See their activity

  • Posts

    35

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mamasaidso

  1. mamasaidso
    Thanks for answering. My daughter had negative blood work and positive biopsy. Doctor didn't believe she had celiac until I was tested and had positive blood work and biopsy. The rest of my Irish-Italian family has symptoms galore and in no rush to get tested. I think they are getting tired of me pushing, so backed off (for now). My daughter and I...
  2. mamasaidso
    I posted last week about my "normal" large thyroid and elevated antibodies. Was diagnosed with Hashimoto's, which I suspected would happen. Still waiting for hard copy of test results, but discussion with doctor's assistant today gave me a diagnosis and she said my antibodies were at 70, TSH 1.95, T4 5.7. The Free Thyroxine Index was 1.7. They didn't...
  3. mamasaidso
    Thanks for responding. When I receive blood test results in mail I will post them. My TSH runs around 2.058 and I'm not taking any medication. Nurse didn't tell me how elevated antibody test was, but I'm really wondering. I've been so dizzy the last couple months. Thought my B12 was low again, but it's okay. Had a bacterial infection that lasted seven...
  4. mamasaidso
    I'm really wondering what's going on with thyroid and what to do next, if anything. Have had tightness in throat and thyroid feels like it's pulsing most of the time. Had ultrasound, which indicated a large thyroid, but nothing else out of the norm. Blood work came back normal, except for elevated antibodies. Have had increasing fatigue and weight gain...
  5. mamasaidso
    I really believe there is a link between the two. I was diagnosed with celiac disease last year and had cataract surgery at age 52 for one eye and developed it in other eye and had surgery again at 57. Have sensitivity to sunlight and doesn't seem to be quite as bad now that I have been gluten-free a year. Also have really dry eyes. Don't smoke and no...
  6. mamasaidso
    Just read the back of bottle and it said to check with physician before taking if you have an autoimmune disease. I've read the threads on sleep and melatonin but no mention of this. Hope it's okay to take because I had a really good night's sleep last night and it's helping my daughter, as well. Will check with our celiac specialist tomorrow just to be...
  7. mamasaidso
    I recently ordered some lipstick from Afterglow after seeing advertisement on the forum. It's really wonderful. A little pricey, but totally gluten-free and no chemicals. It's worth the price. I can't wait to try some other shades. If you're not sure what shade to order you can talk to consultant on line. Nice company to deal with.
  8. mamasaidso
    I was diagnosed with celiac disease in January 2008 at age 58. My osteoporosis was in high risk range for hips and spine on dexa scan two years ago. Last year I tried to find an alternative to the Fosamax D my primary doc had prescribed. I decided to see if the gluten-free diet made a difference before I went the drug route. I had read in Dr. Peter Green...
  9. mamasaidso
    I received my Dexa results via a PDF file. Didn't even have the experience of watching the look on her face. As far as she is concerned, she probably thinks the results are from medication from a prescription I never filled for Fosamax D. I thought about emailing her about it, but then thought, Nah. I'm not even sure she reviewed it or compared it to...
  10. mamasaidso
    I was really fretting over getting results of recent Dexa scan. Thought for sure it would be bad as last two showed a steady decline in bone mass. But, after being gluten-free since January and being faithful about taking calcium and starting weight-bearing exercise my test showed no osteoporosis in spine. It was completely normal and the severe osteoporosis...
  11. mamasaidso
    After being gluten-free since diagnosis in February I decided to go to endocrinologist for my osteoporosis. He did several tests including a 24 hour urine calcium test. My level was 13 mg which was considered low. However, he said test result meant I was actually absorbing more calcium and not to worry. I am worried about taking Forteo or any other drug...
  12. mamasaidso

    ARCHIVED Frustration With Gastro Doc

    mamasaidso posted a topic in Doctors

    My 21 year old daughter and I have different gastro docs. She really likes hers, but I am having some doubts. She had first endoscopy last October which showed totally flat villa and had negative celiac panel. He was not convinced she had celiac even after I had positive bloodwork and positive endoscopy done this spring. She just had second endoscopy with...
  13. mamasaidso
    Hi, Just purchased some Desert Essence organic face wash and eye serum. It also says it's Age Reversal, but haven't seen any of that yet. It states on product that it is organic, wheat and gluten-free. Also not really expensive. Each product under ten dollars. If you go to their site, it will show product and info. Found it at The Vitamin Shoppe...
  14. mamasaidso
    Really like Villa Massa Limoncello. After a trip to Italy last May decided to make my own and it's so good. Can make three bottles for the price of one. Found the recipe on the internet and it's easy, but you need to be patient. The recipe calls for vodka (I use potato vodka, Blue Ice) and Everclear. Peels infuse for 40 days and then add sugar water...
  15. mamasaidso
    Hi, Thanks for responding. I'm wondering if we are getting glutened, like you said, and just don't realize it. Am careful eating out. Chinese restaurant we love to go to is careful to tell me about menu, but wonder if that is it. I've had a panel done recently and B-12 was at low end of normal and iron was great. We eat home most of time and I'm...
  16. mamasaidso
    Felt pretty good first month or so with no gluten, but all kinds of new symptoms popping up. Have a really bad problem with photosensitivity and heat exposure. Much worse that before diagnosed with celiac. Have terrible fatigue and balance issues Just feel out of it mentally. Was hoping the B-12 supplements would help. Taking them sublingual as you...
  17. mamasaidso
    I was wondering if balancing out the bacteria in gut would help with the rash. Sometimes I put kefir in my daily smoothie but not on a regular basis. I have a lot of inflammation in small bowel and thought daily probiotics or kefir would help everthing. Have read some interesting things about kefir and do feel better when I include it in my diet. Gluten...
  18. mamasaidso
    Thanks so much for the advice on drink for the x-ray. I wouldn't have thought of it. The vitamin deficiency panel came back okay, B-12 was at very low end of normal and folic acid was fine. Getting a monthly B-12 shot and take my supplements daily. It seems to be helping with my balance, too. Speaking of balance, I took a major tumble in a restaurant...
  19. mamasaidso
    Had appt yesterday for biopsy results and seems I have severe blunting with some other things going on. Next week going in for x-ray of small intestine and will see what that shows. I think it's years of damage from the celiac. The sublingual B-12 is helping and think I have a long road ahead of me. Kind've worried about condition of my stomach. Well...
  20. mamasaidso
    Bought a box of Notta Pasta at Whole Foods last week. Being Italian, this is hardest part of changing my diet. Tried the Tinkyada and it is okay. However, just made some of the Notta Pasta and it tastes wonderful. Water not very starchy after it's cooked and taste is great. I'm so happy! It's made from rice flour and water. Their site is great and...
  21. mamasaidso
    Thanks for replies. I had a funny feeling that this may take a while to heal. Didn't realize it can hang around that long under skin, but doesn't surprise me in the least. I am constantly learning something new about this. So, I should avoid iodine? Does that mean shrimp? Why does iodine aggravate this? Guess I have more research to do. I have had...
  22. mamasaidso
    I am just a few weeks into celiac diagnosis and yesterday my new dermatologist confirmed DH on my arms. That's the only place I have rashes. The itching and burning is starting to ease up a bit on the diet. She gave me TMC-compound to relieve itching and seems to work. I've had five years of wondering what this is and no doctor has been able to diagnose...
  23. mamasaidso
    Thanks for the tip on the sublingual B12. I'm getting a little frustrated with my doctor as have made two requests for an order to get bloodwork done for deficiencies and still no response. Some doctors recommend seeing a nutritionist. Do you all think that's necessary? I've been doing quite a bit of research and think I can keep up with balanced meals...
  24. mamasaidso
    Well, the report from endoscopy came back positive for celiac. I am going have doctor give me an order to have vitamin levels tested. Wondering if that will help me figure out why I have constant tingling in arms and legs and balance issues. Also, the fatigue and muscle weakness is a problem and osteoporosis is on a fast pace. Have been putting off taking...
  25. mamasaidso
    Hi Kate, My daughter was just recently diagnosed as well. She is twenty-one and joined the forum last week. I'll be sure to let her know you are a member of this elite club as well. She is going off to new university in the fall and would love to have someone to talk to. Best to you, Maureen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.