
nikky
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Everything posted by nikky
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ARCHIVED So Confused
nikky replied to Worried mommy's topic in Parents, Friends and Loved Ones of Celiacs
Not everyone with coeliac will get a noticeable reaction when they eat gluten, but the damage is still done inside, at first i had no reaction, I was diagnosed after recurring aneamia. At the time I also had a negative scope, but now if i eat the slightest trace I feel as though i have a severe flu and my lips and tongue swell up. Reactions can get more severe... -
ARCHIVED Negative Celiac, Positive Anemia?
nikky replied to taynichaf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This does sound more like coeliac than a regular gluten intolerance, damage from coeliac makes it difficult for the body to absorb nutrients which would explain your persisting aneamia, mine didn't settle until I was fully gluten free for a few months. .. what other symptoms do you have? How many times have you had your bloods checked for coeliac? sometimes... -
ARCHIVED Coeliac And The Mini Pill
nikky posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Wasnt really sure where on the forum to post this, but thought this might be the best place. Im an 18 year old (19 in a week and a day) female from the UK and since I've been 17 i've had problems with very painfull periods. Each month I find myself curled up in bed with a hot water bottle and unable to carry on with day to day activities. I've tried... -
ARCHIVED Struggling To Cope With Boyfriend's Mother
nikky replied to nikky's topic in Coping with Celiac Disease
thanks for your advice... After my last visit, I left a jar of sweet and sour and some soup in my boyfriends room, which he later found her trying to take out of there to use herself. When asked her excuse was that i wasnt there, when my boyfriend pointed out that it was me that paid for it and therefore it was mine and she had no right to use it, her... -
ARCHIVED Struggling To Cope With Boyfriend's Mother
nikky replied to nikky's topic in Coping with Celiac Disease
Oh dear.. thats not reassuring for her patients is it? a worrying amount of doctors seem to have very little, if any, understanding of this condition... -
ARCHIVED Struggling To Cope With Boyfriend's Mother
nikky replied to nikky's topic in Coping with Celiac Disease
I DO cook for myself there, i dont expect anything like that. As i mentioned in my original post I have asked to be allowed to get food for myself and store it there but she always turns it away... At 18 years old its not always easy not to have anything to do with someone or let them near your food in their own house. -
ARCHIVED Struggling To Cope With Boyfriend's Mother
nikky replied to nikky's topic in Coping with Celiac Disease
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ARCHIVED Struggling To Cope With Boyfriend's Mother
nikky replied to nikky's topic in Coping with Celiac Disease
Thanks for your advice, yeah, the kitchen is a minefield, i go in and clean like crazy in there. I do want to point out though that he does stand up for me, they've had shouting matches over it, the week we were on our own, he went out and spent all the money he had to get me safe food, he is really good to me. -
ARCHIVED Struggling To Cope With Boyfriend's Mother
nikky replied to nikky's topic in Coping with Celiac Disease
no i dont live there... i live with my parents, we dont have a place on our own because we cant afford it at the moment -
ARCHIVED Struggling To Cope With Boyfriend's Mother
nikky replied to nikky's topic in Coping with Celiac Disease
Firstly, I havent been to the house since she said that. secondly, it is not my boyfriend that is the issue, if he had the money hed be away from her by now. As it is we are moving next year for me to go to uni. And if i had married him, would you suggest i divorce him? I dont think so.. -
ARCHIVED Struggling To Cope With Boyfriend's Mother
nikky replied to nikky's topic in Coping with Celiac Disease
Yeh its a horrible feeling. He tries his best to come see me here but its not always easy with money. Thankyou for your help -
ARCHIVED Struggling To Cope With Boyfriend's Mother
nikky replied to nikky's topic in Coping with Celiac Disease
Thanks for your advice, happily we intend to get a place when we are able to afford it, although that may be around another year. Its funny you mention diabetes, she's actually diabetic herself and so should have an understanding of the difficulty these things create. -
ARCHIVED Struggling To Cope With Boyfriend's Mother
nikky posted a topic in Coping with Celiac Disease
I'm slowly getting to the end of my teather with my boyfriend's mother. She shows no respect for my inability to consume anyting with gluten in it and whenever im at the house she tries to feed me bread, pastry, pizzas and gluten containing frozen foods including sausages and burgers that contain wheat flour. She also refuses to let me store food safely and... -
thanks for your replies everyone what are the symptoms of poly-cystic ovary syndrome? i've heard of it before but i had no idea it was connected to coelic
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thankyou where do you normally find it?
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As others have mentioned... you are born with a genetic predisposition to coeliac, not the condition itself.. it has to be triggered, in my case this was by a bad virus when i was 14... ive been treating the condition for almost four years, and i am well aware of its complications
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I'm an 18 year old female and for the last year, i have been suffering from increasingly severe abdominal and pelvic pain that can leave completly unable to function. This is especially true around the time of my periods, where i can be left crying in pain, unable to sleep and missing days at a time off college. I have been to the doctors many times...
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intrestingly, scientists have recently discovered a strong link between the two conditions.. https://www.celiac.com/articles/22551/1/Celiac-Disease-Associated-with-Asthma-Risk/Page1.html its all explained in the article and given what they have found, i wouldnt be at all suprised if your asthma was receeding thanks to your treatment
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ARCHIVED Would Love To Be Reassured That I'm Not The Only One Struggling!(new Here)
nikky replied to Miki-chan's topic in Introduce Yourself / Share Stuff
Miki -chan first of all welcome to the community! your not the first to struggle, and you wont be that last, so dont beat yourself up about it, its a big change to deal with and it effects us all in different ways. Sometimes it can be difficult for friends to understand not only what coeliac is in the first place, but also why it has to be taken... -
Endoscopy Tomorrow, And Terrified!
nikky replied to foodiegurl's topic in Coping with Celiac Disease
yay *hugs* glad it all went well for you -
ARCHIVED Getting Tired, Depressed, And Frustrated
nikky replied to Korwyn's topic in Coping with Celiac Disease
*Hugs* Sorry to hear your having such a hard time.. but if it helps, a lot of us feel overwhelmed at first so your not alone. A good thing some people find (including me at the start) is to treat your self every weekend with your favourite gluten free (and in your case soy free) food or by doing something you really enjoy, weather thats simply taking... -
ARCHIVED Went To My Doctor This Morning
nikky replied to Lynnie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
*Hugs* Im sorry your having so much trouble persuading your doctor to do the testing.. they can be such a pain sometimes cant they!! Good on you for standing your ground though How long you take to recover depends on the amount of damage the coeliac has already done.. some start to feel better within a few weeks and are fit and healthy in a year..... -
ARCHIVED Endoscopy Question
nikky replied to Bman23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hmm... that does sound ominous doesnt it... inflamation/irritation of the intestines can be an early sign of coeliac.. The biopsy of your oesophogus was probably too high in your digestive tract to detect damage .. biopsies work best if they are taken from several places incase of patchy coeliac.. Also coeliac can have 'dormant' phases sometimes... -
Endoscopy Tomorrow, And Terrified!
nikky replied to foodiegurl's topic in Coping with Celiac Disease
aww hunni sorry its so scary.. i was only 14 when i had mine done so i was really nervous about it.. but honestly you'll be fine, the worst part for me was the IV ( i have deep and thin veins so it took about 15 attempts ) once theyve got that in and they give you the local it'll be plain sailing good luck -
hi. My mother has started making gluten-free sausage rolls, the pastry is always really good but it falls apart so much that theres hardly anly left on the actual sausage roll. We were wonering if you had any tips tomake the pastry stick together a bit better. Thanks