Jump to content

GEF

Advanced Members
  • Posts

    224
  • Joined

  • Last visited

Contact Methods

  • Website URL
    http://
  • ICQ
    0

Profile Information

  • Interests
    Pet lover (have a cat, a Maltese and an African Grey), cello player, and love to play video games with my fiance!
  • Location
    Richmond, Virginia

GEF's Achievements

  1. The tests results indicate a gluten intolerance in the least. The fact that his brother was diagnosed with celiac is important, as this son could have the genes and could develop celiac later in life. Gretchen
  2. I'm with Richard on your probability of having celiac. Now, apparently you need to be biopsy-proven to participate in some celiac studies... and I'm not sure if the tax-relef would apply to that as well. Perhaps someone could shed a light on that. Gretchen
  3. I spoke with the nurse yesterday. She is so cool and told me that if I EVER have any questions, that I can always call her.. she was awesome. Anyway, I asked her what test came back "suggestive" of crohn's... and she said it was the Anti-OmpC Iga (weirdest thing I've ever heard). Apparently if your result is less than 16.5, then you're negative. Mine...
  4. Just wanted to clarify and say that although this can occur it is always the case. Genetics play quite the role in celiac and you can be gluten intolerant and never develop it. I too wondered this up until recently.... I feared the risks of not going gluten free (I was positive on igg & iga), but my doctor performed HLA (gene typing) testing and gave...
  5. Thank you so much, Stacie for your support. My test is on Nov 2nd @ 9am. I pleaded with the scheduler for grace because of my timing issue and she got me in. The thought that acute inflamation is occurring somewhere in my body is a little unsettling... even that it is "suggestive" of crohn's. Either way.. pos or neg, I'm glad that we're getting closer...
  6. I just received a call from my doctor today that the test for intestinal inflamation came back "suggestive" of crohn's. We have totally ruled out celiac disease with every test imaginable, including the HLA. He wants to do an upper GI and if that's not conclusive, then he wants to do the mini-camera test (the camera that you swallow). I have mixed emotions...
  7. HLA is a gene typing test where they check for the genes DQ2 & DQ8 (researched to be the celiac gene). If you're intolerant and you carry this gene, there is a risk that you could develop celiac (if you haven't already) later in life. If it is negative, you will not develop it, even though you are gluten intolerant and obviously have symptoms. Gretchen
  8. In the very least, I'd say you were gluten intolerant. I posted this on the York thread, but you might look into HLA testing if you'd like a definitive answer on whether your intolerance could lead to celiac. It's also important to know that for family history purposes. If you're negative for celiac after it's all said and done and you want to feel better...
  9. Nukapai, It was really important for me to have a definitive answer to whether or not I would develop celiac and I must say that the HLA (gene typing for DQ2 & DQ8) gave me that answer. I was negative, by the way. With all of my inconclusive celiac tests, I didn't feel comfortable just not knowing. My doctor has been very open to exploring the...
  10. I received a call from my doctor today (less than a week from the test date!!). Anyway, it's good news! He performed the HLA (gene typing) and I'm negative for both DQ2 & DQ8. Apparently I will never develop full blown celiac. After the wedding sometime (which is 11/6), he might want to perform the ELISA testing to see if that's where the cause...
  11. I also found their website, if anyone would like some more information: Open Original Shared Link
  12. Hello, I have relocated your original post to the Pre-Diagnostic Testing, Symptoms... area. For responses, please post under the following thread: Open Original Shared Link
  13. This is a really good article on the ELISA testing: https://www.celiac.com/st_prod.html?p_prodid=1042 I e-mailed it to my new GI doctor and he's looking into it. He's a really cool doctor. GI's deal so much with IBS, that I'm sure they'd like answers as well. It's worth talking with your doctor about. Gretchen
  14. I asked my GI specialist this just last week and he told me that they could run a few tests, but probably not to the extent that would prove helpful. He did tell me, however that an Allergist would be the person to see for this. There is a test by York Laboratories that tests for 100's of intolerances, called ELISA if you don't want to see a doctor for...
  15. GEF

    ARCHIVED Going To The Gastro Dr

    Billy, In my opinion, I think it's great that you're going back to a doctor... I'm on my 4th and hopefully final on the celiac issue. (It's difficult to find one that really knows about celiac and gluten intolerance). When if your appointment? If you feel it's important that you have accurate testing, you'd have to be back on gluten for some time for...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.