willabec
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Everything posted by willabec
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i just got my results back from my colonoscopy a few weeks ago...i do have microscopic colitis and the biopsy of my duodenum looks "celiac" - i have been gluten-free for 9 years...so either the microscopic colitis is causing the "celiac" look to my intestines or something is going on....i am kind of nervous....dr. prescribed prednisone for 15 days....the...
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i thought i was following the diet to a T, but maybe somehow ingesting gluten without really knowing it....i do eat alot of homemade gluten-free foods, but i do go out to eat, and if i do i ask....alot of restaurants now have gluten-free menus, so i will order off of that....i don't know....i will have to see.....dr. put me on prednisone to treat both issues...
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well, just found out that i have lymphocytic colitis and non-responsive or refractory sprue....not sure which and not sure if they are the same thing....some things i see on line indicate they are two different issues. i am very nervous - especially about the refractory sprue- not anything good about it on line.....
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i had mine as well and waiting for the results but on the paper that they sent me home with....that things looked normal, it also said colitis not present...how can they put that on the paper if it can only be determined by looking under a microscope?
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wow! i will have to look into that....seems like alot of work! i had my testing done on tues....nothing out of the ordinary according to the dr. all looked good. he did take some biopsies while he was in there....so just waiting on the results. i do hope he finds something just so i can have some sort of an answer....because if he says everything looks...
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just wondering, who out there in celiac land has also been diagnosed with leaky gut?
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thanks! sorry, but at least i am not the only one. i must say i believe i follow the diet 99%. i really doubt that that 1% if that would do something like this. like yesterday- had a great day! today (at least this afternoon- the bad bowels always seem to happen in the afternoon, usually after lunch- this afternoon, awful!!) i really hope the colonoscopy...
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i understand that....but it is literally every day, no matter what i eat. some times when i go it decent and then the next time (could be in the same day) it's horrible! so it's either a new food intolerance or another issue/disease going on.
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trents- not sure....went to see my gi dr. on friday....gave him the list of all of my symptoms, i mentioned my gallbladder, he seemed to dismiss that. he wants to do an endoscopy/colonoscopy and then a lactose intollerance test. i don't have the typical gallbladder symptoms, the occasional pain/discomfort in various areas of my abdomen, and just the wacky...
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i have been gluten-free for almost 9 years....having bowel issues for a while now. can anyone out there tell me (sorry to be graphic) why one bm can be good and the next one (may only be 10 min. after the first) be completely different and disgusting?!! dr. has no idea. going for a colonoscopy and endoscopy in november. but this has been bothering me...
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ARCHIVED When Gluten Free Is Not Enough
willabec replied to ksymonds84's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
that's me! i have been gluten-free for 8 1/2 yrs. and for the past 1-2 years (could be longer i just don't remember) things seem to have gotten worse. had a stool sample, came back with a little more fat than usual. dr. thought a pancreatic insufficiency. took a supplement and it helped fora little while but then seemed to stop. i mentioned FM to him... -
Hi all- i have not been diagnosed with refractory sprue, but i am just curious who out there has it and who out there still has symptoms despite following a gluten free diet? for the past year or so, my "issue" seems to be the worst after lunch...somtimes going 2-3 times with varying consistencies (sorry). based upon my internet diagnosing, i may have colitis...
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my dr. is in glastonbury, bloomfield and a few other locations- affiliated with hartford hospital....his name is dr. theodore loewenthal....good luck! my mother also sees a dr. in that same practice, i believe his name is dr. slater.
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ARCHIVED Celiac Disease And Small Intestine Bacterial Overgrowth (Sibo)
willabec posted a topic in Related Issues & Disorders
just checking to see who out there has both, celiac disease and sibo and which one was diagnosed first?? thanks! -
ARCHIVED Anyone Have A "burning" Sensation In Their Upper Stomach Area?
willabec replied to willabec's topic in Related Issues & Disorders
no, not yet....the last time i was scoped was when i got the celiac diagnosis....(8 yrs. ago!) looking to schedule a colonoscopy and upper endo. soon though! hopefuly those will lead to some answers! -
ARCHIVED Anyone Have A "burning" Sensation In Their Upper Stomach Area?
willabec posted a topic in Related Issues & Disorders
i sometimes get a "burning" sensation (that is the only way i can describe the feeling) in the upper stomach area right between the ribs, sometimes a bit lower and sometimes a more "stabbing" pain in the lower left pelvic area? talk to my gi about it, but he can't seem to associate it with anything. any ideas?? -
Thanks.....if you could email it to me that would be great! not sure how to go about giving you my email address though!
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yes, it is...i am keeping a food diary but i cannot figure out what, if anything is affecting me...my dr. says not to bother, not sure why, but it makes me feel better doing it for some reason. i also would have no idea how long it would take for something to affect me once i ate it?? 1 day, 2 days, etc.??? that's what is bothersome!
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how did you find out you were sensative to too much fructose? i have celiac but now have loose stools/D (sometimes) and it has been going on like this for about a year or so.....maybe it is something else other than IBS-D??
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does anyone who has celiac also have IBS-D???just curious...thanks!
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ARCHIVED Ok....any Ideas On This One?
willabec replied to willabec's topic in Related Issues & Disorders
no...how is that done/tested? -
ARCHIVED Ok....any Ideas On This One?
willabec replied to willabec's topic in Related Issues & Disorders
i have done stool samples twice....one showed a little more fat than normal and that is it, the second came back normal...but i know something is going on. celiac panel blood work came back normal as well. will most likely have colonoscopy done and another endoscopy.....kind of nervous though!! -
Ok...i have posted a few times the last week....just one more question, any ideas as to why one time my bowel movements will be ok, or decent (not normal but what i consider ok seeing i have been having issues for a while) and then the same day, a few hours later, it can be loose and then i go again and then it's yellow and frothy? why so many different...
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well, i was diagnosed 8 years ago and on the gluten-free diet since then...i just don't know why the past 1-2 years "things" have gotten like this....it is making me nervous!
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i am.....