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Suprmom

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Everything posted by Suprmom

  1. Suprmom
    Summary of where I'm at is no diagnosis (neg. blood for celiac) but gluten free due to celiac like symptoms to wheat. The other night I ate off a salad bar. Big mistake I know. About an hour later get all the usual issues: bubbling stomach, burning sensation in GI tract, urge to use bathroom, etc. I also had some stabbing stomach pains which I rarely have...
  2. Suprmom
    Ravenwoodglass thanks for the reply. I have eaten off the gluten-free menu at PF Changs and Outback with no problems. However, what I have eaten has been a little more "whole foods" like rice and sweet potato and steak. Not as much extra flavorings. It doesn't seem to answer the gluten vs. fat/carb issue. Going back on a gluten diet is unrealistic since I...
  3. Suprmom
    I am posting here instead of the "pre" forum because I really do need some unhealthy food advice. I had my first appointment with GI doc who told me I have allergic colitis that is triggered from eating unhealthy foods high in bad fats and bad carbs. I should mention I live in a gluten free home due to DS's food allergies so the only time I eat gluten is...
  4. Suprmom
    Sorry, it's shorthand for cross-contamination.
  5. Suprmom
    He definately did not say ulcerative colitis. It doesn't sound anything like what he explained to me either. He said allergic colitis. I think he just wanted to give me an answer to get me out of his office. I had taken the dicyclomine once before I went to the GI doc and felt really loopy afterwards. The GI doc told me that what I was explaining was...
  6. Suprmom
    You could be reaction to gluten. Gluten is not added to most cheeses, it would be on the ingredients, however call the company and ask about x-cont. DS is gluten allergic so we call on everything. We have only found 2 brands of cheese that have no x-cont. and more importantly that DS does not hive out too: Tillamook (from Oregon) and Keil select (from Wisconsin...
  7. Suprmom
    I finally got into see the GI doc last week. He diagnosed me with Allergic Colitis. We have a gluten free home due to DS's FA's. He found that very hard to believe and even gave me a "friendly" lecture on how that was not the best idea for the family or our kid. Doctors just don't seem to get that he really is that sensitive! Anyways, he says the reason...
  8. Suprmom
    This is just a thought but maybe your digestive tract is just a little (or lot) off. Could be from celiac or something else. My story is kinda complicated but I've been thinking for the last few months I'm gluten intolerant but when I saw the GI doc he thinks I'm actually sensitive to the quality of food. We eat very low carb and healthy at home. The grains...
  9. Suprmom
    Sorry, but I think your doctors have given you really horrible advice. I have never heard of a dairy allergic person being told by a doctor that cooked dairy would be ok. SOME egg allergic can eat cooked eggs so maybe he was assuming it could apply to other FA's? Uneducated! I am not at all surprised that you react to that. And unless you had an In office...
  10. Suprmom
    I totally agree with Mother of Jibril. Similar story with my ds but he IS ALLERGIC to all gluten grains, possibly to gluten itself. Are you IG-E mediated allergic to wheat, diagnosed by either a blood test or a skin prick test? I will assume yes. You can see an allergist experienced with FA's to ask for a more complete testing. If it is only FA's and not...
  11. Suprmom
    So I decided to just post under here rather than explain my situation again. I have my first appointment with a GI doc this week. I am really nervous that he is going to dismiss me like my General practitioner did. What do I need to know? What tests should I ask for? What advice can you give me for explaining to the doc. Does anyone know of gluten intolerance...
  12. Suprmom
    I haven't done it yet but I think you could make your own curry powder. I think it is just a mix of spices. Good luck figuring it all out.
  13. Suprmom
    I did a search on here and had some conflicting findings. So here is where I feel confused, do Coke, Dr Pepper, and Pepsi say they are gluten free because they measure under a certain amount (200 ppm) or are they gluten free because there is no possibility of x-contamination? Recently I have gone 100% gluten-free after discovering that I struggle with wheat...
  14. Suprmom
    My understanding of McCormicks allergy stance is that they can guarantee all spices are safe from x-contamination except mixes. I originally took this to mean their pre packaged "taco seasoning" spices but I think it refers to others too. DS has many IGE food allergies that include but are not limited too all the glutens. He has had no problems with any of...
  15. Suprmom

    ARCHIVED Chili's

    Suprmom replied to estelita's topic in Gluten-Free Restaurants

    We eat there all the time. DS has multiple food allergies and one of the managers is really good about taking care of us. He cooks DS's food on aluminum foil and keeps everything separate. When he's not there we have a harder time. I often send food back and we have had a scary reaction once but I think it was our fault and not the restaurants. My only real...
  16. Suprmom
    I'm sure there are some exceptions but allergists as a whole want to diagnos and send you on your way. They really don't understand the day to day living with it. I hope things go well with your dietician. Our dietician was not very helpful as far as offering what she considered "medical advice" (My littlest is under weight and without a doctors express...
  17. Suprmom
    I am so sorry for what you are going through. I can relate although not personally. My DS has multiple food allergies: wheat, barley, rye, oats, sesame, peanut, and egg, he has outgrown a few. He has enviromental allergies too. Let me start by telling you it gets easier as you go. I read up on some of your past posts and I would guess you don't have the traditional...
  18. Suprmom
    I need advice about what to do now. History...I have always had some issues that include constipation, brain fog, depression, constant fatigue, occasional diarrhea, sometimes getting "food poisoning" when no one else would, piercing stomach pains, gas, but mostly always feeling sick for no reason. When I was a teenager I saw a doctor who told me it was...
  19. Suprmom
    Thanks for the feedback. I think I have now accepted that I have at least a sensitivity to wheat. GFinDC what you said about pizza definately rings a bell. A while back when DH and I still snuck wheat into the house I couldn't understand why pizza tore me up so much but Mac'n'cheese (with rice noodles) wouldn't. DUH! Update and rant. So my first appointment...
  20. Suprmom
    It's been a long time since I've been on this board and before I was on here for my sons sake. He has Multiple food allergies and there has been some discussions of celiac disease but it really doesn't matter because he has "true" food allergy to all the gluten grains and a few other foods. The only way that we can prevent him from having reactions is to...
  21. Suprmom
    Just found this site and already it's so helpful. My son is 2 and might have celiacs and does have "true" food allergies: wheat, barley, eggs, sesame, fish, and peanuts. He has outgrown a few and there are a few that we suspect. Anyways he has the classic symptoms of food allergies to all of these. Wheat and barley is a little different in that he also has...
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