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RockHammer

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  • Gender
    Male
  • Interests
    Environment, a geologist (disability retired). Music
  • Location
    Tallahassee Florida

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  1. I think a better suggestion would be to do a true elimination diet. Meaning cutting out all the most likely culprits at the same time, and then, after at least a week, trying them one at a time, a few days apart.

    Because otherwise, if it is more than one item, it will be much more difficult to figure it out.

    I would have never been able to figure out all my intolerances if I would have taken them out of my diet one at a time!

    I agree with Ursa Major. I was diagnosed at the age of 56. By that time I had been misdiagnosed and untreated for so long, the damage to the GI was major. Two week will not do the job. At a year totally Glluton Free, I am making progress, but still have a long way to go before I can think even about going back to work, or finding a new job. I was fired with celiac disease by the State of Florida last year.

    Believe me, it is a long process.

    RH

  2. Anouncing an orginizational meeting for a Celiac Support Group for the Tallahassee "Area. Next Saturday April 26, 2008 at 2 PM at the office of Dr John Ness 616 Universal Dr, Tallahassee FL.

    From downtown Tallahassee go north on Monroe St. Turn Left on Universal Drive (at chik-fl-a). On Right Side at end of street. for info email jswartz.pg@gmail.com.

    SEE YOU THERE

    RH :D

    The next meeting of the still un-named Celiac Support Group serving Tallytown and Enviirons will meet Tuesday May 20 2008 again at the office of Dr John Ness. I hope to see you there.

    To join or for info please contact Rockhammer, or email at jswartz.pg@gmail.com.

    RH

  3. I recently had to quit my job due to ingesting gluten everyday and making me sick. I was wondering if there are any jobs with celiac awareness and advocacy that anybody knows off. Please any information would be helpful. Thanks!

    Don't Let anyone tell you work is no problem. I worked hard for almost 25 years for the Great state of Florida with significant Celiac related problems (migraine headaches, GI problems, Peritonitus, heart attacks, asthma, diabetes, the whole list..). Yet I had a very distinguished and successful career with many accomplishments to my name. I was fired a year ago by an abusive supervisor. He did not believe in sick leave, ADA accomodations, FLMA, and worked at making things worse. Today I am trying to survive on disability retirement. We are not makin' it.

    FYI Disability Insurance, (or at least the policy offered by Alta Insurance through the State) is worthless. They have a 3 teer scheem to avoid paying any claims. Social Security is helpful only if you can make it on your own until you get through all the red tape. Still waiting on that after a year. If you have a job, try to keep it.

    Working and keeping a job is an issue. A Big one.

    Best Wishes

    Rock Hammer

  4. thats awesome!! im most definitely interested, and can do anything to help out with it. i actually was just talking to my Intro. to Dietetics teacher in class last friday about whether or not she had any patients with Celiac and getting a group started. Let me know if you need any help!

    Anouncing an orginizational meeting for a Celiac Support Group for the Tallahassee "Area. Next Saturday April 26, 2008 at 2 PM at the office of Dr John Ness 616 Universal Dr, Tallahassee FL.

    From downtown Tallahassee go north on Monroe St. Turn Left on Universal Drive (at chik-fl-a). On Right Side at end of street. for info email jswartz.pg@gmail.com.

    SEE YOU THERE

    RH

  5. Anouncing an orginizational meeting for a Celiac Support Group for the Tallahassee "Area. Next Saturday April 26, 2008 at 2 PM at the office of Dr John Ness 616 Universal Dr, Tallahassee FL.

    From downtown Tallahassee go north on Monroe St. Turn Left on Universal Drive (at chik-fl-a). On Right Side at end of street. for info email jswartz.pg@gmail.com.

    SEE YOU THERE

    RH :D

  6. I have spoken to Dr John Ness in Tallahassee about starting a support group in Tallahassee. He has offered the use of his waiting room on an evening or weekend. Anyone interested in joining in, give me an email here, or at jswartz.pg@gmail.com. We need a support group in this town.

    Also, anyone in the Tallahassee area, Dr Ness is not a specialist. He is the Best, however.

    RockHammer

  7. It's hard to be sure when you've just gone gluten free to know what to blame certain things on. It probably is best for you to eliminate dairy for about a month, then try again and see if you get that same pain. A lot of people are lactose intolerant for a time while healing.

    After years of abuse, your whole GI may be very unhappy. You might need to also eliminate anything hard to digest, like milk, corn, most uncooked fruits and veggies, and a long list of other things. Check in the book "The Gluten Free Bible. Against the Grain". It has a great deal of info on managing your gluten-free diet effort. The book by Green "Celiac Dx, the Hidden epedimic" (these titles may not be exact.) also might give you a lot of guidence.

    After a few months, if you are still having problems, more extra measures may be necessary. This was the situation I had. After 6 months of a very strict gluten free diet, I was still having major problems. In my case, a part of the problem was the Prilosec I had been put on years ago for GERD. Try reading Green's chapter about when early measures fail. Six months later, a year after diagnosis, I am now starting to make some progress.

    I had typical symptoms of celiac all my memorable life. Now at the age of 56, it will take years of healing before I will be back on my feet. [i was fired by the great state of Florida after nearly 25 year of distinguished service. That was just over a year ago.] My case was missed by some of the largest medical facilities in the Southeast, Univ of Alabama Birmingham, Univ of Miami, Univ of Florida Shands, Mayo Clinic Jacksonville, among others. Misdiagnosis ran from Migraine headache, GERD or acid reflux, Irratable bowel, Hepatitus, even pheochrocytoma. I am the poster child of what can happen with undiagnosed Celiac goes untreated.

    One more bit of advice. When you go to the store, take a magnifying glass in addition to your Gluten free bible or lists of what to look out for, you know; on the list of ingredients.

    I don't know how long your case was misdiagnosed. Whatever the case, we both have a long road ahead. Good luck. Let me know how you do.

    Rock Hammer

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