sazzie

I have just recently realised the link between celiacs and hyperthyroidism.

My Mother, Nanna and great grandma have all had their thyroids removed because of this.

Now i am wondering I am pretty much certain i have celiacs disease (to be confirmed next week) however if i do go gluen free now is it still possible to get hyperthyroidism later on in life?

Just really wanting to know if anyone out there has been diagnosed with celiacs and still been diagnosed with hyperthyroidism later on in lafe after being gluten free?

I have been told by my doctor to expect to get it, however being the first one in my family to be diagnosed with celiacs and reading the links between the two just wondering if it might be possible that i may not get it?

thanks for your input.

Lisa

  rinne said:

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It appears to me that you do have Celiac although I understand that damage to the villi may be caused by other things.

Did I understand you correctly to say that you have had blood tests every week for 8 -9 months showing positive for Celiac?

And hello and welcome.

Hi,

Sorry i should have clarified it abit better.

I have had 2 seperate blood tests over the past 9 months.

First one was the EMA (weak) and TTG (5 when anything >5 was weakly positive) 9 months ago

Then i have had another one recently that came back for ttg 39 when anything over 20 was weakly positive or positive cannot remember which one and the EMA for that was positive as well.

So after reading through this forum i have realised pretty much that i do have it even without having the biopsy but the doc wanted to do it.

IEL population - I'm assuming that this is what is slightly elevated in my report?

Thank you for the welcome too!

Lisa

Well i managed to sneak a copy of my results off my GP before i see my specialist next week so here are my results:

  Quote

1. Duodenal Biopsy (2 fragments)

There are fragments of small bowel mucosa showing a mild variable villous abnormality with some shortening and blunting of villi. Some villi are within normal limits. The epithelium is well preserved with and intact brush border, however, there is a mild increase in the number of intraepithelial lymphocytes.

The lamina propia contains a mild increase in the number of chronic inflammatory cells.

The features are those of a mild variable villous abnormality associated with an intraepthelial lymphocytosis. The features are not specific, but are consistent with celiac disease, in particular, partially treated celiac disease. Correlation with the clinical features and results of serological investigations is recommended.

2. Colonic Biopsy (3 fragments)

Within the lamina propia there is a chronic inflammatory cell infiltrate within normal limits.

Diagnosis:

1: Mild variable villous abnormality associated with an intraepithelial lymphocytosis (see above)

2: Large bowel mucosa within normal limits.

I have had weakly positive blood tests for the past 8 - 9 months so I am pretty much certain that i am going to be diagnosed with celiacs and i understand the villi bits but the rest i have no idea, can anyone please enlighten me?

Thanks

Lisa

Even though they only took 1 biopsy? which i must say i thought they would have taken 3 or 4 but anyway my question is if it is still possible to have a positive biopsy if i looked okay?

I just cannot understand after having the positive (although weak) blood work and now having had gastroscopy which when i came round they said i looked perfectly healthy in there as well i tend to think that i have been taken on a wild goose chase for the past 10 months.

Anyway sorry for the rant just curious.

I dont go back to see him until Tuesday week, is there anyway i can get a copy of the biopsy report before i go and see him or do i have to wait for my appointment?

Thanks

Lisa

I was exactly the same

Even more so when i was waiting at the hospital and after waiting for 3 hours i told them i was going home, as i didnt want to wait anymore. (me bawling my eyes out too)

Well it turns out because i was the youngest (i am 23) i was the last person on the list!

So the lovely nurse pulled a few strings and 10 minutes later i was on my way up there.

They put in the I.V and 20 seconds later i started laughing and told them all that he had given me somthing but it was okay because i liked it.

I do remember being asked to roll on my side, other than that the next thing i was being wheeled out of recovery. Apparently the doc had tried to talk to me afterwards in recovery but i was out of it.

I was surprised as i never had a sore throat or a sore rear end, it did make me wonder if anything had actually been done as i never actually saw the doctor myself and i was not sore at all.

In actual fact the prepping for the colonoscopy was alot worse than the procedure

Also i agree with the going back on gluten now as well. Good luck!

Thank you for all your replies, they are appreciated.

I went and saw my specialist today, he has confirmed that the blood tests were positive for celiacs and has managed to book me in for the biopsy on the 23rd of December bit close to christmas but i dont care would rather get this over and done with.

In regards to the waiting times over here in australia we have both private and public health system. Private is optional and abit expensive however if you need an op or anything it is done right away.

Public is free however the wait times for an op or anything is anywhere between a couple of weeks to a couple of years depending on the urgency.

I have already been on the waiting list for over 6 months.

I am starting to worry as i was discussing the results with him today and he basically said that the ttg test is specific to celiacs, and i am have a very high chance of having it based on results, that was okay, then i asked him what happens if the biopsy was negative and he said then i dont have it.

then i said that i thought sometimes the damage can be patchy, he assured me that if he couldnt find anything then i dont have it.

Now i know that is wrong (thanks to everyone who writes on these boards) but i am worried the biopsy is going to come back negative and all of this will have been for nothing.

Oh another thing anything under 20 was negative for the ttg and up to 40 was weak positive and over 40 was definetly positive and considering mine was 39 he said that he would take that as a positive anyway. So mine was a pretty low number considering but just wondering do these numbers reflect the amount of damage that has been done?

I have a feeling it has only just come on this year but i am also worried that with such low numbers nothing is going to show up anyway.

I guess i will just see what the biopsy says on the 23rd, no doubt i will be back to ask some more questions then!

Abit of a long story but anyway it started 6 months ago with a blood test showing low ferratin levels, i was then tested for celiacs by way of a TTG and EMA blood test both of which came back weakly positive (ttg anything <5 was negative mine was 5 and the ema was weak)

The specialist i was referred to said that he didnt think i had it because i had no symptoms and basically they had just stuffed up the tests.

I have been on a waiting list since then to have the biopsys taken, however i went back and saw the same doctor recently as i have been having some bowel issues including intermittent diarrhea and some abdo cramping.

He said it was more likely sounding like chrohns disease or IBS, but sent me off for more blood tests anyway.

I saw my local doctor last week and she said it came back positive for the ttg i glanced at my paperwork and all i saw was transglutamine >20 and my results in bold 39(H) next to it, i see the specialist again in a couple of days so i will get the other full results then as he did a full celiac panel, however just wondering if there can be any other causes to positive ttg levels other than celiacs or am i looking at most probably celiacs?

reason being is that i am looking at another 6 -7 month wait for the biopsy and if i am definetly positive for it i dont think i want to wait another 6-7 months of damaging my body when i could start fixing it now?

Any thoughts?

Hi,

Sorry for more questions but now i am more confused than before!

I had a blood test and my ferratin (?) level was quite low (20-120 being normal mine was 10)

I tested weakly positive on my blood test for celiacs:

EMA was weak

ttg level was 5 with anything <5 being neg.

I went and saw the specialist today and he basically told me that there was only a very very small chance that i had celiac, and seemed more concerned about the fact that i had low iron than the results of the above tests.

He commented that it was probably from being pregnant that my iron stores were still low questioned me about how much meat i ate, did i take iron tablets ect... he said that my low iron could have skewed things up. however i didnt think iron had anything to do with the blood tests?

So would my low iron levels cause the above tests to be wrong?

I have no symptoms at all and according to the local hospital i am looking at at least a 10month wait for the biopsy, however if the above test can be wrong i really dont want to do a biopsy.

If the above levels are that low would anything even show up on a biopsy anyway?

if my biopsy is negative why would i have a weak ema test? As from what i have read there is basically no way that test can be wrong?

what do you think?

Thank you for your replys,

Lisa

Hi,

I am new to this but was hopping someone could please help me out with my results:

Endomisial A : WEAK (EMA??)

transglutaminase : 5 units

Down the bottom it says that transglutaminase <5 units is neg, 5-8 is weak positive.

Are these two different tests or the one?

What sort of possiblility am i looking at that i do have celiacs?

Any advice is appreciated.

Lisa