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linda7276

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by linda7276

  1. linda7276
    Thank you for this very important information on low Vitamin D. My mother is on Aciphex and complains about her arthritis all the time. I am sure she is gluten sensitive, she even thinks so, but says she's too old to change all of those things....grrrrr... I am going to pass this on to her...
  2. linda7276
    Hi Nora, I was just reading Dr Scot Leweys article too, so the timing of this post is wow!! I was looking into the Kimball labs too, so kind of nice to know about a false negative, if I'm understanding you correctly. I just got off the phone with the nurse at Entero Lab, I wanted to talk about my genes, and ask about the Alpha gene and why they don...
  3. linda7276
    Thank you Rachel I meant everything I said!! I am (as I'm sure so very many are), grateful for all that you do, and share with us...and I'm glad I found this board too..it is really good to talk to others who know how you feel. For so many years, I didn't have that, so I'm delighted to meet you and Fedora, Ursa Major sent me some very good links, and all...
  4. linda7276
    Thanks Fedora, I really appreciate your help and that link. I copied and pasted your email too...I'll go to the link and read v e r y s l o w l y . Because I can be so dense when it comes to that kind of stuff. And yes it would be nice if Entero Lab included the alpha genes, I wonder why they don't. I'm supposed to have a phone consult with his nurse...
  5. linda7276
    I guess my documentation is all right here on this board...well, mostly in the pages of the OMG thread. I posted everything as I learned it...as well as all of my experiences, doctor appts, treatments, etc. So if I forget something its all there.....I just have to find it in a search. Rachel...the information you've compiled is very impressive!! I...
  6. linda7276
    Hello Fedora, and thank you so much. I'm glad your kids are doing well. We can all certainly relate to how difficult it can be to stay away from Gluten. I find it incredible that wheat is such a toxic grain to so many, and I'm glad to finally know, that it played a big part in my symptoms. Now I'm reading all that I can about Lectins. And will be anxious...
  7. linda7276
    My count is not as high as it should be....but it is still good. I treated Lyme for awhile with natural treatments....not antibiotics. Can you share with me some of the natural treatments? I ordered several books yesterday from Amazon, about leaky gut, and probiotics. I also ordered some probiotics. One other thing I've been meaning to mentioning is...
  8. linda7276
    This information is amazing and incredible Rachel, I hope you are keeping good documentation of it all, though you seem to have great recall. One day hopefully you'll have the answers and will be able to write a book!! Though no one will ever be able to really appreciate the research you've put into this. I am amazed at the depth of your research!! My...
  9. linda7276
    In my experience most people who have leaky gut also have gut infections. Those infections have much to do with the ongoing inflammation and the endless cycle of food intolerance. It is important to remove the most offending foods to reduce inflammation.....but if you leave the infections (or the problems which are allowing infections to occur)....the healing...
  10. linda7276
    In my opinion anyone presenting with these symptoms should be evaluated for Lyme (by a specialist). Alot of these conditions should not be diagnosed without first ruling out Lyme. Many people who have been initially diagnosed with RA, Fibro, MS, Parkinson's, Lupus, CFS...and a long list of other conditions were actually later found out to have Lyme. Proper...
  11. linda7276
    Before making any diet changes I had actually gained weight...but it was obvious to me that the weight was not "solid". It felt like I had "puffed up" but it was mostly due to inflammation and fluid. I could feel it all over my body. I could weigh myself at night and in the morning as much as 8 lbs. would have disappeared while I slept. Yes, I put on weight...
  12. linda7276
    Thanks Rachel, For example one might recognize a problem with the grains and other lectin foods and come to the conclusion that lectins are a problem. However, those same foods are also high in oxalates??? So it can beceome very confusing when trying to pinpoint the real problem. Yes I understand completely, you can second guess things like crazy,...
  13. linda7276
    Open Original Shared Link They claim their products are free of all food allergens. There is some other good information on the site about testing for food allergy's. The Elisa blood test sounds like the best way to go, again, this might be old information for most of you...but I wanted to share in case someone is interested! It's new for me. He even...
  14. linda7276
    All of these health problems in our society are so tragic, and clearly, there has to be a link between the foods we eat and the diseases we get. But the scale of it is so enormous, and we know....even now, so little. Makes the phrase..."listen to your body" seem like an understatement!!! Did you notice big differences when you stopped dairy? I thought...
  15. linda7276
    Fedora...not more than I asked for, I am very hungry for this knowledge right now, thank you again...very much appreciated. I do think Entero Lab should have explained that better, but I am thankful period. I saved your notes to a file, and I'm sure it's going to help sort out some of the confusion for others too. I've learned so much reading on these...
  16. linda7276
    PS....he implies that removing these foods can stop the disease, so nothing to lose here...yes?
  17. linda7276
    Tracy, Have you seen this presentation. With a family history of MS you might want to eliminate all Lectins according to this guy. Also if I am interpreting this correctly, according to slide number 34 you do have one of the genetic genes, though I am NO expert at this, as I have been misunderstanding mine all along. I am stopping all Lectins along with...
  18. linda7276
    Fedora, thank you, Geez, talk about confused. Read below I think it's the standard paragraph in the results, and please tell me what it means when it says that I have two copies of a gene that predisposes to gluten sensitivity. Interpretation Of HLA-DQ Testing: Although you do not possess the main HLA-DQB1 genes predisposing to celiac sprue (HLA-DQB...
  19. linda7276
    LOL...about the long winded , thanks!! Sorry about the lost post hate it when that happens, I'll be checking back in the morning, have a great night...
  20. linda7276
    Dear Rachel, I respect your knowledge, I spent the entire day reading yesterday...and it's obvious you've done a great deal of research, to which I personally say thank you, because I am benefitting from it. Here are a couple of links, that I am sure you've seen because I believe they came from this board, though yesterday, I had a gazillion pages open...
  21. linda7276
    On the other hand I am seeing evidence that those with DQ1 seem to become gluten intolerant as a result of other underlying issues. I'm also seeing that those with DQ1 have many food intolerances which is the most common symptom associated with leaky gut. I'm also seeing that those with DQ1 dont recover after removing gluten alone. Can I ask where you...
  22. linda7276
    Hi again Tracy, have you tried eating chicken soup. I have been eating that a lot since my test results, and I feel great. I read a book called Nourishing Traditions by Sally Fallon and Mary Enig, about how healing bone broths are for the sick, I see that your only symptom is hair loss, but who knows what kind of silent damage is going on inside the body...
  23. linda7276
    Nora I used Entero Lab and they have you send in your specimen via UPS. It comes with all of the instructions and is sent overnight....hope that helps you. Linda
  24. linda7276
    Hi Tracy, Please see my test results at the bottom. I am double DQB1 and have been sick for 40 years. I also had/have (because she is still my sister) a sister who died in her young 40's, 5 years ago from MS. I have struggled with weakness, fatigue, tremors, hair loss, and a multitude of other symptoms for years. My sister was 2 years younger than me...
  25. linda7276
    I am new here too, and I can't say that I know how to help, but I think you took the first step in helping yourself and that is admitting that you have a problem. Probably a big step too, one thing that came to mind when I read your words, was self esteem, we often beat ourselves up with thoughts of low self esteem and eating to beat yourself up could be...
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