Jump to content

ANDOBEAR

Advanced Members
 View Profile  See their activity

  • Posts

    40

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ANDOBEAR

  1. ANDOBEAR
    Its not so much that I want a "Celiac" diagnosis. I just want someone to say "Oh yes, this is the problem. Now do this." Instead I'm getting a lot of "It may be this. We don't know, but you could try this." I just don't want to go on this diet and then in 3 months when/if I'm still suffering hear "Oh well we could start testing for this or that." I work in...
  2. ANDOBEAR
    Oh ok. I suppose I should have included them myself. So thank you Nora, if you were trying to make it easier for people to get the big picture. I'm just cranky, frustrated, fatigued and done with being sick without an explanation.
  3. ANDOBEAR
    I'm sorry was my post too long?, am I posting too much? I thought I could come here for questions and advice while I am going through this roller coaster of getting a diagnosis. Sorry if I'm invading the board.
  4. ANDOBEAR
    So I saw a specialist last Friday. He was not satisfied with the test performed by my regular GI since at that time we weren't really looking for Celiac. So another round of tests. He wants me to load up on gluten until next week when he will repeat the endoscopy (using the longer scope and taking many, many biopsies), repeat the blood test (through his lab...
  5. ANDOBEAR
    The rash I get looks nothing like the pictures of DH I see online. Its more like a cross between hives and eczema. It has been diagnosed as eczema by my old PCP. I will ask the specialist if he feels its worthy of a biopsy.
  6. ANDOBEAR
    I'm interested to see what the GI specialist says. If he suggests going gluten free, I will. I want to get to the root of the problem.
  7. ANDOBEAR
    Ok so here are the results Serological markers for celiac are NOT detected. AGA IgG 0.6U/ml reference <10.0 U/ml AGA IgA 0.5 U/ml reference <5.0 U/ml TTG IgA 0.1 U/ml reference <4.0 U/ml EMA IgA negative reference negative Total IgA 117 mg/dl reference 44-441 mg/dl Alleles Detected...
  8. ANDOBEAR
    Yes, I suppose you are right. The reason I want a firm diagnosis is because I am having gastric bypass surgery done at the end on july. I want to be sure I am treating the right problems. I think I will give the diet a shot if nopthing else pops up as a possibility.
  9. ANDOBEAR
    27yo female with a family history of celiac in aunt and grandmother (on same side of family). I have had chronic diarrhea and general GI troubles like bloating, pain, reflux, constant belching, my whole life. I was diagnosed as bein lactose intolerant as an infant so I always associated my issues with lactose. Since my youngest son was born 18 months ago...
  10. ANDOBEAR
    The boys labs were done at the Mayo clinic.
  11. ANDOBEAR
    Yeah, I wish the kids doctor would have ordered the test through Prometheus. I am anxious for my results. I had the blood drawn on the 3rd but as I understand it the blood has to get to cali (from Boston), be processed in , and then tested so it can take some time. Is the biopsy I had enough to serve as a diagnosis if if the blood is negative? What are the...
  12. ANDOBEAR
    Ok thanks a bunch!
  13. ANDOBEAR
    Thanks for the information. I should be getting my lab results from prometheus soon... This will include the whole pannel including genetics. I would be surprised if they aren't positive since my biopsy seems to be positive and I have several symptoms including extreme iron and vitamin defficiencies. So if you think 3.0 U is borderline what would a positive...
  14. ANDOBEAR
    I guess that would help huh?.........I'll edit
  15. ANDOBEAR
    I just picked up the lab reports for my two sons. I have no idea what to make of them. Any help would be appreciated! My oldest son..... 7years old IgA 57 range is 33-258 mg/dL Tissue Trans. 3.0 range is 0.0-30.0 U The baby..... 17 mos. IgA 16 (which was flagged as being low) range is 22-178 mg/dL Tissue Trans. 2.6 range is 0.0-30...
  16. ANDOBEAR
    The diagnoses portion just states GASTRITIS, HIATAL HERNIA I guess its not in the diagnose section because the report stes clinical correlation is reccommended. I should also mention this gastroscopy was NOT done to diagnose Celiac. I was being tested for Reflux. We are only exploring the possibility of celiac after the biopsy results. Looking at it now...
  17. ANDOBEAR
    I had a biopsy done and the nurse practitioner at my gastrointerologist suspects celiac based on my symptoms and the results. She did order the blood test just for correlation. The results of the blood tests are not in yet but this is what the biopsy report says 1. DUODENAL BIOPSY - DUODENAL MUCOSA WITH FOCALLY INCREASED INTRAEPITHELIAL LYMPHOCYTES...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.