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ek327

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    Minnesota

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I was diagnosed with DH about 4 1/2 years ago, and have been mostly gluten free since. I paid the price for the "almost". My 7 year old daughter was just diagnosed with celiac less than a month ago. (positive antibodies and mild changes on endoscopy). We now are "totally" gluten free and slowly adjusting. My husband is probably having the hardest time of all.

  1. alot of great ideas! We are entering our 2nd year of school with celiac disease. DD is 8. She usually takes lunch meat and cheese rolled up together. often will take pretzels or chips of some sort (she loves TINGS). she often takes carrots and ranch (wishbone). string cheese and yogurt are good. she recently has begun eating cottage cheese as well...
  2. Make the "whole foods" run in Columbus, it will be worth it!!!. They have their own dedicated gluten free bakehouse, and many of their items will be in the freezer. Almond Scones are especially yummy. Cookbook: Carol Fenster's "1000 Gluten Free recipes".
  3. I have a couple of suggestions in the Twin Cities. Dr. Karen Krenik is an internal medicine specialist in Edina--not sure of the group. She is very aware of the celiac disease. I work at Allina Clinic in Champlin--I am an Nurse Practitioner in family practice, and have DH (gluten free x 6.5 years), my daughter has celiac (8 yo--diagnosed one year ago...
  4. OH--and Gluten free pantry's truffle brownie mix, Pamela's chocolate cake mix...
  5. My daughter just turned 8, and was diagnosed last June. It does get easier. Last summer, we had a crisis at the grocery store--she cried over the donuts. We made donuts at home the next day!! It is trial and error, but things get easier. I would recommend the book "No more Cupcakes and Tummyaches" by Jax Peters Lowel--a great story for kids with...
  6. Remember that 5 % of kids are at the 5th percentile. Some kids are small. Has she always been at the 5th percentile, or has she lost ground in growth? What size are you and her father? Sometimes, small kids are just small kids. Also, she should be off the bottle by now. I would try switching her to a cup, and not giving it between meals. the extra...
  7. alopecia can be autoimmune--as we all know, if you have one autoimmune, you may have another. (ie. celiac, type 1 Diabetes, rheumatoid arthritis, lupus, etc). I have a small area noted in the past couple of months of alopecia. I also know someone recently diagnosed with celiac disease who has had alopecia since childhood. can definately be related. Interestingly...
  8. try the Pamela's pancake and baking mix chocolate chip cookes. if the batter is a little gooey, add more flour mix. if they are really gooey and spread out, you usually need more flour.
  9. I have a 2nd grader who is doing great in school. She was diagnosed this summer (June) by biopsy after positive antibodies in the spring (late april). At the beginning of the school year, I took in a handout for teachers on celiac disease. I worked with the administration of the school to allow Emma to bring her own snacks (the school has a pre-set list...
  10. It is also great for chicken wings --or chicken. I mix olive oil and garlic--finely minced, throw in some mesquite flour for a wet rub--put it on the chicken and bake. Yummy. also great addition to pancakes or ch. chip cookes.
  11. We made a phenomenal chicken last night. we used cornstarch--with lots of kosher salt and fresh ground pepper, then an egg-wash, then "breadcrumbs". I use either ener-g crackers or craklebread for the bread crubs--last night, it was a combination of both. We did fry it in a combination of olive oil and butter--can also use bacon drippings. crispy, and...
  12. Thank you sbj for adding some objectivity, and common sense.
  13. My daughter, 7, had the biopsy this summer after a very mild positive ttg and endomysial antibody. With my history of DH, I knew with the positive antibodies, that she had celiac. I opted to have the endoscopy done for definative diagnosis. Until antibodies alone are accepted as diagnostic, getting the actual diagnosis the standard way is a good idea....
  14. A knowledgeable dietician should not only be able to help you with what you can and can't eat, but what you should eat--to help with the history of malabsorption, and to find sources of micronutrients found in wheat, but not in rice, potato, tapioca starches/flours. There is much more to eating right for a person with celiac than to "not eat gluten".
  15. My daughter will be eight next month. she was diagnosed this summer. her favorite breakfasts: cooqi bread/toast "Ellie's Bread" with Nutella. post cocoa pebbles glutino english muffins with poached egg and cheese sausage or bacon sometimes freezer waffles pamela's are favorite pancakes for sure yogurt and fruit. soft polenta (corn grits) with...
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