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Kurzemiete

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Everything posted by Kurzemiete

  1. Kurzemiete
    Dear Cyclinglady , I would like to run this by you one more time so I know which tests to request of the Doctor. My daughter is going in a few days. Do I request all of the tets you mentioned, or should I leave out the last one? *-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests* Thank you so much.
  2. Kurzemiete
    Thank you very much for the links, and your help cyclinglady. It is greatly appreciated. Now it is to see what happens once the test results are back. And, I am so concerned of the reactions to her glutening herself . I wish you a happy Summer and happy trails ! L.
  3. Kurzemiete
    OK sorry , one more question here: To have a Gluten test done properly, my daughter must be on it at least how many weeks? I am confused because, I get anywhere from 3-12 weeks, depending on what source I go to. Thank you again.
  4. Kurzemiete
    I really appreciate that cyclinglady (my bike is many times my salvation Thanks very much. AI stuff is a real ..ummm " " ...you know? Not very nice at all. Happy Summer and, thank you for the tip re NVSMOM L.
  5. Kurzemiete
    Can you please tell me which Celiac tests are mandatory, besides the dreaded biopsy? According to this book the doctor suggest these ones as well : 1-Cyrex array 3 2- Cyrex array 4 (he sites this as optional) I know that the standard blood test run by my GP will be very limiting. So, I probably need a referral to a hospital in order to get the...
  6. Kurzemiete
    Thank you so much everyone for your advice and links. This is frustrating and so much learning to do. I have the books out, BRAIN GRAIN and also WHEAT BELLY TOTAL HEALTH. According to the first book (the second book I haven't gotten far) , all grains ad even carbs (obviously sugars, processed food and additives etc) are harmful, even to non...
  7. Kurzemiete
    That's great! I am happy for you that you are making it work My daughter and I have candida and so we have to eat Paleo style as well as gluten-free (or mostly gluten-free) diet, combined. It does get tricky (and the kind of meat we can afford is limited) to merge the two, when on a fixed income. Thanks for sharing.
  8. Kurzemiete
    * I mean to say a site that talks about the differences between gluten allergy and celiac disease*
  9. Kurzemiete
    Thank you for your reply, it is much appreciated . It corroborates some of what I know or suspect. Yes, we have visited an allergist who performed the skin prick, and it was a waste of time, and I realized how little they know about these issues. Her reactions happen within minutes to hour(s), and goes for day or days, it seems to vary. ...
  10. Kurzemiete
    Oh gosh yes! I remember as a child I has frequent nose bleeds, also stress seemed to exacerbate them. I had headaches since age 11(still have mild ones every day, tinnutis since 13 and quasi fibro pain since age 13 as well.
  11. Kurzemiete
    Hello fellow parents. I have not been here in a while. My daughter has lactose intolerance as well as gluten allergy and / or gluten sensitivity and very possibly celiac disease. She drinks almond milk. We try very hard to not eat glutened food because she has the horrific stomach aches , vomiting, diarrhea. After such episodes she is grey in pallor...
  12. Kurzemiete
    Alrighty then ...Would you consider the hand bake method easier then, or the machiene method? Thank you ps i know the sell some machienes with the gluten-free settings in them but they are all quite expensive; this one I recieved from freecycle.com
  13. Kurzemiete
    By prep work do you mean to premix all the stuff by hand initially? Sorry but I am a total newbie with regards to this ... Thank you I am also very interested in various flours, I have some recipes to make rye like breads and fancy sweet breads. If I can nail that down the road it would be such a thing of beauty lol! ~All of a sudden...
  14. Kurzemiete
    I am very eager to bake with this machine some gluten-free breads so finally we can have a sandwich in our house !! However the provided recipes have me stumped as they are ALL designed for gluten baking. I have various gluten-free flours bought, also xanthan gum etc, so i am fairly ready to bake I know as a last resort i can just hand bake...
  15. Kurzemiete
    Hi everyone. Both my daughter and I have tested negatve for celiac on the blood panel however I am as sure as is possible that we have it (perhpas in very mind form) or more likely, gluten sensitivity. There is a long history for me with neuro symptoms, i have firbro and epbsein barr, lyme came back indefinite 2x. On now to my daughter, and I am sorry...
  16. Kurzemiete
    Ok thank you for your reply, I appreciate that. This was her test result - 1)Anti-Tissue Transglutaminase IgA antibody by ELISA = 0 U/mL. 2)Anti-Tissue Transglutaminase IgG antibody by ELISA = 2 U/mL. Oh wow, when you said Schtzophrenia it really was a very troublesome thing to read for a mom. Of course, this is not the first time...
  17. Kurzemiete
    Hi and thank you every so much for your reply and the time it took! I appreciate that a lot I apologize that my reply is very short, am fibro tired and new puppy is pretty demanding too Warmly, L.
  18. Kurzemiete
    I forgot to mention that I am on government disablity, a sole supprt parent .I live in Canada. And now again the government has revampted the dietary requirement for eligible medical issues. Naturally, they have shaved off many previous conditions, so its challenging to be able to eat properly on this budget. I would love to have some arguments to present...
  19. Kurzemiete
    [/size) Hi everyone. My soon to be 15 yo daughter and I have wheat issues for sure, probably milk issues too. She has had extreme stomach aches for years, sweats and agonizing pain. For a few years now, she has had auditory hallucinations, she hears breathing at all hours of day and in all places in our home. As far as I know, she only hears these sounds...
  20. Kurzemiete
    I am so glad you like it I too seem to do better when eat proten ~ unprocessed good, fats,eggs etc and low glycemic veggies. All the best to you.
  21. Kurzemiete
    Thank you ! When i put the link up it looked 'funny' like yours does , well i am not such a pro when it comes to links and how they appear abbreveated , so i truncated it. I am glad you got it up in proper form I love your quote very much about courage it's important to remember that, sometimes all it takes is for us to keep coming back. I...
  22. Kurzemiete
    You're welcome I really like your quote .."then just eat meat".! I am finding myself in a similar place in my life, only meats and fats seem to keep my stable and so on.
  23. Kurzemiete
    I am very glad that it was of use, and here is the website : www.drkaslow.com/html/gluten-brain_connection_.htm Take care, Kurzemiete.
  24. Kurzemiete
    I am sorry to hear about your and your childs trials re gluten. I have a 14.5 yo daughter and for over a year she has heard 'breathig' all over our home, it used to frighten her but now she is i think almost accepting of it. Last week she told me that she heard gnashing/chewing sounds coming from under her bed i know it unsettled her but she tries to keep...
  25. Kurzemiete
    I am sorry for your ordeal and hope it will improve on the celiac diet. This really makes me think hard on getting my daughter on a gluten-free diet ASAP! I have fibromyalgia, epstein barr syndrome and 2X tested inconclusive for lyme. When i eat more proteins and good fats i tend to do better. I have wheat issues, i react after eating what in an allergic...
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