Kurzemiete
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Latest Celiac Disease News & Research:
Everything posted by Kurzemiete
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Where are my old posts in the Forum?
Kurzemiete replied to Kurzemiete's topic in Board/Forum Technical Help
Oh my gosh! Thank you so much Scott !!! I was feeling so distressed and now I am better. This site has helped our family, I can't even being to tell you just how much!!! 🤗💛🌻 -
When did our old forums get cut, what year please? I am here from 2008 and this site was key in me diagnosing myself and my daughter! I am so grateful to all the folks here. All of my original stuff relating to Q and A on this amazing site is gone, in the Forum. I just really wanted an answer from a MOD as to what has transpired please. (I...
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Thank you. Will have a look at this.
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Where are my old posts in the Forum?
Kurzemiete replied to Kurzemiete's topic in Board/Forum Technical Help
Thank you. I found this also. My question is where are my post from 2008 and going forward? Did I not get a memo? Did I get a memo and did not read it or realize it's going to do something with the posts, like delete them? Would someone PLEASE in the ADMIN team, answer me this question. If they are gone, if you have deleted all of the... -
Hi. I believe that I was posting in 2008, as I joined here in 2008. But I can't find any of those forums. Are there achieved forum conversations? It's just so important because here I found answers and hope for my daughter and myself. Thanks.
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It's just confusing to me I hate twitter, its brevity. I like to READ things from A -Z in long form, not 'negative Coles' version', which to me, is twitter. I am hesitant to try anything which can exacerbate symptoms in me and he doesn't even have a website , does he? How do you know him , personally if that's not a secret or through twitter?...
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Thank you very much for your caring. My daughter has been diagnosed with pericarditis not myocarditis. But there is probably information also in that site for pericarditis too. I really appreciate this site and the amazing people who are here to help. It has been a lifesaver when you guys helped me to DX myself and my daughter as celiac sensitive/gluten...
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I Hope and pray that what you say is correct that it is temporary and transient. That would make many things great! Yeah. I can. Thank you so much for your kind letter! That means so much! My fav thing to do is cycle! My 'secret' moniker can be "cyclelady2"...😆😂 I have had to change how I eat drastically very recently. I need to dump out a lot...
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Can you please grant me access to what you are reading? Where are these sites? I am in Canada. I can't find anything relating to vaccine side effects and pericarditis. It's maddening and frustrating.( Reddit, it's a place I'd rather not go to for information of this nature. ) Thank you very much.
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Thank you very much. I just literally now, texted her, and asked her this Q.
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According to google : This medication does not contain alcohol, gluten, paraben, lactose, sulfite, or tartrazine.
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As for as she has been told, the other stuff is steroids. I have not researched if it has or not, any gluten. I will go a search now as to the ingredients. Thank you for your letter.
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According to her cardiologist, it's chronic now. I really want to find the best one in the city. I left a message for one of the three rated best cardiologists in my big city. I have to hope and pray. Thank you for your letter.
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Thank you for your reply. I asked my family in Israel and there are many of them , no one has a reaction. We are located in Canada though. Contacted Moderna? What for? I can't imagine them caring. Maybe at some later point she may want to complain. Now she is living with chronic pain. I have fibromyalgia but her pain it is another...
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I am sorry guys for a lack of more cohesive or less emotional post. I just can't. It's a very devastating prognosis and she has a cardiologist. She is almost 25 years old, in the prime of her life. She never had any heart problems prior to the vaccine. It started shortly after the second dose. As an FYI, my elderly (80+ years) dad also has side effects...
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Puffy/swollen Eyelids
Kurzemiete replied to alissar's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you for replying. Yeah, we, actually and especially me, don't do well with high glycemic index foods. So I have to maintain a kind of Paleo diet for myself. For example: corn has high glycemic index compared with quinoa and buckwheat or even wild rice. I try to avoid corn but I the budget is an impediment to eating a lot of meat and good fat... -
Puffy/swollen Eyelids
Kurzemiete replied to alissar's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you are reacting to some chemical then anything with a chemical solvent may be causing your reactions even the polish on your shoes, formalin in your bedding, furnature polish, traces of detergent on clothes and bedding, recently painted surfaces, traces of cosmetics. It took me several years to clean out the all the toxins from my home. You might also... -
Hello. Been a while since I've been here. Not that I am necessarily better. But you've (the great peeps on this forum ! have been incredibly helpful and I know how to cope better, and I've made positive changes in mine and my daughter's lives. So, as you can see I am writing to ask you about this new EVIL I've just recently discovered is a neruo...
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A young man of 23 is in hospital with Venous compression syndrome ( and I am not sure whether it is Paget–Schroetter syndrome, Nutcracker syndrome or May–Thurner). I know that this is a rare condition and these syndromes are usually seen in young, otherwise healthy individuals, Please note he suffers from IBS, is slim/ skinny, and cancer runs in ...
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Thank you so much for your advice RMJ and cyclinglady, it is very much appreciated !
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Hello Forum members : So my daughter who has been on the Gluten Challenge for about 8 weeks now, and we want to do the Comprehensive panel. -tTG IgA and tTG IgG -DGP IgA and DGP IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests We are not having any luck with a clinic...
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Ok I have an update from one of the lab technicians, in response to my letter to him. ' I have added the abbreviation to our test menu to make it more clear to you. (I didn’t recognize AGA IGA and AGA IgG) We offer EMA separately it cost $71.26 Celiac disease Panel (Panel 60): 1. Deaminated Gliadins IgG & IgA (DGP IgA) 2. Anti-Tissue t...
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Thank you and likewise pardon my bold and not bold because as you said, they have modified this format. I appreciate your feedback. I just off the phone with our family DR (GP) and he maintains that the former test, it is sufficient.. and when I did ask if he knows of a private clinic that does the 'comprehensive gluten panel' testing he basically parroted...
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So we have some updates I would like to report and again to ask for your advice, dear forum members: My daughter is on the Gluten challenge for approx 7+ weeks and she is very eager to have it done with, and so am I ! When I presented all of the tests that Cyclinglady showed me, the DR at the walk in clinic said they only do -immunoglblulin GAM (IgA, IgG...
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Thank you very mcuh ! We will request or if we must, insisit, on them all Really appreciate yours and others' imput, this is overwhelming and yes, scary. Plus we are moving, so as in life, timing is hardly the best
