erinecox
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Latest Celiac Disease News & Research:
Everything posted by erinecox
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Was blessed to get an appt with an endocrinologist tomorrow... Rather than 3-6mths like she expected. Thank you Lord! Less waiting, worrying!
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I originally posted in "Coping With" but didn't get any input and I realllly want some input, lol. THANKS! I was dx'd with celiac 3 years ago via bloodwork and struggled with a gluten-free diet until about 6 months ago. I've been gluten-free since then 99% (the 1% being accidental). Over the past week I've had some bouts with low blood sugar. My dr did...
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Just leaving the fireworks... Was absolutely awesome! Good job city of andalusia! Lotsa oohs, ahhhs, and wows from the cox fam!
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I've also had issues with peripheral neuropathy. MS came to mind when I was researching but I just tried b12 injections first. I had some bloodwork done last week and my b12 levels were off the chart high BUT if I go more than a week or so without it, the neuropathy comes back. So, that said, just because it shows "normal" doesn't mean it's enough. Plus,...
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I haven't gone yet, but will be seeing Alberas in Dothan at Digestive Specialists in Dothan next week. I will let you know how it goes. You'll likely have to go to your pcp and get a referral. They could perform the blood tests and then send you to the GI as well. That's what mine did. HTH!
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It really sucks to know that you've had the information all this time and haven't used it and now you're sick because of that. I don't say that to be condescending. I did the exact same thing and could kick myself. I'm now knocking on the diabetic door (still testing, probably T1) and I know it's MY fault b/c I kept eating gluten for 2.5yrs after my diagnosis...
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Wow Ray, bless your heart! I'd rather have all my symptoms put together than yours alone! That being said, it's not unusual at all to become more sensitive as you become gluten free. I know that when I was eating the gluten and cheating it never really bothered me. Now that I've been super strict about it for several months, the tiniest bit makes me so sick...
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I'd second what Marilyn said and also consider you could have a secondary sensitivity. It's very frequent and corn causes alot of problems for alot of people... have you ever tried an elimination diet?
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I'd say maybe do a little investigation into candida overgrowth... if you are having intestinal discomfort it could be due to fermentation of unprocessed sugars. Candida and gluten intolerance have alot of common symptoms and I believe personally go hand in hand. Just google candida overgrowth (if you haven't already) and you'll find a ton of info about symptoms...
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ARCHIVED Little Help From Those With Celiac & Diabetes
erinecox posted a topic in Coping with Celiac Disease
Moved to a different section -
ARCHIVED Recurring Shingles
erinecox replied to britbrighton's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I know this post is a few months old, but I did want to jump in and second the recurrent shingles with Celiac. I was dx'd with celiac disease 3 years ago. Within the first year of my dx, I had shingles twice... on my face... on each side. It was definitely shingles and not DH. I am googling and ran across this post because I am sitting here, quite confident... -
It certainly makes u feel better to vent, doesn't it? I know it helped me get out the "poooorrr me" aspect and start looking for some good ideas for dinner tonight. My main problem is that I am lazy in the kitchen- I don't mind cooking sometimes- but not on a regular basis. I guess I better get over that if I want to be able to have anything "bready" at all...
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I was dx'd with celiac disease in july of 08. I have done a HORRIBLE job sticking to the gluten-free diet. I did well for 4-5 months and have been on a roller coaster since. My problem is that it never directly and immediately affected me (no gastro symptoms other than slight bloating)... therefore I had no "negative" reinforcement for cheating... and cheating...
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Hey! I've only posted one other time with my q's about my labwork but I wanted to say HI and let everyone know how valuable this forum is to newbies. You guys rock! I just got the results from my daughters' today and they were both NEGATIVE!!! Thank God! I'm so relieved! I've been gluten-free since Friday when I got my results back. I'm doing OK except...
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ARCHIVED Got Test Results Today- Could Use Some Help
erinecox replied to erinecox's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks so much for your help. I was so unsure about what I was reading. I appreciate your help. I look forward to getting the benefit of everyone's knowledge in this great forum! -
ARCHIVED Got Test Results Today- Could Use Some Help
erinecox replied to erinecox's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Gotcha, Thanks! All the abbreviations have confused me when trying to figure out which one i had. Are there different degrees based upon how high about the reference your numbers are. I'm just curious if it indicates how strong reaction is... I know it's not an allergy, I'm just not sure if there are different degrees of "celiac-ness". Does that make sense... -
ARCHIVED Got Test Results Today- Could Use Some Help
erinecox replied to erinecox's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What's EMA? -
ARCHIVED Got Test Results Today- Could Use Some Help
erinecox posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello! I'm a newbie. I went to my allergist and asked him to do the blood test. I recieved these results today. He asked me to see my gp to proceed. Endomysial AB IgA Positive Gliadin Abs, IgA 117.0 (reference 0-10) Gliadin Abs, IgG 156 (reference 0-10) So those are all positive. From what I've gathered if both the IgA and the IgG are then it's...