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coldnight

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by coldnight

  1. coldnight
    Depends on the prescription, but $80 sessions once a week for several months adds up fast. Usually to a lot more than a year's worth of a normal prescription, if you have insurance. Unfortunately insurance usually doesn't cover things like NAET. Also, there is a difference between anecdotal evidence and scientific evidence. Anecdotal is that it seems...
  2. coldnight
    This sounds a lot like me. Rice is fine, sugar is fine... those carbs. Other carbs are not fine at all. I usually stick to meat and rice. Occasionally banana... corn chips as I said, on occasion, they will make me sick if I eat too many. As will most carbs. I would really like to find out if you find some place that sells amylase or whatever you get...
  3. coldnight
    Not to say misery loves company, I wish you all felt better, but I kind of felt like I was alone. Gluten kills me, I have no doubt about that. But a lot of other things are pretty miserable as well. I've been able to get off my medicine for weeks at a time, but one wrong thing and bam, sick again... not as sick as gluten sick, but sick for several days...
  4. coldnight
    I had been considering acupuncture, because I'm just getting fed up, better, but still in limbo, and it's one of the last things I haven't tried, besides SCD or something like it, which is probably up next. Anyway, I read about NAET today, the history was, according to the site I read, an acupuncturist got sick when she ate carrots. So one day she accidentally...
  5. coldnight
    Do what my parent's always used to say "You aren't hungry, you're thirsty. Drink some water." =]
  6. coldnight
    Yea, that sounds like me. I only ate meat and rice for 2 months. (with Kraft BBQ in place of soy). Now I can handle a little corn in tortilla chips, but the rest I don't eat. Not nightshades, raw vegetables, a banana occasionally, no dairy, no soy, no other grains. I feel a lot better, slowly. I've been able to drop off all the medicine I was taking...
  7. coldnight
    Thanks again for the info, one more question, how long did GI distress persist? And did you ever take any medicine for it, like were you diagnosed with IBS and take some medicine for that? (I ask because I'm having a hard time figuring out what is possibly healing versus withdrawal versus maybe just some fluctuation and a problem with carbs in general...
  8. coldnight
    Curious... did either of you have GI symptoms? Even though you lacked apparent GI damage? Also, how long did it take for you to recover after eating gluten for a prolonged period? And how long does it take you to recover if you accidentally eat some? Thanks, I don't want to do a challenge for sure, it was too much trouble getting off gluten. Still...
  9. coldnight
    It usually helps me, I think the upset it causes, for me anyway, is the 500mg of tylenol in it. (It's funny at work I often hear people talk about being on 500mg of lortab... it's usually 5/500 or 7.5/500.) My codeine is T3s or T4s, so 30 or 60mg of codeine per 500mg of tylenol, and I usually take two, that's a lot of tylenol, probably not terribly good...
  10. coldnight
    I cannot find any hidden gluten in my diet. I check everything as much as possible, on the web, call them. I've been eating a very limited diet for a few months, and it has helped, but I still feel pretty sick at times. I'm hoping that is just coming off the lomotil, today I feel terrible, I'm not sure if that's still lomotil, or just ebb and flow. Anyway...
  11. coldnight
    Yea, that sounds pretty similar. Soy bothers me, even la choy which is supposed to be gluten free. So do tomatoes, I assume it's the nightshades. But that may be because healing is still going on. I guess the key is just to wait. It's not been too long since I dropped off all the medicine, Klonopin is the only thing I take. I've checked the vitamins...
  12. coldnight
    Yea, I've been on a ridiculously simple diet, rice and beef. I've been able to retry tortilla chips and they seem fine as long as they don't contain milk. I also take kirkman's pro-biotics, they seem to help a little bit. I don't have D, not really C (as long as I stay off medicine)... the main problem is cramping and just a raw feeling. My innards just...
  13. coldnight
    Thanks, that is good advice. I plan to stick to the diet, I just wish I could stop feeling sick.. lol. I mean, granted, I've felt this sick and been on a load of pills... so there is improvement that I can be completely off them and feel better than with them. But I still feel sick and run down. I'm very impatient, I want to feel all better. =) Or at...
  14. coldnight
    Same here, I've heard candida for years. Starches and sugars don't bother me nearly as much now that I cut out gluten. Not perfect condition, but there is drastic improvement, of course it's somewhat offset by the fact that I don't take codeine or morphine every day now, but much better this way. =)
  15. coldnight
    Don't know if this is in reply to what I said, but I said, comparatively, an endoscopy is a walk in the park compared to a colonoscopy. I've had a couple and they are horrible, but the endoscopy was a breeze, didn't even know I had it until they told me much later on. The prep for a colo is terrible, but I don't think you need a colo to diagnose celiac...
  16. coldnight
    I like this, a part of me really wants a rational answer. I know the only way they can definitively tell if your immune system is attacking your tissue is to see that damage. Going off gluten has helped me tremendously, more than anything else ever has. But some part of me would still like to know if it is REALLY Celiac disease or something else related...
  17. coldnight
    So, I haven't posted in a few weeks, I think. Anyway, I was dx'ed with severe IBS 9 years ago, took tons of medicine (9 lomotil, 120mg codeine, zofran, immodium, klonopin). I stumbled upon gluten free and felt a lot better within a week, this was several months ago. Right now I'm off all of the medicine, except the klonopin, which I'm just holding off...
  18. coldnight
    Yea, I can accept that. I don't mind not eating gluten, I need to eat better anyway. I guess it'll just take time to find out if I can get well enough to get completely off the medicine. For like 9 years I've just been surpressing symptoms with massive amounts of medicine. So, I guess it might take many months... I guess that's what bugs me, if it was...
  19. coldnight
    I should clarify, because the genes are still confusing to me, and I stated it wrong in the first post : HLA-DQB1 Molecular analysis, Allele 1 0202 HLA-DQB1 Molecular analysis, Allele 2 0603 From what I understand, not much, but that makes the chance of celiac very low. I'd like to know if I have it though, I guess I will just stick to the...
  20. coldnight
    I suppose there's always the possibility, at the time, before the results of the biopsy came back, they gave me AZA? Some crohn's treatment, but it made me even sicker. They've done 3 scopes and took biopsies on all, it would be sad if they missed it that many times, but not impossible. Maybe I should just go see the GI, see what he thinks, I really just...
  21. coldnight
    Yes, they thought I had crohns at one point, but then ruled it out with biopsy. I've had two colos, one sigmoid, 1 endo, they found nothing on those.
  22. coldnight
    Gluten Sensitivity Stool Test Fecal Anti-gliadin IgA 98 Units ---- Quick story, and I'm sorry to keep repeating it, just in case someone hasn't seen a previous post. So, 9 yrs IBS, lots of meds (lomotil, codeine, morphine)... accidentally go gluten free by process of elimination... symptoms 95% resolved in a week. Had a gene test, do not carry...
  23. coldnight
    Yea, you are right. It is a very old anti-depressant, they don't use it much for just that purpose these days. It slows motility and is pretty good for itching. If anyone starts that though, start on a weekend. The first time I took it, I think I slept for about 16 hours. =) That wears off pretty quickly though.
  24. coldnight
    Klonopin works well for me, but they all have tolerance, short term is best. I tried valium for a while, but either the dosage was too high, or it just lasts too long, I could not get out of bed in the morning after a few days on it, during the switch back to Klonopin I must have dropped below my tolerance level because I could not sleep, could not stop...
  25. coldnight
    LOL, I hear you SBJ, I think there's a middle ground. What doctors say is not gospel, but there is a lot of information and experience they have that the average person does not. So, it depends on the situation, but even breast cancer can strike young. I worked with the mother of a guy who has testicular cancer quite young, 19 I think. It's always best...
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