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angigz32

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by angigz32

  1. angigz32
    My son was failure to thrive and still is..... he has a feeding tube in his stomach. Long story Please look at his jornal on www.caringbridge.org/co/zack..... all I can say is still we are trying to figure out what is going on. You name it and we tried it. Just a long journey for myself and son. We go to the GI doc Oct 29, 2008 and have a test done...
  2. angigz32
    Thank You, I did want someone to tell me that was wrong. Because thats what I thought the gene test was not the true answer. My son ate yogurt and soy products and got sick (vomiting). Also Milk he vomites. He was on ELECARE formala medicated pre digested food. And now he is on Kindercal with fiber.
  3. angigz32
    The Gastro Doc said "The gene test was the true test" So he tells me he doesn't have Celiac. Yes, if I would have known that my son had Celiac, which now they say he doesn't because of the Gene test, I would have not ate gluten and breast fed. No more baby's my tubes are tied. Thank You for input!!!!
  4. angigz32
    You need to see a gastrologist if you havent already. My son is the one with the G tube in his stomach. A sign of a hard stomach is he is not digesting, And if your kid is staying up and crying. I would take him to the hospital. Sorry, from my experience that is a very bad sign. I't could also mean he has a bowel problem. JUST MY OPION.
  5. angigz32
    My son was diagnosed with Celiac at 17 months. At 5 months he ate sweet potatoes or carrots, vanilla custard (baby foods). Than just all of a sudden he cryed alot and they said he had colic. I thought that was over at 3 months. Than they said he had the stomach flu, like twice a month. So at 17 months I still breast fed Because it was the only food...
  6. angigz32
    My son was diagnosed with Celiac at 17 months. At 5 months he ate sweet potatoes or carrots, vanilla custard (baby foods). Than just all of a sudden he cryed alot and they said he had colic. I thought that was over at 3 months. Than they said he had the stomach flu, like twice a month. So at 17 months I still breast fed Because it was the only food...
  7. angigz32
    Been away for awhile and still do not know what is all wrong with my son. So just wanted to know if there is any kids out here, with a feeding tube in there kids stomach. UPDATE: Still has celiac sprue in bowel movement and blood test. Gene test came out negative for Celiac. DOC said he NO LONGER has celiac. (Coming from a gastrology Doc)
  8. angigz32
    All these menu's sound great.... Hopefully my son will be able to eat all these when he gets the G tube out and starts the feeding clinc. My son is also allergic to milk and soy. I still can only get him to eat two or three bits of anything. I try to get him food he really likes and it still doesn't work. Pedisure he also got sick on. So we put him on...
  9. angigz32
    My son tested postive for celiac with the blood test. Also tested positve on the bowel movement. My son was also breast fed. He will only eat a couple of bits or a couple of sips of drink. He has a feeding tube in his stomach. He is 2 years and weighs 21 pds. We are in the hospital every three months for more tests. Celiac can come in two's (something...
  10. angigz32
    Well I haven't posted in a long time because my son is sick alot. But I feel every sitution is different and you will just have to see what happens. My son was diagnosed at 17 months. They started out with finding fat in his bowel movement, it was positive for celiac. Than they did the blood test and it was positive for having celiac. Now the small...
  11. angigz32
    My son is 21months now. He weighs 21 pds. He has been Gluten free for six months. But he still would not eat. So he didn't gain weight. On friday the doc were going to send him to the hospital because he was running a fever. And having loose bowels. I don't know maybe he has a feeding problem? The doc seems to think something else is wrong. I think...
  12. angigz32
    ryebabyo Thank you you answered all my questions. The gastrologist put Zackary on the G tube. One of the test he is doing is putting him back on gluten. Because he is Gluten free now. The gastrologist put the G tube in because my son just wouldn't eat at all. It was like food hurt. But than again his intestines show no damage or nothing else...
  13. angigz32
    O.K how come nobody else kid has a feeding tube? My son was totallly breast fed at 17 months. And weighted 16pds and they put the G tube for feeding. He also had all the systems of celiac. I guess they just feel he has another problem. What else could he have any one know?
  14. angigz32
    By the way he is on ELECARE already digested medical food.
  15. angigz32
    A G tube is a tube that was put in my sons stomach. So he can get the nutrition, that he needs to grow. I have a machine and like a I.V. pole that holds the bag and the machine. Than the machine operates the tubeing to, 60 cc and that is what goes in my sons stomach
  16. angigz32
    I was told my son had celiac from blood tests. Than the doc did the biospy and said he didn't have celiac. Also in his bowel movement I was told he had celiac. Well now he has a G tube from feeding, because he just wouldn't eat at all. I don't hear of no other parents that has there kids on a G tube. Is there any one out there with their child on a...
  17. angigz32
    I breast fed my son until he was 17 months. I did have a hard time weaning him. He had a feeding tube put in his nose. And he didn't want to breast fed right away. I tried to get him to eat and he still wouldn't eat so they put a feeding tube in his stomach. The Doc isn't sure he has celiac diease. My son does have 10% celiac sprue in his blood. ...
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