Genna'smom

Hi all- hoping someone could tell me what is the best way to help my daughter get over being gluttened? Do i treat it like she has D and go on crackers, toast, rice etc or can I let her eat normal foods? Thanks for anyone who has been there. She was diagnosed at 2 years old and it has been a long time since this has happened and it has never been this...

Hi Jen I too have a 5 year old who we found out by accident she is a celiac at 2 1/2 yrs old. She is still small but at least she is now growing thanks to being gluten free. The way we found out was that she stopped eating and drinking and was hospitalize due to failure to thrive. They ended up doing biopcies of her esopgaus and intestines as she had...

Can someone please tell me if anyone has a child who has some kind of seizures as part of being gluten free. My daughter gets very upset about things and I thought she was just passing out but now she also loses control of her bladder when this happens - just wondering any advice anyone can give....

Thanks to all your replies. I remember reading this a while back we started this almost 2 yrs ago now and she had totally stopped eating and was on a feeding tube and is just starting to eat again. I have went either early in the day or late at night and they are not happy about using a clean machine but will do it once I explain the circumstance. She...

Can anyone tell me why our kids cannot have processed lunchmeats. I have been reading labels and cannot find a reason why she cannot have them inlcuding bologna, hard salami etc... please help as she misses these things.

Hi My 3 year old started preschool 4 days a week and due to her celiac's she has an OT and and counselor. I think I am lucky that the teacher is great. For thanksgiving she sent me home a list and I made Genna all the same things and brought in a special desert. She now gave me a list of all the craft things they would be doing in december so I can...

Hi - has anyone had any experience with this and do you think this helps... Bonnie Ps - My dd is 3 1/2 and is not gaining well. She is 27 lbs 13 ounces....

Does anyone know of a good licorace and where I can get it?? My 3 yr old has been begging me for some. Thanks for any help you could give me... Bonnie

Hi Please also rememebr that blood tests are not always accurate especially at this young age. My daughter who was 22 months was tested for it and the only symptoms that she might have had were constipation and acid reflux..... nothing else till she jsut stopped eating and drinking anything.... Long story short ened up with feeding tube and ended up with...

Hi I am in the same boat with the genetic testing.... UGH. Blood work is negative also and she is now 3 yrs old. She did have a biopcie at 2 and it showed early warning signs of Celiac's Disease. So we still do not know. But she had allergy test of top 100 and she has no allergies... I hate this. Today she keeps telling me her tummy hurts and has...

My now 3 yr old also tested negative in blood work with absolutely no symptoms and she decided to stop eating and drinking at 22 months and no one knew why - while doing an endoscopy for her acid reflux they did biopcies and came back with celiac disease. It has been a long road with her as it took us about 7 months for her to start eating again and she...

OK here goes = can anyone help me with these..... HLA-DQ2 -- POS HLA-DQ8 -- Negative Transglutinase Antibody - 4.4 IGA - 75 If anyone can help me decipher this more I would appreciate it. Does this mean she has it. Her GI Dr says we are in the same boat.... It does not mean she has it but they want me to keep her on a gluten free diet....

Hi all My now 3 yr old had genetic tesing and they told me we were still in the same boat. One came back negative and one came back positive. Can anyone tell me what this means. I was so hoping it would be negative and we could start life over again. I go to her GI specialist on Friday so I am going to ask for a copy, but in the meantime if anyone...

what about mixing it in with a small amount of jello jiglers to eat and make sure you know which ones....... just a thought. I know my daughter did not do well with it either except later in milk...

Not sure if I can be helpful or not but my 22 mo old daughter stopped eating and drinking and no one knew why and we ended up in several hospitals before a biopsy was done to rule of her esopgus being damaged from acid reflux when they stumbled upon early warning stages for celiac disease when everythng else said no. She has lost weight and was down to...