kkkkaty
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by kkkkaty
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Well, Thanksgiving was at my house so I thought I had everything under control but somehow I was glutened! Now I'm looking forward to 8 or 9 days of misery -starting with knocking intestines, bloating, then several days of 0 bowel movements. plus some other unpleasant stuff (I'll spare you). After more than a year since diagnosis I've yet to figure out how...
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ARCHIVED Natural And Artificial Flavors
kkkkaty posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I read somewhere that natural and artificial flavors can contain gluten. I read that natural flavors are more likely to contain gluten. Do they always contain gluten? Or, have I got it wrong? And, does anyone know just what sort of gluten would be in flavorings? Thanks -
I just had a great appointment with a GI doc who is a Celiac expert. After so many visits to doctors who know next to nothing about the disease, it was such a relief to meet with a doctor who is so knowledgeable. His name is Dr. Vecchio and he works at the Fletcher Allen Health Center in Burlington, Vermont.
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Thanks for all the feedback. I had the boys tested and they are both negative. A friend w/ celiac told me she has her daughter tested every 3 years. Seems like a good plan. In the meantime, my kids seem happy eating mostly gluten free (I do all the cooking) and should they ever have celiac disease, or meet someone with celiac disease, they'll be well equipped...
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I'm sorry you are not getting enough support from your hubby! I was diagnosed in Aug. 08 and it has not been an easy road for me- between cross contamination issues, fatigue, learning I was also lactose intolerant ,etc.- it's just not a simple process. It's very important to have support and yes, some special attention is pretty nice too! I was very tired...
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ARCHIVED Newly Diagnosed: Are My Symptoms Typical?
kkkkaty replied to Nichelob's topic in Coping with Celiac Disease
I get headaches when I've been glutened. Also, fatigue, body aches, D, unsettled gut. The symptoms really vary for each person. It can be really confusing at first- I finally started keeping 2 diaries (advise from another member here) One to keep track of everything I eat and another to keep track of symptoms. Also, I keep track of my environment, special... -
My boys are 12 and 16. Their Doctor said we should not test unless they showed symptoms. Though I was only diagnosed in August, (blood test )I'm quite sure I've had the disease for years. After many trips to the doctor and many tests, it was an on call doc who thought to test for Celiac. The second she mentioned it I thought it made so much sense so I was...
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I was recently diagnosed with Celiac and on a recent trip to my son's pediatrician I asked if we should test my 2 boys for the disease. The Dr. said no but the more I read the more I feel it would be irresponsible NOT to test. I'm kind of baffled actually at the lack of awareness our Drs.(mine and the kids) have about this disease. Happily I've found a celiac...
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It is no small thing to have people around who are so supportive! I have been counting my blessings lately as I realize I have 3 close friends (couples) who cook wonderful meals for me- they will sometimes call several times while they are preparing to cook and ask me if I can eat this or that and what pans should they use etc. My other friends may not go...
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tmb, Ok this looks like a good system. I just finished setting up something like this on google docs and am going to give it a try. I like google docs because you can gain access through gmail on any computer, anywhere. Thanks!
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tmb, Thanks for the thoughtful reply. I realize this is a process- a much more complicated process than I first thought. It is an entire lifestyle change and I do have a good attitude about it but it isn't always easy! I don't have any problem giving up whatever I have to- My health is important to me so it's a no-brainer. Still, there is a lot to learn...
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lbd, Thanks for the very informative reply. I will definately investigate that. ang1e0251, I've already stopped crying. I understand the result of all this is that I get to feel so much better- that is a huge prize! and as the saying goes in my house, "when Mama's happy, everyone's happy"
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Thanks everyone for your thoughts and experiences. I guess I will just take it slow and stay off dairy ( and cry quietly in my room) . One more question for the lactose intolerant folks- do you also stay away from anything that has milk in it- like cookies or chocolate? Thanks all.
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I have figured out that dairy makes me feel pretty ill (tummy ache and D)- I feel great being off it. But I'm very sad about this! I know that since I've been gluten-free (4 months), I'm much more sensitive to several things I love (like coffee and chocolate) and when I was recently glutened from cc I was stunned at how sensitive I was and how intense the...
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I'm just getting over a terrible reaction from the holiday (probably cc as I can't think of anything else and I was sooo careful) and since then I've been working on getting my kitchen gluten-free - new cutting boards, spoons, toaster etc. I went out to lunch yesterday and , even though the restaurant had gluten free items, I ended up just having a glass...
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Thanks for the reply. Are you saying that one should not cook with wheat for other people? I make cookies, cake, pancakes, etc. for my kids - is that considered risky? I understand the idea of dedicated tools and dishes and I'll be paying attention to that immediately. Please clarify about the cooking...Thanks.
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I was diagnosed with Celiac in August and at first I ate only fruit, veggies, rice and little else but slowly I've discovered lots of great things to eat. But I haven't been feeling very good for awhile now- I have more headaches, bad sleep, general achy-ness.My stomach is much better but not entirely right. I think I eat well, take vitamins, run 4-5 days...