NYCCeliacMom

I go to the Celiac Center at Columbia and see Dr. Lewis there. I think highly of her. I had the hydrogen breath test to make sure I did not have bacterial overgrowth in the intestines, which causes other problems, including roseaca, which I also have. I have not had other testing for intolerances but think it is possible I have others. I did visit a nutritionist...

I am not sure this is the right spot on the boards but I just had my first repeat biopsy. I was diagnosed 2 years and 4 months ago and have been completely gluten-free since then. I have a Marsh 2 result on a recent biopsy which means there is still some villi blunting. This doesn't surprise me since I am still lactose intolerant. I will be seeing my doctor...

I see some time has gone by since you posted. I hope things are going well. It is fine to kiss a gluten-eating person a while after they have eaten. I have heard various time periods quoted, and I am not sure if this has been scientifically tested. If your spouse drinks a beer or eats a gluten sandwich, I would give it some time before kissing. Your 2 year...

We just tried out the restaurant we picked for our daughter's high school graduation dinner. Unfortunately, I got sick with d. about an hour after eating there. I do not have food poisoning, or a flu, so I think it can only be gluten. I also know that nothing else suspicious was consumed today. I am very disappointed because this restaurant is well-regarded...

Additional note on the Costo Zyrtec analog: I had a call from someone in their pharmacy department. She had forwarded my request on but said that she had read the ingredients online and there was no gluten in the Aller-tec. However, she was expecting to see "gluten" as a ingredient. Several days later I received call from the company that supplies some of...

I was on hold with Costco about its zyrtec equivalent and came up this thread. I was surprised to hear the company that makes zyrtec was so unresponsive. They told me some time ago that the tablets were gluten free. I will post again what I hear from Costco but it sounds like theirs is gluten-free. I have been using the Target equivelent but have to call...

I know what you mean...yesterday I was talking about how being celiac is affecting my daughter's decisions about where to apply to college and the well-meaning person I was talking to said 'oh, I was just reading how if you have celiac, all you have to do is just eat rice, fruits and vegetables and you will be fine'. Easy as pie, right? We have both gotten...

The tips of the villi are where the enzyme is produced that processes dairy. Damaged villi cannot digest the sugars in milk, hence many celiacs are lactose intolerant. It can be a sign that you have celiac. If I had known this when I first became lactose intolerant, my celiac would have been caught years earlier. Once you are totally gluten free, your villi...

You might want to check with the specialist's office about this, but testing will be skewed by being gluten free. Most doctors advise staying on gluten until after the testing.

That doctor sounds kind of like the ignorant one I saw 4 years before my celiac diagnosis...did an endoscopy but didn't do biopsies because he felt I "didn't fit the profile" of a celiac. If you are near New Haven, I would suggest a consultation with a pediatrician at the Celiac Center at Columbia at W. 168th St in Manhattan. My teenager sees Dr. Amy DeFelice...

I have not been able to tolerate mushrooms for years. I would wake up a few hours after eating them and lie awake in pain until they passed. I was told by someone that mushrooms (particularly the fancier ones, not the plain white supermarket ones) contain mild toxins. I always figured it was that and haven't dared to eat a mushroom since. I was diagnosed...

I also wrote Lewis Labs and this was their reply: <<Thank you for contacting us with your concern about the oat fiber in our product - Weigh Down. We've had this question before and the Lab., has assured us the oat fiber is gluten free. Please see the answer below (in blue). We hope this response is useful to you. Thank you again...

I am struggling with weight issues. I was doing very well in July with careful portions, good nutrition, and exercise. I didn't think I was being too stringent but as usual, fell off the diet. I find that when I get gluten from somewhere, part of my response is lose control over my eating. I become particularly out of control with sweet and salty foods. I...

Thanks for all the information about the miracle noodles. I am a little confused, though...is yam cake the same as miracle noodles? I have only seen them as shirataki noodles on the miracle noodle website.

Thanks for all the replies about this. I am approaching a two week trip with the family, and gearing up for the airport and being in a number of gluten environments. I have traveled several times since diagnosis and find it to be a crumb whirlwind. My 16 year old and I both have celiac and were diagnosed last winter. I am still frequently getting small amount...