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NewNicole

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by NewNicole

  1. NewNicole
    Your symptoms seem to be exactly mine....severe fatigue, headaches, muscle pain, dizziness and nausea are my main problems. Some days it's hard to breath. Not because of my asthma but because it feels like it's too much work. It feels like a heaviness. It's not gluten and I don't know of any other AI issues. Does anyone know what AI diseases can have these...
  2. NewNicole
    I'm very careful about not eating gluten. I've checked for the other food allergies and had both blood work and an endoscope to check and make sure my celiac was in check. So with all that why do I feel so much fatigue, nauseous , dizziness, and headaches. It's not every day, but will be a hit or miss. Will the autoimmune symptoms flare even on the diet...
  3. NewNicole
    Nate, I know that story all too well. The medical field is a nightmare to try and navigate. I have learned so much over the last few years. As a child you are told a doctor will help you feel better and that is just not the case. I think most of them want to but they don't have the time and they need to just push you off to the next person. I've learned that...
  4. NewNicole
    Nate, that is a terrible existence. Most of my big issues went away when I went gluten-free. The bloating is more annoying than anything else. Although sometimes I do get what feels like back labor. I'm pretty sure it's because of constipation though. The Dr. prescribed a medicine that is suppose to work if its IBS but it was not helpful. And he won't do...
  5. NewNicole
    Shadowicewolf, I was thinking thyroid also. I have other symptoms that play into the thyroid, but I can't get the GI to listen. He insists no. My TSH is fluctuating but its not to the point that they will treat it.....Lexi and Nate, in this case misery doesn't love company. I'm sorry you guys seem to be having similar problems. My stomach is flat when I don...
  6. NewNicole
    I only eat plan chicken...and I mean plain...plain potato and a couple vegetables. I have researched all the possible food issues and have really taken that off the plate. It doesn't matter what I eat. I can drink water and you can see the swelling as I drink. It only takes a few minutes from each sip for it to swell.
  7. NewNicole
    I was diagnosed 3 years ago with Celiac. The diet has improved my life but not fixed everything? My GI doctor ran another blood panel and performed another endoscopy with both coming out negative. So the diet has healed my intestines. However I am having major bloating to the point of people asking if I'm having twins. I have a very flat stomach and the severe...
  8. NewNicole
    When I was 18 my mother found me unconscience with a very high fever. After spending a week in the hospital the doctor believed I had menegitis but really never diagnosed me. After that there were at least 5 hospitalizations for unknown illnesses. Finally at the age of 38 I was diagnosed with celiac disease. My doctor now suspects that when I was 18 I...
  9. NewNicole
    I have pretty nasty migraine headaches. I was getting them about twice a week before going gluten free. After a little over a year I only have them once a month. I'm hoping it goes down more as I get better. As far medicines go I always use Excedrin Migraine. There have been a few times that I have used Aleve, which is naproxin. A doctor told me that...
  10. NewNicole
    shadowicewolf, I suppose this is why it's so hard for the doctors to diagnose abdominal pain. It seems to vary from person to person plus the pain can radiate all over the body.
  11. NewNicole
    Actually I have had gallstones and can tell you the pain is upper right quadrant. It's almost under your rib cage. When the doctor checks for it he has you breath in and he presses down and goes under the rib cage.....by the way if you have gallstones you will jump off the table at this point. Lol.
  12. NewNicole
    So I'm thinking I would have passed the stone by now if that was my problem. I may be wrong with that, but it sounds good to me. Lol. And I'm pretty sure the appendix is lower right quadrant. My pain is on both sides about 3 inches from the belly button and a lot of pain radiating to the back. It could be the cysts. I'm thinking that could be right or it...
  13. NewNicole
    You went kayaking....that's fantastic. That's on my to do list to. And we just put in a pool so I'm hoping by next summer I will be able to enjoy it. It's almost like a kid in a candy store...you want to do it all right now. Good for IrishHeart. I hope you get to make up for lost time.
  14. NewNicole
    Kitty, mania is a great way to describe it. It takes me forever to heal after being glutened too. I hope you bounce back soon. Lvrdeo, I'm so glad that I can give you hope. I know that it's hard to think you will ever feel better. But you will reach a point when you realized that you went up the stairs without needing to rest. I actually went up a few...
  15. NewNicole
    That's very interesting. I didn't even think about the two being related like that. My mother has a lot of kidney issues. One of her kidneys is functioning at 35% with over 30 stones in it. Plus the other kidney has had a couple stones in it that has caused problem. Her father lost a kidney and the other one failed. With all of this plus my own history...
  16. NewNicole
    Two nights ago I started getting sick. Both sides of my stomach and pain that radiates to my back. I originally thought it was my intestines but I'm wondering if it could be kidney stones. Yes I have had stones a few other times...I'm pretty lucky, huh. The pain is definitely intense. I'm really not standing much. I am taking Aleve which at least makes...
  17. NewNicole
    When someone asks me what it's like to have celiac disease I tell them it's like being on the wildest roller coaster you could ever imagine. It's been a little over a year now that I have been gluten free. I started out in severe pain, incredibly hungry, massive headaches, every muscle aching, and sleeping 14 hours a day and still feeling like I got ran...
  18. NewNicole
    I think I will have to find a new doctor. My GP really has no idea what to do with me. When I was originally thought to have celiac disease it was my GI that saw the 5.7 level. He told me not to worry because the gluten free diet may regulate the thyroid. So unless it goes way out of the normal markings I understand they will just leave it alone. Does...
  19. NewNicole
    Thank you I will have those checked. I know my TSH has been fluctuating between .5 and 5.7. But they don't seem concerned and just leave it alone. Do you know if it's the GP that should be testing all of this or if it's the GI doctor? Thanks.
  20. NewNicole
    My doctor is learning about celiac through me. Unfortunately he doesn't know a lot. I didn't realize that vitamin B could cause things like this. I will check on that immediately. I assumed that once i was gluten free I would be absorbing all the nutrients and I was in the clear. I will have to keep an eye on this forever? And is there anything else...
  21. NewNicole
    I was officially diagnosed with celiac a year ago. I have been gluten free for that year and I am now starting with a host of other issues. My doctor is confused and I am left just dealing with all of these issues. A few months ago I had an incident while driving where I started to go dizzy and blacking out. I had to sit on the side of the road for a few...
  22. NewNicole
    Something I just thought of is that I eat a lot of salads and beans. I probably have too much fiber in my diet. That could be my problem. Because I haven't figured out how to eat on this diet very well I have pretty much eaten salads all day. I figured that was good and couldn't be a problem. But now I'm thinking that is probably not such a good plan...
  23. NewNicole
    It's not so bad that I can't deal with it...of course as many people with this disease we can tolerate a lot more than the average person. I will keep an eye out for new food intolerance. I didn't realize that this could happen. That's why I came to this board. There's so much to learn to to understand about this disease.
  24. NewNicole
    Oh no....Ughh. So how would I know if there could be something different going on instead of celiac.
  25. NewNicole
    I haven't taken corn out, but I have eaten it alot within the last 7 months so for the change in bowel habits now seem like it wouldn't make since. And nothing new has been added. In fact I have removed a lot, no milk, eggs, soy.
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