
Klauren
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Everything posted by Klauren
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ARCHIVED Quick Question - Gluten-free Beer And Food
Klauren posted a topic in Coping with Celiac Disease
I had some Redbridge and had a reaction. The beer is made with yeast, could that be causing a reaction? I understand yeast isn't always gluten-free? Are there some gluten-free beers that are better than others for Celiacs? Also, I bought some Amy's brand items that say GLUTEN FREE in bold on the container and then have a disclaimer saying that it was... -
ARCHIVED Well Meaning Stores, Restaurants And Friends - What Do You Do?
Klauren replied to Klauren's topic in Coping with Celiac Disease
THANKS EVERYONE! I still have pain today, but I am hoping it will improve tomorrow, last week it took 2-3 days to get better> I will have to get comfortable with a firm NO. How do you all deal with vacations? I am so lucky to be able to go on one! My husband has a business trip to Puerto Rico and I get to go - BUT HOW ON EARTH AM I GOING TO EAT... -
ARCHIVED Well Meaning Stores, Restaurants And Friends - What Do You Do?
Klauren posted a topic in Coping with Celiac Disease
This past Friday a friend took me to an earth center store/restaurant that was supposed to be "great" and caters to vegans and those on special diets. I was very careful with my selections and was ASSURED what I ate was gluten-free - well I was sick all weekend. Obviously it wasn't. Now that I am feeling better, I had a friend over for lunch (I now have... -
ARCHIVED Residual Symptoms Or Slip Ups?
Klauren replied to Beloved's topic in Coping with Celiac Disease
The way your post was worded, it wasn't 100% clear that a cake was served for your birthday that you couldn't have - I agree that's awful! The pizza isn't nice, but its not horrible because everyone shouldn't miss out because you can't have it - but why not ask whether there is something that could be ordered for you. Otherwise bring something! Good luck... -
ARCHIVED Remedies For Gas/bloating/pain? Butter/oils To Use?
Klauren posted a topic in Coping with Celiac Disease
Do we have to suffer while we heal or if we mistakenly eat something that triggers painful gas and bloating. Are there any remedies for that pain or symptoms that are gluten-free and worth trying? Would Tylenol help with pain? Is there a gas remedy that is gluten free and doesn't have sweeteners that are hard to digest? Does Pepto help? Digestive enzymes... -
ARCHIVED Help How Common Is Abdominal/digestion Pain - Sometimes Severe?
Klauren replied to Klauren's topic in Coping with Celiac Disease
Great fast responses - THANKS SO MUCH! Actually the pain was very very severe from the time I gave birth 8 1/2 weeks ago (and has surgery, two likely triggers, not to mention the stress of child number FOUR) until I went to the ER (3 1/2 weeks ago) and I was given "bowel rest" - basically I was starved and that helped the pain, but in hindsight it accelerated... -
ARCHIVED Help How Common Is Abdominal/digestion Pain - Sometimes Severe?
Klauren posted a topic in Coping with Celiac Disease
I had SEVERE abdominal pain for weeks and eventually noted that it seemed associated with eating and stooling. The pain has subsided to some extent, but I did have an attack yesterday. The pain is inside AND to the touch, its so bad I cannot wear any pants because the waist hits me where it hurts. The doctors have said they find this odd and they don't... -
ARCHIVED I Get Neurotic Every Time I Eat
Klauren replied to Lovey25's topic in Coping with Celiac Disease
I am so with you! I was just diagnosed 2 weeks ago and I am freaked out by eating out and JUST NOW I am sick. I think it is this: I was being smart and brought my own lactose free milk to a coffee shop in a thermos and paid them to just steam it for me. This is probably the stupidest thing this group has ever heard of, but it seemed like a good plan to... -
ARCHIVED Peter - Quick Note On Endoscopy Pathology
Klauren posted a topic in Coping with Celiac Disease
Thanks so much for your help! I hope you are doing well - you are dealing with a lot and you seem so on top of it - an inspiration! As a follow-up to your post to me on healing - I posted to you that my GI said that the pathology report doesn't tell you how "bad' your disease is, it just confirms your blood work - which in my case was pretty conclusive... -
Sorry you are having those problems! Since you are not having digestive symptoms, it does sound strange! I am a total rookie, just diagnosed a week ago, but no harm in offering an idea. I have been taking gluten-free gummy vitamins that I bought for my kids. They taste okay, are soft going down (which has been important for me because I have major belly...
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Hey, I was diagnosed about a week ago too. I hope we both figure this out and heal quickly! I have been asking a lot of questions here and fingers crossed some of the veterans will give me feedback. I have also spent a lot of time researching on the internet and talking to others in my social network that have Celiac. I have been mentioning it to everyone...
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ARCHIVED Help From Experts? B12 Crash? And Skin Absorption
Klauren posted a topic in Coping with Celiac Disease
Hi all, to all the experts - you guys are definately more knowledgable than the docs! I have been gluten-free for 8 days and just diagnosed, I asked for a B12 injection because I am SO weak. I also had bloodwork to check for a deficiency. After having an injection at about noon, I felt better until about 4 and now I am exhausted. Coincidence or is there... -
ARCHIVED Where To Look For Safe Hygene Products And Detergent?
Klauren posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I am sure there are good reference resources for soap, shampoo, conditioner, makeup, makeup remover - can anyone suggest some? How about detergent? Can you be glutened by your sheets and pillows? THANKS in advance for any assistance for a rookie!! -
ARCHIVED How Long For Pain To Subside And Pale Stool To Return To Normal?
Klauren replied to Klauren's topic in Coping with Celiac Disease
Have you checked your soap, shampoo, skin products? I just got a tip from someone that those things can undermine you and specifically I shouldn't use handsoaps or santizers - she said buy Dove senstive and just use that. Could that be the issue? Particularly since your getting DH on your hands? I am a rookie, but just trying to be helpful! GOOD LUCK... -
ARCHIVED How Long For Pain To Subside And Pale Stool To Return To Normal?
Klauren replied to Klauren's topic in Coping with Celiac Disease
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ARCHIVED How Long For Pain To Subside And Pale Stool To Return To Normal?
Klauren replied to Klauren's topic in Coping with Celiac Disease
Thanks Peter, that was helpful input! How do you know how severly damaged the villi are? The doctor who did my endoscopy said there is no way to determine the extent of the villi damage, the biopsy just confirms the Celiac diagnosis. I specifically asked that question even though my brain is not working very well at the moment. I am learning that the doctors... -
ARCHIVED How Long For Pain To Subside And Pale Stool To Return To Normal?
Klauren posted a topic in Coping with Celiac Disease
Just diagnosed, postpartum (8weeks), post surgery and 43. Have been on a gluten free diet for a week - since last Sunday (at least I think I'm gluten free) and still having intermitent sometimes severe pain, extreme weakness, coordination issues/hazy feeling and pale stool that has not improved significantly. How long to wait before worrying that the symptoms... -
ARCHIVED Newly Diagnosed Would Love Some Guidance!
Klauren replied to Klauren's topic in Coping with Celiac Disease
Thanks again! I asked the doctor about B12 and she said my hemoglobin levels look fine? I had iron infusions at the end of my pregnancy and that seemed to bring up my hemoglobin and ferritin levels. The dr said the only things that were "off" were liver and carbs looked crazy high. She said that would all correct itself after I was gluten free for a while... -
ARCHIVED Newly Diagnosed Would Love Some Guidance!
Klauren replied to Klauren's topic in Coping with Celiac Disease
THANKS ALL! I feel like the Carnation stuff is helping me a lot it seems to go down smoothly, but I am going to try a day without it and see if it helps. I don't know how anyone drinks Ensure, that is the worst tasting stuff I have ever tried - I am determined to get my strength back... but I hope I don't have to resort to Ensure! I guess we all just... -
ARCHIVED Newly Diagnosed Would Love Some Guidance!
Klauren posted a topic in Coping with Celiac Disease
Hi! Have been a guest for weeks, finally found courage to post. Diagnosed a week ago at 7 weeks postpartum after being in extreme abdominal pain and losing weight (all baby weight plus 15 lbs). I am very fortunate baby is healthy. My antibody test was off the charts, highest the doc has ever seen. I've been on diet for 6 days. Not feeling better, very...