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bunzilla

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by bunzilla

  1. UPDATE: I got a call from GI Fri. He seemed to think I was seeking a definate diagnosis of celiac, which I already had through skin biopsy and bloodwork. He said there wasn't enough material for diagnosis. The lab couldn't get the sample to "lay out right"?. I restated that the only answer I was seeking was in regard to possible cancer. He did say that...
  2. Thanks for the input, I should mention that the day of the procedure GI did say that it was definately positve for celiac. He showed me a pic of the damage to the duedonum? So having celiac is not the issue, I do, and I carry on. My dermatologist ordered the test to biopsy for cancer because of the increased risk. I am leaning against having it done again...
  3. I had an endoscopy six weeks ago. Before I had it done I talked to the surgeon about the fact that I was already diagnosed with DH through blood work and skin biopsy from a dermatologist. I specifically told him I already knew I have celiac and needed to have biopsy done to rule out things like cancer. After surgery GI said I should get results in a couple...
  4. It sounds alot like my initial symptoms. Although I was 49 when it first appeared. It started on one Knee. Of course at first I had no idea what it was. It later spread to the other usual places. I had no intestinal symptoms that I could associate with it. Diagnosed through blood test, skin biopsy, and endoscopic biopsy with DH and, of course, celiac....
  5. After being diagnosed in Feb 09 I have had many ups and downs. I don't believe I am feeling sorry for myself. It is somewhat of a relief to no what was causing my terrible itching...DH.. I usually consider myself a happy person. I accept my fate and must move on. However, for awhile after diagnosis I would randomly break down once or twice a day. Something...
  6. My dermatologist said it would work reltively quickly, as little as five to seven days. I have heard of some people takeing it without any problems. I was doing great for a couple weeks then began to feel fatigued about 2 hours after taking it. After 3 weeks on 75 mg. I was a zombie. I decided the itch would be better than the dapsone reaction, and the itch...
  7. I just made meat loaf for the 1st time since being gluten-free. I think it turned out really well. All it did was crush some Rice Chex cereal to replace the oatmeal that i used to use for filler. About half a cup of crushed cereal per pound of hamb.
  8. bunzilla

    ARCHIVED Dapsone

    update: I took the dapsone for about 3 weeks total. I was doing so good I went from 75 mg. a day to 50 mg. after 5 days I had a minor outbreak. Two blisters on my elbow and a couple on my rear end. I went back to 75 mg. and the second day I started to feel really fatigued, especially around 2 hours after taking it. The next 2 days it became progressively...
  9. bunzilla

    ARCHIVED Dapsone

    I'm new to this so any help is much appreciated. I was diagnosed with DH about ten days ago by having a biopsy on my arm and bloodwork. I did begin eating gluten free even prior to test results. I was given a perscription for dapsone with instructions to start with 3 a day and work my way up each week to a total of 6 a day (25mg. each). Even before I started...
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