balmerhon

My 3 yo son's blood work came back negative. He had an endoscopic biopsy and that also came back negative for celiac. BUT they did find allergy cells (eosinophilic colitis). This is despite his RAST tests coming back negative as well. We did 2 weeks of gluten free with no change in his symptoms (diarrhea). This was prior to the endoscopy. We're now doing...

Did he take biopsies? That's the only way to 'see' if there is celiac damage - under a microscope! Even then, false positives are common in the under 5s. If you look at some of my previous posts, you'll see my son had negative blood work and biopsies. But they did find allergy cells. So right now we're looking at allergies. But if nothing pans out...

Thanks for your input, JoAnn. I will certainly bear that in mind as we continue to progress through the diagnostic phase. I'm told that if it's a milk allergy, he should show improvement within 3 weeks. We're going to try that and if there is no improvement, we may try gluten free again down the road - and stick to it for longer than 2 weeks! I should...

FWIW, I spoke to the dept about false negatives in young children. They agree that this is certainly a problem. That said, this is Dr Fasano's dept. If any place is going to get it right, it's going to be them. Of course, that doesn't rule out intolerance or an allergy to gluten. But at this stage, I do have to put my trust in one of the best depts in the...

I am aware that false negatives are a problem for young children. How is an elimination diet more difficult than going gluten and/or dairy free? We've been advised to go milk free. Fortunately, many of the foods DS eats are already milk free. We seem to be lucky in that a lot of the breads/crackers he likes don't have it. DS does not LOVE any food except...

Well, according to the endoscopy, he does not have celiac. He has allergy cells present though. So now we have to start food elimination while we wait to see the allergist. JoAnn, we have AI in my family, too. My Dad died from complications due to scleroderma. We've got other diseases as well. So even though we were told no celiac, I'm still very aware...

Don't get me wrong. I totally agree the pharm industry is out to get every cent they can. One thing that totally blew my mind upon my return to the US this year was all the pharmaceutical advertisements on TV. Frankly, they should be illegal. That said, I still wholeheartedly believe that for some, medication is necessary and the research to make it hugely...

I just saw this thread after reading the article in SA. I cannot BELIEVE any of you would object to a pill that would help with celiac. My son has not been diagnosed (we get results of his biopsies tomorrow - all blood tests are negative). If he has it and there were a pill that could help in any way, I would be SO grateful. Why? Well first of all, because...

My son tested negative twice for celiac (he's now 3 and a bit). He just had an upper and lower endoscopy this past Tuesday. We'll have the pathology results in early August. DS is average on height but skinny as a rail (he can wear 18 month size shorts/pants). He weighs 25lbs. He has very soft poop but is prone to diarrhea. He has a bit of reflux but no...

Sorry I'm late to replying here. The clear diet/miralax is standard here as far as I know. They were also checking for more than celiac, so that might have something to do with it. Just in case anyone else ever has this problem... When I talked to the doc, they had us try magnesium citrate, which also was refused (my kid is nothing if not consistent...

And his endoscopy is Tuesday! We started him on it today, along with the clear diet and he's pretty much refused it. He was supposed to have 3 doses at 4, 6 and 8 and I've barely got one in him. I'm going to call the doc tomorrow but thought I'd see if anyone else has any ideas. DS only drinks milk and water usually. I tried the Miralax with juice and...

OK, just had the red food thing confirmed. Can anyone else tell me what else to expect?!

My DS (3 years old) is going to have an upper and lower endoscopy on 21 July at Univ of Maryland. Starting 2 days before, we have to put him on a clear diet. They didn't tell me anything more than that, but someone told me they thought that no red foods (jell-o, popsicles) were allowed. Anyone heard that? What did you feed your child? He'll also...

It's ok. Yes, he's been tested for CF and it was negative.

To recap quickly, my DS was seen at the Univ of Maryland for persistent diarrhea and failure to thrive. He is 3 years 3 months old and weighs 25lbs. His height is average and his BMI off the chart low. Aside from being skinny with diarrhea, he is happy and energetic. No tummy pain, etc. All his tests came back negative for celiac. He has not had...