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Foxfire62

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Foxfire62

  1. Foxfire62
    Check your iron/vitamin levels. The typical vitamins that celiacs become deficient in are iron, B12, folic acid, and vitamin D, just to name some of the main ones. But there could be others. As for your biopsy, going gluten-free could guarantee a negative results when they biopsy your duodenum. Recommend you go back on a gluten diet at least 2-4 weeks...
  2. Foxfire62
    After dx, begin a gluten-free lifestyle. Depending on severity of damage, intolerance to other allergens and protein/fats may occur. I would recommend you have dr. run blood panels a couple times a year until healed, and at least annually after that. I would recommend another biopsy to confirm healing at least 1 year after dx.
  3. Foxfire62
    I have been on a gluten-free diet since August 2008, and I'm still not 100%. Although I am now able to tolerate yogurts, I still have some problems with lactose. I am also having problems digesting protein right now, which is causing me constipation. My intestinal damage went to severe blunting to mild blunting. I'm improving, but I'm not there yet. It...
  4. Foxfire62
    Do NOT go on a gluten-free diet until after your biopsy!!! Should you have celiac disease, depending on severity of damage, going on a gluten-free diet can produce inaccurate results. Stay on a gluten diet until after the procedure.
  5. Foxfire62
    I know for a fact that doctors don't always take random biopsies of your intestines as a normal procedure. About 2 years before I was diagnosed, I was scoped, but he didn't even think to look for celiac disease and just checked my stomach. The only reason it was discovered I had celiac disease was because last year I mentioned that I was going to get tested...
  6. Foxfire62
    He can get gene-tested, if he's that paranoid. Otherwise, remind him of the implications of having the disease and not doing anything about it. I was 45 when diagnosed, and lately, my recovery has been extremely difficult. In fact, I am hypoglycemic and need protein to cope, but I can't properly digest protein at this time because my intestines are not yet...
  7. Foxfire62
    I think I had reaction. I'm not sure. But ever since eating them, I've had health issues with my intestines. I'm staying away. Better safe than sorry.
  8. Foxfire62
    Only way to know for sure is a biopsy. Only way biopsy will prove you're celiac is if you've ingested gluten. Difficult to say either way without ingesting gluten and getting tested.
  9. Foxfire62
    Only biopsy can determine 100%. Go on a gluten diet and get a biopsy. I think you'll need to be on gluten for at least 2 weeks. Good luck!
  10. Foxfire62
    There are so many different symptoms for celiac disease...don't just believe the typical ones. Have you had your iron levels tested? That could explain exhaustion. But the constipation could possibly do that too, because this can potentially make the intestines and heart work harder making you more tired. Get a full celiac blood panel immediately. In...
  11. Foxfire62
    You're never negative with celiac disease until you've had a biopsy of your small intestine. You appear to have classic symptoms for celiac disease. That doesn't mean it is celiac disease, but you have to be biopsied to rule it out. I would recommend scheduling an appointment for this, and don't let the GI doctor tell you no! If she/he does, find one...
  12. Foxfire62
    Wow! I went through a lot too, recently, so I feel for you, especially when you're thinking you might be dying! I am suffering from constipation. Used to, my bowels moved on a regular basis. However, since becoming a celiac, they no longer do. Since celiac disease can suddenly be brought on by surgery, injury or stress, I have a feeling mine was brought...
  13. Foxfire62
    Get checked for celiac disease as well. You might not have it, but it's worth testing for it. Be sure to have tTg and IgA levels checked as well as small intestines biopsied. Do not go gluten free until you've been tested. You could also be suffering from hormonal imbalance. You might want to go to an endocronologist if you haven't already. Also, if you...
  14. Foxfire62
    Has anyone else ever had any problem with properly digesting meat or egg products and constipation as well as burning in the throat or even heartburn?
  15. Foxfire62
    The most difficult thing to do is stay on a gluten diet for at least two weeks and get a blood test and then biopsied after the results of your blood test. If you are not on a gluten diet for a longer period of time, test results will be negative. If you're a celiac, having a full celiac blood panel and an intestinal biopsy are the only ways to confirm...
  16. Foxfire62
    If you're gluten-intolerant or a celiac, then it's essential to stay away from gluten. If you're occasionally still enjoying it, then it shouldn't be a wonder that you're having episodes. Depending on your sensitivty to gluten, even a crumb might affect you. If you're a woman and in her late 40s/early 50s, it could also be hormonal, or you could be hypoglycemic...
  17. Foxfire62
    I don't want to appear unsympathetic to you, but I kind of am. Can you imagine how your partner must feel? I can. Do you know how hard it sometimes is that you cannot enjoy the same foods everyone else can? Do you understand how different life becomes after finding out you have to follow a gluten-free diet and have to be so extremely careful, because if you...
  18. Foxfire62
    Did they do a full blood panel to test for celiac disease? Did they biopsy the small intestines to look for villi atrophy? If yes, and nothing was conclusive, you could have Crohn's disease, ulcerative colitis, celiac disease, MS, or an intolerance. Probably the best thing to do is stay away from all things gluten, including anything made from wheat, barley...
  19. Foxfire62
    I've been to soooo many doctors, and no one can find anything. The one good thing is, since going on veggie/fruit/salad diet yesterday, I had an un-assisted BM. Not only that, but I'm feeling pretty good today. I can only hope it stays. We'll see. I'll keep it up the next few days and see what happens. Maybe my intestines just aren't healed enough yet to...
  20. Foxfire62
    I've been to soooo many doctors, and no one can find anything. The one good thing is, since going on veggie/fruit/salad diet yesterday, I had an un-assisted BM. Not only that, but I'm feeling pretty good today. I can only hope it stays. We'll see. I'll keep it up the next few days and see what happens. Maybe my intestines just aren't healed enough yet to...
  21. Foxfire62
    Good idea to check, but when I was going through the worst of my symptoms, they checked for that. Everything came back ok. I went on my salad/veggie/fruit diet yesterday. I had an un-assisted BM this a.m. Very encouraging. Not only that, but I feel fantastic today. Could I be too happy too soon? I don't know. However, if I continue to feel better, then...
  22. Foxfire62
    About 15 years ago, I was a vegetarian. I never felt better! Unfortunately, I began eating too one-sided and became anemic. But before I did, I felt so good. Only problem was that I was constantly having thin stools. Fast forward to now. I am trying to drink a lot of water, but when I'm backed up like this, it makes symptoms worse and puts acid or air...
  23. Foxfire62
    Sounds like you could potentially have celiac disease. Did a doctor adminster bloodwork that would look at your tTG IgA levels? If not, it would be recommended. Even if that comes back negative, it would behoove you to get scoped and a biopsy of your small intestines. Only this can rule out celiac disease. Should you have the biopsy done, please do not go...
  24. Foxfire62
    I was dx w/celiac disease 8-8-08. I went on a gluten-free diet immediately and began to slowly feel better. The beginning of this year, I started feeling full. In April and May I went through various bodily reactions to being backed up/constipated until I discovered most of my problems were back-up and hormonally related. Tried different things to rid myself...
  25. Foxfire62
    Would recommend not going on gluten-free diet quite yet. Unless your biopsy was of the duodenum and showed that your villi had no blunting, I would remain on gluten diet and get biopsy of your duodenum to rule out celiac disease. You noted that you have had CT scans as well. Did you have a CT scan of your gallbladder? If not, I would recommend. You might...
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