dedeadge

JosieDaisy, I have a 15-yr old daughter who was diagnosed w/ celiac disease 13 months ago and has been gluten-free since. Before she was diagnosed, she missed several weeks of school a year. In the 7 months she's been in 9th grade, she has only missed a few days, which is a huge improvement! So, when were you diagnosed with celiac and have you...

Can you provide more information, or a website, regarding this CSA conference in Minneapolis this summer?

Don't accept the "it's not Celiac" so easily. It took 4 years to finally diagnose my now 14-yr daughter with Celiac (literally diagnosed today). It started with bone injuries/fractures, then joint pain, muscle pain, abdominal pain, failure to thrive, irritability, chronic consipation, frequent headaches (which developed into migraines after more than a...

I failed to mention that my daughter is being tested (again) for celiac. She needs to be on a high gluten diet for three months in hopes that she'll be "ripe" when she undergoes another EGD.

13-yr old daughter needs to be on a high gluten diet, specifically 1 Tbs gold medal flour a day. She's not a sweet eater, so she doesn't want me to bake her anything. She's eating bread, pasta, etc., but the doctor also wants to add flour (how, I'm not sure). Appreciate any suggestions.

Definitely call your doctor and ask for additional information. An inflamed esophagus could be many things, two of which are acid reflux and Eosinophilic Esophagitis (EE), both of which can cause inflammation (my daughter has both). Ask him specifically if they did a biopsy of the esophagus and if they tested for the # of eosinophils (anything higher than...