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6ft6

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  1. I lost my job Monday. I received a severance at leat, but it won't be easy to find something new. It was really awful for several months. A re hostile workplace situation with no accommodation of my illness. I can now focus on my health instead of the fear of job loss, but this really sucked. All of you out there hang in. 6ft6
  2. i've had the same experience as the original poster at two different locations. i don't go there any more.
  3. I know exactly how you feel and you are not alone. Are you on any medications, prescription or over the counter? I keep having problems of pharma companies change their formulation or generic mfg provider and then a drug that was safe starts to make me gradually worse and worse and worse, until I can't even stop the tremors or even get out of bed. I've been...
  4. 6ft6

    ARCHIVED Neuro Symptoms

    I have severe neuro symptoms: twitching, sweating oil, ataxia, weakness, tremors, vision problems, brain fog, difficulty breathing, severe foot pain, numbness and tingling in hands and feet, maybe others i can't think of right now. I fall over in the shower sometimes when I close my eyes to wash my hair. I was going to a "celiac specialist" at a prestigous...
  5. I'm right there with you. I literally cannot force food down when i have a full on attack. Last week i had symptoms every day for 6 days. My neuro problems were so bad i couldn't get up the stairs. I didn't eat any food for three days. All I could do was lay in bed and twitch and sweat oil. I stopped taking my blood pressure med, ate only raw food, and...
  6. Hello All! I'll try not to be angry, but I'm near my very last inch of coping with this. I've had at least 4 generic and 1 brand name medication gluten the daylights out of me. Bystolic was the first one. It was gluten free when prescribed, but they changed the pill and I was on getting dosed for two weeks after getting a refill before I figured it...
  7. Hang in there. I've been on the roller coaster for 18 months since my diagnosis and there are times when i really have felt like throwing in the towel. But it passes and you start to feel better gradually. I found that a round or two of steroids after a serious bout is the best way to get things going in the right direction. If your doctor won't do the...
  8. I started having random problems and I am ultra careful. My workplace changed the hand soap in the bathrooms. It has vitamin E added. Ingredient: tocopherol. Now I have to use my own hand soap. Tocopherol is in everything and if it is not indicated that it was derived from something other than wheat, don't use the product. Also, look out for soy and...
  9. the mainstream peanut butters are hit and miss for me. i eat it one time it's fine, another jar and i'm sick. i put it down to the soy now that have had a couple of gluten free, celiac friendly products that gave me symptoms. only common denominator was soy. it seems worse than gluten to me.
  10. I can count on Amy's to make me sick every time. So now I don't buy the products. I despise the ccompany.
  11. Hello all, I've been a lurker since my diagnoses 16 months ago. Was positive for blood tests and biopsy. I initially improved quickly, like many of you. But alas, the severity of the problem has greatly increased, to the point that when i get exposed (glutaminated) i usually don't know what it was. Things other people here use make me ill for two or...
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