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Harley0000

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    New York

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  1. oh.. Thanks for the explanation. I had no idea what that comment was all about.
  2. Ok.... my brother in law is into holistic medicine gave me a bottle of these pills with the best of intentions.... They are NOW Gluten Digest. The bottle says they help digest gluten but the warning says in bold: If you have Celiac Disease - do not use unless under a doctors care. I'm positive for Celiac (blood test and endo) so I am not trying anything...
  3. Hello BEfore I got diagnosed (positive blood & endo) I went to my doctor with a great number of symptoms that I had never had before; one being a severe pain on my left side under my rib cage. After being told I did have Celiac, he also said that I had a virus. I never heard of this so I am just quoting what he said. "a virus can cause imflamation...
  4. Its good to know I'm not the only one. It's funny that the left arm is the only one that gets affected. I felt stupid telling my Dr that before I knew what was wrong but it was always only the left arm! Do you ever suffer from the chest pains? It mimics a heart attack with the left arm, chest pains and before it was really hard to breathe. I had gastritis...
  5. So after being gluten-free for three weeks I got glutened last night. (small bowl of frosted flakes before reading "malt" and one small bite of regular mac and cheese). I have been so careful for three weeks and am starting to notice the positive side effects until screwing up yesterday. (I wont make that mistake again). Anyway hours into the day I noticed...
  6. I agree that she must not have been very knowledgable on Celiacs because what I have read on here over and over and read in other places is: If gluten-free makes you feel better than do it. Its not like taking meds for a condition you dont have but simply taking a specific thing out of your diet that you know bothers you. You made alot of sense with the...
  7. Hello I have Celiacs too and have been gluten free for three weeks. I accidently got glutened yesterday for the first time since going gluten free and I could not beleive what happened. I started out with a headache that gradually got worse throughout the day and by the time I went to bed last night was a full blown migraine and I was quite sick to my...
  8. Those are my thoughts as well. Will a blood test be negative if you have a sensitivty to gluten but not actually celiac disease? Did I mention that the Dietician does not have Celiacs? No disrespect but she doesnt know how bad it can get and if giving up gluten can fix the problems, I have to disagree with her. Thanks so much. I just wanted some opinions...
  9. Yes my thoughts exactly. I complained when I found out what I was diagnosed with but once I started feeling better (very recently) I wouldnt go back now. A one year old with celiac disease? Oh my. That must be tough. Poor little thing. Best of luck to your lil sister Harley
  10. I am with you on that for sure. Its like if you know lets say chili does not sit well with you then.... dont eat it and I think that would be the same for gluten. My husband (unfortunately) refuses the gluten-free diet because he tested negative. I personally think he is just in denial but I cant force him to eat what I am forced to. All I know is I have...
  11. Hello Everyone I was diagnosed with celiac disease with a positive blood test and Endoscopy and went to a Dietician for some advice. What she said struck me as odd and I wanted some of your opinions. I was asking about my husband having similiar GI issues but he had tested negative (blood test only) She said that people who have not had positive diagnosis...
  12. Hello I had the same problem and had not yet been tested for Celiacs. The hard to breath feeling was accompanied by that extremely full feeling and heartburn. When they did my endoscopy (positive for celiac disease) they found Gastritis & esophagitis (sp) which are both inflammation of the stomach and esophagus. GI dr said it was most likely brought...
  13. Hi Kristen Its good that you have started to feel better...finally. It really is frustrating when you seem to be doing everything right and you still feel bad. Sometimes I think maybe I should just say the he** with the positive diagnosis and eat what I want (since I;m feeling bad anyways) but then the rational logical voice deep in my head says " DOnt...
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