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mela14

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Everything posted by mela14

  1. mela14
    thanks for the info......but need something now and the only thing in the fridge is Mylanta gas (I threw out the gas-x)....I'm thinking it is not gluten-free......I will try looking on the drug list. does anone else out there go through bouts where everything bothers them? I can't seem to get this to calm down! Every day it's just one thing after the other...
  2. mela14
    Maybe you can prepare food in advance for her to take with her. also, you have to insist with your parents that they not give her things that her body can't handle. If they can't do this then you have to think about your daughter's well being and stop the visits. In time they will miss her and probably realize they have to change their ways!! I'm sure they...
  3. mela14
    I'm thinking that it was the egg more that that ice cream. There have been times when I've shared an icecream with my husband and no problem. I actually had 2 teaspoons...and started to feel sick within 20 minutes. Eggs have been making me really sick lately....the whole body thing...nausea, bloating, headache etc. Just a real sick feeling so I've been avoiding...
  4. mela14
    I had abdominal pain and distention all the time. The way it was explained to me was that there were little islands of endo that flared up here and there. i did have heavy and painful periods so I guess that's why they thought endo.Also about 10 years ago I had an ovarian cyst that ruptured..(that was torture)..they said that some endo could have implanted...
  5. mela14
    yesterday I had 2 teaspoons of ice cream as desert. At my Dietician's suggestion I had it with Lactase (by Solgar). I thought I was safe...I had stomach pain and bloated and nausea from that small amount. When I looked at the ingredients for the lactase it said: mannitol,microcrystaline cellulose, guar gum, natural vanilla flavor(powder), vegetable magnesium...
  6. mela14
    How would I go about getting that information? I tried to call one of the drug companies regarding another medication and got nowhere. I called the pharmacy and they were not very helpful. Actually they were upset...but in the end they faxed me the ingredients for the meds(imitrex and xanax) .....it looked ok... So at this point I have to go with the way...
  7. mela14
    From your mouth to Gods' ears Tom! There are times that I am so wiped from trying to get better that the only thing that I could do is "be sick". It requires less energy...It just happens. Getting better ...on the other hand is a lot of hard work! Someone passed a comment to me once that I ran to too many different doctors! I thought about it and discussed...
  8. mela14
    Thanks Stef.... I have to just keep doing what I am doing and hope that with time things will heal and get better. What other choice do we have? there have been times that my gut just felt saw raw!!! yesterday was one of those days.....meds don't sit well with me. OK.... gotta stay focused! thanks for the positive feedback.
  9. mela14
    I've also been going around in circles with doctors. I kept losing weight,(went down to 89 lbs) had terrible daily migraines, diahrea, muscle pain, joint pain and at one point I was so sick that I wound up in the hospital! I had a rapid heart rate, thryoid was fast and all the above syptoms. I was told it was a flu. They gave me IV fluids and asked if I...
  10. mela14
    I'm originally from Brooklyn, NY but moved to Manalapan, NJ in 2000. I lived there for 2 years and then headed south to Florida! My husband just misses is so much that we are moving back up to NJ (same area) Where are you from?
  11. mela14
    Thanks stef, I think I'll just steer clear of it for now. It just doesn't work for me. I was so sick from it that it's just not worth it for me. Thanks for your help though.
  12. mela14
    ok..i'm throwing out the gas-x!!!!! is there a list somewhere that I could check on durg ingredients?
  13. mela14
    Are you avoiding sugar too? What yeast killer pills are you on? do you take a probiotic as well. If so...which one. Just curious...if it helped you...maybe it can help others. Thanks,
  14. mela14
    Hi Tom, Could you tell me more aobut the DNA test? I had a few different blood tests after they found Gliadin AB (IgG) to be very high. The other tests were normal. I also read somewhere that if you have an immune deficiency (IgA deficiency) then those other tests would not really be valid. Well, I fall into that category as I have Primary Immune Deficiency...
  15. mela14
    I've read before that gas-x has gluten. I wanted to take one yesterday but then thought again and checked out the ingredients. I don't see where the gluten is. It's actually a generic form of extra strength gas-x. What should I be looking for in the ingredients?
  16. mela14
    Do you think it could be the peanut butter? when I first started on the gluten-free diet (3 weeks ago) I went to a dietician and she wrote down the things that I could have and gave me a book to keep a food diary. It is the BEST thing I am doing. I have found so many food intolerances this way. Peanuts and soy are definate NO-NOs for me. When I look back...
  17. mela14
    Thanks for the buckwheat advise. I will definatey never have it again. I remember it made me sick years ago before I even knew what was giong on with me. In doing some research on line...it was listed with foods to avoid. I should have known. thanks,
  18. mela14
    There's no way that I would be able to continue eating gluten for the test. You'ld have to wheel me into the hospital. That's how sick I would be! I get soooo sick when I accidentally have it. please let us know how you make out. Thanks,
  19. mela14
    Stef.....thanks for the info on Wegmans. I am moving back up north in a few months and wegmans is right near me. I used to shop there all the time and it's good to know they have some celiac stuff. Thanks,
  20. mela14
    Ater reading your post I see so many similarities. I'm sure we all do. I am still in the learning stage but would not mind sharing information with you. I see that you are from Pompano Beach. I live in Aventura and do not have a doctor here yet so if you find someone please let me know. I'm originally from NY and have only been here about 2 years...I have...
  21. mela14
    Karen, Thanks for the quick reply. Unfortunately, I had a total hysterectomy 2 years ago. I wish I would have waited but the pain from the adhesions was sooooo bad. They said I probably had adenomyosis too but the pathology reports for ALL my sugeries was negative for endo. When they did one of my first laps they accidentally severed an artery which was...
  22. mela14
    I was also diagnosed with fibro and chronic fatogue....all post viral...before I learned of my gluten intolerance. They only thing gave me (for years) was different meds(pain killers, etc) and nothing helped. I can see a direct correlation between the pain and gluten. It's probably due to the fact that we don't absorb necessary nutrients porperly. I...
  23. mela14
    I was diagnosed with gluten intolerance about a month ago have gone gluten-free with the exception of a few slips. My gut is still having a rough time and I am seeing a dietician to help me with my daily dietary challenges. I am still experiencing GI problems, headaches, muscle pain and fatigue whenever accidentally ingesting gluten. I've also discovered...
  24. mela14
    Where can you check medications against the gluten free list? I was given axanax by my dr and got deathly sick on it. frst heart palpatations, then sweating, dizzy, weak, sour tummy and gut. i felt like i had swallowed poison. I was out of it the entire next day...non-functional and in bed. I definately reacted to something in it. I am also soy, egg and...
  25. mela14
    How can I go about doing the York Test/ does a dr need to order it or can I do it myself. any information is appreciated as i have lots of food allergies that I am finding out about through a food diary and working with a dietician. Too bad she doesn't know more about gluten. mel
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