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mela14

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Everything posted by mela14

  1. mela14
    Dairy could definately be a problem as it is with most celiacs. It's been about 5 months for me and I am still trying to fine tune my diet. Give it time and make sure you scrutinize everything. gluten-free can ony help you to feel better. Hang in there!
  2. mela14
    It's much easier when you can make your own food. This way you know exacty what you are getting. It takes the guessing out and there's less risk of accidental ingestion. You'll have to get into a routine of making your wond food ahead of time and bringing it for lunch and snacks. Good luck!
  3. mela14
    I think you were gracious enough! Don't sweat the small stuff...i'm sure it was a lovely gift but imagine how your boss would have felt if you ate them, got sick and then couldn't go to work! I'm sure he would be upset that he didn't put more thought into the gift he gave you. I think you were very polite!
  4. mela14
    I just started to question my body creams. I've been trying really hard with my diet and have been having other dietary challenges. Last night I decided to take a hot bath (a quick 5 minutes!) and the put on this new body lotion I got for my birthday. i wasn't having body pain but woke during the night with horrible muscle pain and a migraine. The only thng...
  5. mela14
    We are all still learning so don't beat yourself up! Everyone has different reactions. I get the gut pain but worse of all is the body pain, fatigue, vertigo, racing heart. Sometimes gluten will just slip in there but as we learn to scrutinze it will get better. Another thing I learned is that you can get it from lotions and creams. At first I thought...
  6. mela14
    thanks for all the information. soy is a big killer for me! Dairy and eggs do me in too. they just make me so sick...but soy destroys me! The bread that I have been buying has none of those ingredients. It is made with white rice flour, yeast, guar gum and a few other things. I am making sure the tuna or canned things don't have soy either...so far so good...
  7. mela14
    I just spoke with the nutrionist at Columbia. She said to stop eating the rice as she feels that I am reacting to it. She said that we can try to bring it back a little bit at a time later on. she said that I need to be more diligent with reading labels and avoiding gluten regardless of the test results. She said that she has several people who tested...
  8. mela14
    I just got off the phone with the Nurtionist. that partiuclar flavor of Rice Dream Frozen Desert is gluten-free....some of the others are not. I checked before I bought it. anyway, after speaking with her for 45 minutes, she said to stop the rice for now. It is too much for me and I am reacting to it. It also showed up on my food allergy testing (done by...
  9. mela14
    Whenever I ingest gluten or anything else I am intolerant too my heart races. It happens right ater eating it and takes a while for it to go away. I get light headed and dizzy. It's a weird feeling! I usually make my hubby put his hand on my chest to see if he feels it too! most of the times he does.. I think it's all part of the "allergic reaction". I...
  10. mela14
    I have been having such challenges with my diet. I have been trying to keep a balanced diet and actually have a good appetitite. the things is that I have been running into a lot of trouble with different foods. I posted last night in the medications sections about Zelnorm. I thought that it was too aggressive and making me more bloated. I then took a...
  11. mela14
    After having a terrible night sleeping.......this morning is a killer but I am racking my brains out trying to figure out what happened. I did not take the Zelnorm this morning but after much though I realized that I did not add that I had white rice with my dinner last night! I haven't had it in so long and now I remember why........it was making me bloated...
  12. mela14
    Does anyone have any experience with Zelnorm? I was taking half of the recommended 6mg dose once a day. It seemed to be ok. I then upped it to 3mg twice a day. I was cutting the 6mg pills in half as per dr instructions. He actually wanted me to go back to once a day after my symptoms quieted down a bit. Here's the problem....I was away for a few days...
  13. mela14

    ARCHIVED Nj Nutrionist?

    mela14 replied to mela14's topic in Doctors

    How have they helped you? How do you take them? What do they do? thanks, Mel
  14. mela14
    hi westie, thanks for answering....so you had the gene testing done through Enterolab...at your endocrinologist's orders. Ok.... i had the gene testing done at Columbia through a blood test. They tested for 2 celiac genes. both were neg. maybe it's not as specific as the stool test. I am see the nutrionist tomorrow...then a nuerologist next week. My fibro...
  15. mela14
    thanks westie, I will email enterolab and discuss the gene testing with them. You said that you had positive antibodies (which I also have) and positive gene. Was the gene testing through Enterloab or your endocrinologist? I am still feeling so poorly and don't know who do go to. I have an appt at Columbia with the Nutrionist there this Tues and then and...
  16. mela14

    ARCHIVED Nj Nutrionist?

    mela14 replied to mela14's topic in Doctors

    I'm curious as to what happened to your next door neighbor? Dr Lee even suggested that I could be getting intestinal infections because of my poor immune system. She said that most people do not react to the small amount of bacteria on food but that I could be getting sick from the tiniest amount on MY food. not sure what to think anymore. So many on this...
  17. mela14

    ARCHIVED Aaaaaaaaaack

    mela14 replied to aljf's topic in Coping with Celiac Disease

    Getting sick on purpose makes no sense to me. I reserve those times for when I am out and accidentally get hit with something! My husband threw me a surprise bday dinner this weekend. it was so nice. I made sure I spoke with the waitress and ordered my plain food while everyone else had this beautiful meal. I was so proud of myself for doing so well and...
  18. mela14
    Thanks for all the helpful information. I think that the next step would be to test with Enterolab...just for my own peace of mind. I am still continuing to be gluten-free regardless of what the drs told me. I just don't feel well when I have it. It's just the fine tuning that needs work and avoiding the many other intolerances! I called Columbia Presb...
  19. mela14
    I may do the Enterolab testing but then again I already know that I feel sick when I eat gluten. I may be one of those that don't have the gene but still have the horrible intolerance to it.....along with other intolerances. thanks for the support.
  20. mela14
    As a lot of you know I got my results form Columbia presb. I "do not have the celiac gene so cannot have celiac disease". I was told this by Dr Lee there. Just curious what you guys think. I had the genetic blood test done by her last month which was about 4-5 months after going gluten-free. I also had a biopsy done at the same time which was negative...
  21. mela14
    Thanks Judy, I too had positive York results for corn. The thing is that when I eat corn for dinner I don't get sick. So I tried with organic plain popcorn and did not get sick either. When I had the Orville Redenbacher popcorn I became violently ill for days! I couldn't sleep....I had horrific muscle pain, migraines, joint pain, fatigue, stomach pain...
  22. mela14

    ARCHIVED Nj Nutrionist?

    mela14 replied to mela14's topic in Doctors

    thanks......... it took a while...but I'm calling Ann Lee as we speak(write). I saw her about a month ago for a consult and she was great. i was told that I don't have the gene dr Susie Lee after blood work and endoscpoy so thought it must be something else.......well. I am so sick right now and not sure how reliable those tests are! she said that my...
  23. mela14
    Hey guys, I'm back again and feeling sick all over. As most of you know I got the results to my genetic blood work and my biopsy results. both were negative. They were done at 4-5 months into the gluten-free diet with the exception of some accidents. I had the tests done at Columbia by Dr. Susie Lee. she called me with the results and said the good news...
  24. mela14
    Hey, thanks guys. I finally figured out how to get my picture up! thanks for the heads up!
  25. mela14
    Levsin, gives me migraines.....so I had to stop. Actually anthing that contains hysocomine give me migraines. I haven't been taking anything for it. it seems to be better now. I took a not bath and used a hot water bottle all night........and then hubby massages the area. the next day was better but I DID have to suffer all day while i had it. the dr has...
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