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mela14

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Everything posted by mela14

  1. mela14
    got all my results. dr says the good news is that i don't have celiac! the biopsy and gene test were negative. the biopsy looked good.....i had already been gluten-free for 4 months she said that i could just have an intolerance.....but will never be celiac because i don't have the gene... in any event i still feel poorly and am bothered by so many foods...
  2. mela14

    ARCHIVED Nj Nutrionist?

    mela14 posted a topic in Doctors

    Hi guys, Just looking for someone in the NJ area that could help me with my diet. I have so many intolerances that I just don't know what to eat anymore and lots of foods are making me so sick. My biopsy just came back neg and the DNA was neg for celiac as well. My dr just called to give me the "GOOD" news....I am not celiac (but....I am still feeling...
  3. mela14
    OK...dr Lee just called from Columbia and gave me my results. the small intestine looks good with no damage. The gene testing was neg for celiac so she said there was no way that I could ever be celiac. I said that's great!...but I am still feeling poorly and getting sick after certain foods. she said that i probably DO have food intolerances and to try working...
  4. mela14
    i also had a hsyterectomy...but i think the problem was gluten long before. if i knew then what I know now! I'm glad that you are feeling better. I am waiting for my biopsy results. An and still not feeling better.......but don't think they will show anything. i had the biopsy done 4 months after going gluten-free. I am also waiting for the DNA results....
  5. mela14
    Hi kaiti, I've been questioning my corn allegy. It always comes back a little high but I have been able to eat corn and don't remember a problem...but then again???? I have not been able to have soy in any way shape or form! It makes me soooo sick. Of course this had soy in it. I'm thinking that may have been the culprit. This is all so hard and i get...
  6. mela14
    Does anyone know if Orville Redenbacher Old Fashioned Butter Popcorn is gluten-free? I had some last night while baby sitting my nephews and immediately got sick during the night. All the same sypmtons came back.....headache, muscle pain, fatigue, racing heart. If it wasn't gluten then I think it was the SOY! Soy makes me feel so ill. and of course dairy...
  7. mela14
    Thanks for all the help. so if it is not on the lists then am I to assume it has gluten? If so.....does anyone else know what I can take for Intestinal Spams? Not sure if Levsin or Levbid are gluten-free gut I remember them giving me migraines and I had to stop. Sometimes the spasms are so bad that it feels like a charlie horse in my gut...usually low on...
  8. mela14
    My dr gave me an rx for Librax about 3 weeks ago which I did not fill. Lately I have been in such a flare and my IBS is acting up. It actually feels like my intestines are clamping shut on me in the lower left corner! Boy is it painful! Anway, it is throbbing all day and I can actually see a lump on my body where it is in spasm. Maybe I should have filled...
  9. mela14
    Kimberly, Waht else doyou put in the mix. I see that you are also dairy free. Are you ok with eggs? Where can you get that mix..........I'm really in the mood for a piece of chocolate cake. thanks
  10. mela14
    Just reporting back that my experience at Columbia Presbyterian was exceptional. The nurses were kind and considerate. Dr Susie Lee was just sooooooo pleasant. I forgot what it was like to have drs on your side and show some concern to their patients. I was actually treated like a person by all at the hospital starting with the receptionist. After the biopsy...
  11. mela14
    Hi guys and thanks for all the responses and well wishes. I am ready to hit the sack as get up early to go to Columbia tomorrow morning. I had a good eating day today. I was famished and felt like I was eating all day. I made Turkey soup and it actually came out good. After spending much of the day crying because of not feeling well (fatigue, muscle pain...
  12. mela14
    I finally made it to Columbia Presbyterian yesterday. I had a really good meeting with Anne Lee the nutrionist and learned some more. I then saw dr Susie Lee for my consult. I told her what had been going on and she suggested a gluten challenge and the doing a biopsy a few weeks later. I told her that I would not have the gluten as it makes me feel worse...
  13. mela14

    ARCHIVED Doctors In Nj

    mela14 replied to Hearts's topic in Doctors

    I saw Dr Zalman Schrader about 4-5 years ago. I was loosing a lot of weight and had diarhea all the time. I felt so sick and someone referred me to him. I really liked him and his bedside manner. I was referred to him by my allergy drs nurse. She thought I had Giardia because she had it and he diagnosed it. When I went to see him....I was 89 lbs and feeling...
  14. mela14
    Thanks for all your responses. I wish I could say that I felt better..........but I just don't. Between the fatigue, muscle pain, racing heart and of course the gut pain I don't know what to do to feel better. I went to Columbia Presbyterian yesterday and saw Ann Lee and Dr Susie Lee. Both very knowledgable. I felt I was in good hands. A lot was discussed...
  15. mela14
    HI Leslie, I broke out with hives just as you described on my torso and up my neck the other day. It came out the same day after I woke during the night sick to my stomach from being on the Nystatin. I was probably killing off too much yeast too. I spoke with my new homeopath yesterday, which was very nice of her to talk with me on the phone for half...
  16. mela14
    We all need reassurance. That's one of the good things about this board. We've all gone through our own hell and we can all relate. Hang in there. Things will get better. We just have to learn exactly what our bodies can tolerate. If people don't get it...it's their problem. I just got off the phone with my brother and he said "your number one priority is...
  17. mela14
    Hi Leslie, where is your dr located? I recently moved to NJ. It's weird that you mentioned hives. I am on the Nystatin about a week now....very small dose .... After I took my pill last night I woke during the night really sick to my stomach and weak. I had horrible muscle pain. I couldn't sleep my head was pounding so much. I couldn't even go out today...
  18. mela14
    Hi Deb, Thanks for your help. A lot of what I read on those 2 website makes sense but I have to tell you I had a mild anxiety attack reading it....especially on a day like today when I feel soooooo poorly. About 2 weeks ago I took ativan.......it was the day I was flying in from FL to NY. When I got to mom's and tried to get to bed I couldn't sleep because...
  19. mela14
    Hi Leslie, I'm dealing with both Candida and celiac too! I can't seem to get a handle on it. how did you address the Candida? What herbs did you take? I am at the end of my rope and reacting to everything. I started questioning the Nystatin that I was taking but it IS gluten-free. Maybe it is the corn starch in there as I tested positive for corn allergy...
  20. mela14
    I've been trying to figure out what is making me so sick in my meds. I am examining everything. I then noticed that a lot of my meds have corn starch in them. A few times I noticed right after taking certain meds I would get sick. Even those that are gluten-free and I would be sick for days. Today is one of those days! I was up all night sick to my stomach...
  21. mela14
    Well, Teva Pharm just contacted me and told me that Nystatin is gluten-free! It is made with corn starch. I've been starting to question my allergy to corn. I never thought I had one but all of the blood tests and the York test came back postive for corn allergy. Could this be making me sick. Has anyone else had a corn allergy and reacted to corn starch...
  22. mela14
    I've been taking generic ativan and not sure if it is gluten-free. I can't seem to find the manufacturer but have been feeling sick. I am also taking Nystatin by Teva Pharm....I can't get any information from them either. I check both meds on the gluten-free drug list and neither are on there. they DO list lorazepam which is generic ativan as being gluten...
  23. mela14
    Hi Kate, Boy you sound a lot like me with all the intolerances. How do you do it? I am still having a hard time and often find myself eating something I think is safe and then reacting to it. Vitamins are a little problematic for me as they irritate the heck out of my gut. I just started cutting my vitamins in quarters. Let's see how that works for me...
  24. mela14
    Soy is a big time killer for me! I get so sick from it within 20 minutes and its gets worse as the days goes on. I it usually takes a few days to calm down. Eggs do the saem thing to me! Thos are already on the NO list. Rice is a hard one. it seems that I cna't do Whole grain brown rice...although I don't get the sick feeling that I get form soy, eggs and...
  25. mela14

    ARCHIVED Columbia Presbyterian

    mela14 replied to mela14's topic in Doctors

    OK..guys...I have an appt this Friday with Dr Susie Lee at Columbia Presbyterian. I also put a call into Ann Lee the Nutritionist but she doens't have time to see me this friday. She actually called back and left a message on my machine! I'm going to try to make an appt with her for next week. has anyone seen her there and what was your experience like...
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