Jump to content

NE Mom

Advanced Members
  • Posts

    33
  • Joined

  • Last visited

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

NE Mom's Achievements

  1. She has had four negative blood tests, two negative scope/biopsies, and positive Enterlab stool results and diet removal results. What is telling you she was positive on DQ9? I have no idea how to read this results at all!
  2. I had the gene testing done on my daughter but I'm not sure they did the right tests????? What do you think.... Results HLA Class II, Locus DQB, Allele 1 Results:0303 HLA Class II, Locus DQB, Allele 2 Results: 0604 Serological Equivalent: DQ 6, 9 Explanation says "If less than 2 alleles are reported for a locus, the patient is likely homozygous...
  3. BK fries make me sick within hours of eating them every time. However, I seem to do just fine with the McD's fries.
  4. joint pain was one of my main symptoms. In fact, I was actually dx'd with Fibromylagia before discovering that gluten was actually the problem. I have also removed dairy from my diet and have noticed that any "accidental" dairy ingestion actually causes the joint pain to flare up again. You also may be suffering from other food intolerances.
  5. I've had problems with both Walmart and Sam's brand generics. Both companies assured me that they were safe but after a week on generic Ibuprofen with tummy problems, extreme fatigue and depression-I've ditched the generics!!
  6. I've been gluten-free/CF for about five months. I've felt really great with the exception of when I've accidently glutened myself. However, the last two weeks I've noticed that the fatigue is starting to creep back. This is different then the extreme exhaustion I felt before. I'm wondering if I'm anemic or if my B12 is low. Has anyone had a similar experience...
  7. Passionfruit I'm struck by your statement regarding how you lost the urge to go. I have a 7 year old who has struggled with chronic constipation and encopresis since the age of 2. Long story short her GI has spent the last 5 years telling us that it was a behavioral thing and we just needed to repotty train her. She tells me that she soils in her pants...
  8. For you experienced gluten-free cooks-every time I try to make a gluten-free, vegan cupcake I end up with a gumy, undercooked blob. The taste is good but the texture is way off. Any suggestions on what may be causing this and how to remedy it. I cook from scratch-no store bought mixes. I used Bette Hageman's gluten-free flour mix, xanathum gum, and egg...
  9. Day four and I finally hit the brick wall. Terrible headache, fogginess, can hardily keep my eyes open, little tummy ache, constipated. Looks like I may be on the right track after all.....
  10. You should start a food and symptom journal. Dairy is also a big allergen for a lot of people. You might try eliminating that while you wait for the celiac test to be done.
  11. One of the reason's I choose to go ahead with the challenage is because the pain had returned in my legs and arms. I also was trying to locate the suspected cc but couldn't find anything. Interestingly, the soreness in my thighs (now I have it in my lower legs)has actually disappeared since eating gluten again-makes me suspect that I may also be intolerant...
  12. I've been gluten free for about 2 1/2 months. All tests were negative but I'm still waiting on the results from Enterolab. I reintroducted gluten this weekend (today is the third day) and I was expecting to be really sick by now but that isn't the case. I've noticed that I have a burning sensation in my legs and arms, feel more tired than a few days ago...
  13. Does anyone know where I can view this slide show? The link is broken.
  14. Hi Traveler My daughter whose is 7 was dx'd with Eosinophilic Esophagastis last September. They actually found the cells in her esophagas, tummy, and colon. She does not have celiac. Through standard allergy testing-skin & blood-we have found eleven food allergies and a bunch of environmental. She has improved since the allergens were removed but...
  15. Hi, I was dx'd with Fibro a few years ago. Decided to try a gluten-free diet to see if I felt better. I noticed immediate improvements with the brain fog and exhaustion. The muscle pain took longer. I had the blood work done prior to going gluten-free and it was all negative. I believe I've been glutened a couple of times because the above symptoms...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.