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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by smile

  1. smile
    Ive not posted in a while. Im not sure how long Ive been gluten free now, possibly just over 4 months. My dietician agreed that gluten was doing me no good eg weight loss/couldnt gain weight, tiredness, feeling sick daily, frequent bowel movements and tiredness. A few months in it was also suggested to try going lactose free. Well I can say all in all I have...
  2. smile
    I recently bought some potato crisps that were gluten free, both days that I ate them I had quite a few bowel movements, where I had got down to once a day, I also had a slight headache and slight reflux. The only other thing that I had eaten on both days was hummus. So on reading the ingredients for the crisps I saw that they contained yeast extract. From...
  3. smile
    Hi again, Im after some advice mainly. Ive been gluten free for well over a month now and lactose free for over a week. The feeling sick has eased. Still not been able to gain weight, have tried putting weight on with muscle eg doing weights etc, still not change. Now to the point lately I have noticed the tip of my tongue stings/sore etc and my mum...
  4. smile
    sorry to be writing another post. Im just so fed up. For a good number of years Ive not been well eg depression. Now Ive turned things around, but physically Im falling apart. I just dont know what to do anymore. Ive been gluten free almost 4 weeks now and Ive been lactose free for about 4-5 days. Now this last 3/4 days Ive been having slight headaches...
  5. smile
    Thanks for your reply. The doctors have never been concerned with the weight to be honest. I was told by a registerar that I have always been light when he has only seen me twice and a few year back I was 36lbs heavier and when I was at college I was averaging around 122lbs, for me that is my normal healthy weight. Im going to see if my diet changes make...
  6. smile
    Thanks for your replies. I guess my main concerns are the feeling sick and losing weight. Ive decided that Im going stay gluten free, my dietician had told me whether Im diagnosed or not I should stay well away from gluten. Another thing that has seemed to have disappeared slowly over the last three weeks is a rash I would get on my legs. It just would always...
  7. smile
    I finally got some feedback regarding my raised IgA (blood tests results). My gp had spoken to a consulant I saw months back and they said I didn't have coeliac and they were pretty sure. They believed I either had IBS,a mild case of malabsorption. It was suggested I take something called Colestyramine. I then told them that since being gluten free Ive had...
  8. smile
    Im from the uk and on sunday I had a roast beef joint from Marks and Spencers (I no longer have the packaging), it said it was a roast beef joint with roast beef stock and Im not too sure if it was also listed to have a small amount of mustard in it. Now yesterday I felt quite sick again, have not felt like that since going gluten free. I even had to have...
  9. smile
    Hi, I wish I could help you, but Im looking for some answers myself. Im almost 3 weeks gluten free and I had been feeling great, now only having one bowel movement a day, no gas/wind, no tiredness, no headaches, no feeling sick and no low moods. However in the last few days, say 4 Ive started to feel nauseus again and its getting me down. Ive also not been...
  10. smile
    Over the last 2 1/2 years I have lost about 2 and half stone. In the past year Ive not been able to go above 7st. I have been gluten free for about 2 weeks now and most of my symptoms have eased to almost completly going. I saw a dietician who suggested drinking chocolate soya milk everyday to increase calorie intake. Now I thought I could see my weight going...
  11. smile
    For about 3 years now Ive had very irregular periods sometimes going 6 months between periods and before then my cycle would be around 46/47 days. Earlier this year I was told I had PCOS, diagnosed by symptoms, scans showed a bulky ovary (no cysts)and low progesterone suggesting Ive not been ovulating. I was give Provera tablets to induce a period...
  12. smile
    I know this is going to sound like a stupid question, but I don't know the answer. Is it soy you get in soya milk? eg is it the same as soy sauce etc. I know a few weeks back I had some nuts/seeds coated in soy sauce and I didnt feel too good afterwards so didnt touch it again. I was unaware that this is the same with soya milk. I have soya milk in my breakfast...
  13. smile
    Thanks again, I just dont want to feel nauseous anymore, its so hard to pin point what it is. I generally feel fine after breakfast and a snack (soya milk), then after I have lunch (a few hours later) I then get nauseous. Then I feel ok, have dinner, then about 3 hours later I feel nauseous again. Breakfast in normally fruit/yoghurt and gluten fee bread...
  14. smile
    Thanks for your reply. What you said makes sense, however its a bit disappointing to now think there could be other foods my body is reacting too. How would I work out what it actually is. Im seeing a dietician soon and have kept a food diary for the last month writing down all my symptoms. Maybe they will be able to help and if need me write a letter to...
  15. smile
    Ive been gluten free since wednesday, have made sure there is no cross contamination. On the whole I feel much better, my bowel movements are normal, no bad tiredness, well no tiredness at all, no headaches etc. However Ive noticed this last few days Ive been feeling sick slightly, not as much as before, but very depressing still. Ive also noticed that I...
  16. smile
    I got my blood test results back and my GP has said that there was two tests for Coeliac disease, one came back normal and the other was slightly raised (IgA they didnt say which one). It was confirmed that this same thing was raised this same time last year, but was ignored. I was told that its possible Coeliac and that they would like to speak the consultant...
  17. smile
    Just after some advice. My symptoms have gradually got worse since the weekend. All of yesterday I was going to the the toilet (at least 7 times) and it wasn't very formed, I was exhausted, had a heavy head and Ive also lost weight. I also tend to feel low and emotional when feeling ill and tired. See when this happens it just tells me it is not IBS. Ive...
  18. smile
    Thank you. One last question regarding DH. On my legs, inside of the shins, I get very itchy and have very small red spots. They seem to come and go, however now I seem to have the same thing on my back, they are very small, but can easily be seen, its like a rash. Most of it is on my lower back either side of my spine, then I have some more going up my back...
  19. smile
    I know how you feel about others thinking its all in the head, that is one of the most frustrating things. I saw a GP (not my normal one) recently and mentioned my loss of hair and tiredness. I told her that I had been given iron tablets for three months earlier on in the year and she made a comment about me obviously reading up symptoms of iron defficeny...
  20. smile
    Thanks for your reply, Ive had the blood tests taken a few weeks ago and am waiting for the results now. That sounds a bit bad about the test eg biopsies sometimes coming out negative due to the nature of the intestines showing damage in a spotting nature. That makes me even more want to just start a gluten free diet without even thinking of having a biospy...
  21. smile
    Thanks for the reply and info. Ive not been sent for an endoscopy. When I saw the gastro person, after ruling out crohns disease they discharged me and said I should be fine in a few months. I was also give a barium x-ray which was normal. After seeing a dietican recently they sent a letter to my gp to suggets tests fro coeliac. I saw my gp who said if my...
  22. smile
    Sorry to make another post, Im just trying to figure things out. Does the terminal ileum have anything to do with coeliac disease. Basically about 6 months ago I had a colonscopy to test for crohns disease. When I was given my discharge paper it said the colon was all normal and that I had biopsies taken. It also said I had mucosal erythema of terminal ileum...
  23. smile
    Hi, Im a bit confused with my weight at the moment. Ive seen a dietician and they suggested to help me gain say a 1lb a month I need to increase something each day. They said it would be easier for me to gain weight through fluids than actually eating more. Now for over two weeks now Ive been drinking say a large glass of soya milk per day, very slowly...
  24. smile
    Thanks for your reply. This latest time I was off gluten was only for a few weeks, the most Ive gone gluten free for was about 4 weeks and that was back in feb/march. I guess my problem was I was told I didn't have coeliac and it was just IBS so I assumed that it wasnt gluten causing my symptoms. It just feels like I have all different people saying different...
  25. smile
    Hi, Im back again. It seems I can't get away from the possible diagnosis of coeliac disease. I written a few topics on here in the last year. I saw a consultant in gastro and he thought I had crohns disease. I had a few tests and they all came back clear. I was discharged and told if I have any problems to come back. I just went along thinking I just had...
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