
frustratedandtired
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Thank you for your replies.
I have a appt Thursday with a new gastro dr. It is where my daughter recently went because she has had issues lately as well. When i made the appt I let them know I wanted to be tested for Celiac disease. I have been tested for everything else. Given the fact that my youngest daughter is having problems, and that I read somewhere that girls with Turners Syndrome are at higher risk as well and my oldest daughter having Turner's, I feel for me it is best to be tested if possible. I will do the gluten-free diet reguardless of what they say. I am willing to try anything at this point.
This may be TMI...I read where you may see a "few" drops of oil in your stools. I have been telling them for years about this and it is MUCH more than a few drops. It covers all the water in the toilet. Does IBS cause this? I wouldn't think so.
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Hello all...
First off let me say I am glad to find this site. I have not been diagnosed with celiac and not sure if that is what my problems are from yet. The dr I saw Friday mentioned it and told me to find a primary dr that can accomidate short notice appt's. My ex also called me that evening to say that I needed to get tested for it without me even mentioning it to him. He had seen Elizabeth Hasselbeck on a show telling her story. I have been told nervous stomach, spastic colon, crohns (colonoscopy ruled it out) and IBS. I have always told them that I believe my problem is with my small intestines. I am always in pain. I have lost weight. At this point I eat about 6000 calories a day if not more just to maintain what I managed to put back on. I eat constantly. The headaches and the joint pain now are getting worse. My knuckles on my right hand are twice the size of my left. I'm weak and tired most of the time. The digestive issues .... well i wont go into those. I have had issues for years. When my symptons get extreme then I finally go to the dr. I get so frustrated not getting what I feel is a correct diagnosis I stop going. I feel like I'm wasting my time and my money for nothing. I am willing to try anything at this point. I will definately try the gluten free diet but from what I have read, I need to eat normal till tested. I will call the gastro dr and make a appt. I will let him know I would like to be tested and hopefully he will do so.
Blood Test Done Yesterday...Egd Thursday.
in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Posted
I posted once before thinking Celiac Disease was a possibility. I saw my new GI dr and have to say was very impressed with him and that he actually listened to what I had to say. He ordered the blood test and scheduled the biopsy which is Thursday. It was hard for him to ignore my symptoms given the fact when i was in his office the right side of my face was swollen from a sore in my mouth, my hands were swollen from arthritis and i was basicly a wreck. I wait till I just cant put off going any longer before I even go to the dr. Its so frustrating. What I didn't like was that he said I may need another colonoscopy when I just had one a year ago. He requested the results but said if no biopsy was done then I would need another one. He said Crohn's is still a possibility. He gave me a few prescriptions but the only one I am taking is the one for the heartburn. I dont want anything to effect the test results. I hope when I go in on Thursday that the results from the blood work will be in but I think that would be wishfull thinking.
If anyone know's of any questions I should ask, please let me know. I do feel my problems are due to Celiac more than Crohns.
I do have a couple questions. They may have nothing to due with my GI issues but feel it wouldn't hurt to check with you guys. 1) Do you sweat easily? Occationally I will wake up in the middle of the night with the neck of my shirt soaked and get hot very easily when I do most activities. 2) I have a rash on my ankles. Always noticable when I get out of the shower but fades as the day goes on most of the time. Anyone else get this rash? It's like pink/red "spots".