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bekkaz

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by bekkaz

  1. bekkaz
    Thanks SMRI they never told me any other reasons of what it could be. What's tropical sprue? I definitely could have had malnutrition at this time considering I had lost 30 lbs in 2 months.
  2. bekkaz
    Thank you all! I am around the Madison area, and all 3 GI Dr's I have seen are clueless. There is a new one that supposedly specializes in Celiac, I was going to see him...but then I cancelled the appointment. I was thinking at this point the RD could help me more, so I am seeing them on 8/14. The biggest thing that the Mayo Dr. and my Primary Dr (who...
  3. bekkaz
    This makes me furious! I asked for the full celiac panel to be ran. How did they run only half of it. What do I have to say to these doctors to get the correct test!!!! Do you think the gene testing was accurate. I can't tell if they ran for one gene or both?
  4. bekkaz
    I see Nicoles testing above, but I don't know if those are the short names for my testing? Does it look like based on my blood test they I had a full celiac panel, or parts of one? I can't remember if I was on gluten for 12 weeks at the time. I was very sick. The testing was done on 12/12. I think I had been off gluten around this time. I told them that...
  5. bekkaz
    I don't think they published my endoscopy reports on my chart at all. Currently the ear ringing is not happening. What is happening is diarrhea, vit d deficiency, and horrible upper back pain. I just called the clinic and asked for my celiac blood results. I am listing them here. My question is do the below results look like the full celiac panel? Same with...
  6. bekkaz
    Just curious reading through this post, has anyone tried the Eat Right 4 Your Type books to identify other avoid foods?!?
  7. bekkaz
    I hope to get some help on this board. So for the past year to year and a half I have been having problems. I have went through more needle pokes than I care to even think about. I have kind of, have, not really and not at all been diagnosed with Celiac. Since I have been about 12 years old I can remember my stomach severely bloating after I would eat...
  8. bekkaz
    I am so frustrated and confused. I don’t know if I have a gluten intolerance or possibly dairy or something else?!? I have had tons of symptoms I won’t go into all of them but as far back as 12 I can remember my stomach swelling way up after I would eat. This past year I got extremely sick, I lost like 30 lbs in a month’s time. I was 5’7 and 155 to b...
  9. bekkaz
    I won't get into my extremely long story but I have been having ongoing stomach issues that started back in Nov. Before that for as long as I can remember my stomach would swell up after I would eat, and I would like 4-5 months pregnant. I had two endoscopies, showing erosive gastritis, I had a colonoscopy showing mild inflammation. My celiac biopsy's...
  10. bekkaz
    I found out today talking with another nurse from my worthless GI Dr's office...that my biopsy showed high white blood cells in my small intestine. This is consistent with my blood work over the past 2+ years, as well as my fecal test showing inflammation high white count. They told me they think it could just be an incidental finding. The ignorance of...
  11. bekkaz
    Thank you for the reply! I have tried the mind over matter deal, I am not that good at it. They did run full blood tests for celiac, for the second one I had been off gluten for a couple weeks in between, I didn't know at the time that could make the test false. I did have 2 endoscopy's, they took biopsy's in both, both came back negative. The second...
  12. bekkaz
    I am going to post this on a couple forums because I am not sure of the best place to post. I have been very very sick since Nov. I have always had stomach issue's, as far back as I can remember...12 years old. I would bloat way up, usually always was constipated. Always told me I had IBS. A couple years ago I went to a functional medicine Dr. after female...
  13. bekkaz
    I have been violently sick with stomach pain, GERD major acid in stomach that is not getting under control since Nov. Have had 2 negative blood tests for Celiac, one I was off of gluten in the weeks prior to the test. My last endoscopy came back negative for celiac. I had enterolab test my stool, it came back positive for Gluten intolerance at a 53. I...
  14. bekkaz
    Thank you all for your reply's. This has been a really really tough week. I have been to a GI Dr. locally, and drove 5 hours yesterday to be seen at the Mayo Clinic Hospital, today was seen at the clinic, just for a consult with the Dr. it was 650.00 out of pocket! My ins. won't pay as they want me to go to their Dr's, but I am desperate. I am sad to...
  15. bekkaz
    Curious, when you react to something how long does it take for you to be sick. I am asking specifically for people who get diarrhea as a symptoms. I am very very sick this morning, my reactions don’t seem to be always happening right away. It seems to me the next day that I am very sick. I meet with GI Dr. again on Wed. I hope they can help me, figure o...
  16. bekkaz
    I am keeping the food diary. That's my frustration, I just cannot narrow down what I am reacting to. It seems to not matter. I actually BAD ME, got so frustrated and overwhelmed that I said...I still feel like crap, I am going to eat gluten again. So I am eating probably everything I shouldn't again. I just want a test that can tell me. Yup, stop eating...
  17. bekkaz
    I had never heard of it, but I found out about it on my own by starting to search for the throat anatomy to try and tell these ignorant Dr's what to try and look for. So, despite me telling my GI that I felt like something was constantly stuck in my throat, and him seeing that my stomach was eroding away. When I asked after the fact to space cadet nurse...
  18. bekkaz
    Okay - I have a very long story, too long to post all right now. I have been very sick for the past several months, stomach bloating for as far back as I can remember. I recently had my gallbladder removed, in Jan. I also started with major stomach acid, this is new. I had an endoscopy and they found gastric erosion. No clue really why. My 2 blood tests...
  19. bekkaz
    Well after several months of major sickness, I received my Enterolab results today, stating I am Gluten intolerant. I have been MAJOR sick, please see below. I am wondering if I should do the DNA testing now, especially worried about possiblity for my 3 year old. Gluten Sensitivity Stool Test Fecal Anti-gliadin IgA 53 Units (Normal Range is less than...
  20. bekkaz
    Hi All - I have been VERY sick since the end of Nov. I have always has stomach issues, bloating, coughing, etc. I have lost over 20 lbs in the past month and have had a BILLION tests done. I won't get into it all because the story is so long. This week I had a HIDA Scan done which showed my gallbladder isn't functioning normally, 11%. It's supposed to...
  21. bekkaz
    Interesting Meemster. I have had problems with fungal overgrowth. About 2 years ago they a bacterial overgrowth in a stool test, via (Company Name Removed - They Spammed This Forum and are Banned) labs. A functional medicine doctor ordered these tests. I lasted about 3 weeks on a pretty strict diet, and lots of supplements. I kept with ongoing symptoms...
  22. bekkaz
    That is a good question, I wondered the same thing. It was about a little over a year ago, I couldn't find the results. I thought I posted it on here and looked back at my old posts and couldn't find it. I know it was negative then as well. I see you are off soy and corn as well. I have wondered about nightshades as well. Can I ask what you normally...
  23. bekkaz
    I am little confused about this test. Which one is the total IGA? The Dr. told me he was going to run the IGG tests along with these IGA, to make sure I wasn't IGA deficient. I don't see that he did that?
  24. bekkaz
    Okay I will start out by saying I have had ongoing stomach issues for years. I am 34 years old, and since probably all the way back to twelve I can remember stomach issues. I cough after I eat and my stomach will swell way up. Over the past three weeks, I have been VERY sick. I haven't worked in two weeks. It started out with extreme fatigue, total loss...
  25. bekkaz
    Thanks to both you of you for the reply's. I didn't think I had celiac probably, but I did want him to do the FULL panel, which he did not! My Functional Medicine Dr. feel's that based off of the GI Profile I would be considered intolerant. These yeast/fungal overgrowth the GI Dr. pretty much laughed at, and asked me how much money I spent on that. He...
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