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concernedmamma

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  1. I am just less than a month gluten-free after positive BW and scope/biopsies. I am looking for a multivitamin that is for sure Gluten free and am having troubles finding one! I know brands are different between US and Canada, so just to let you know I am in Canada. I found one that said Wheat Free but not Gluten free, so I don't feel comfortable with that...
  2. It sure is frustrating! We were just talking about this this evening. Our son was diagnosed in March of 2010 via Blood work and endoscopy (at age 5)- After lifelong diarrhea, etc. His blood work was down to 'normal' within 6 months, but we kept seeing what we thought were 'reactions' and were so frustrated as we thought we were messing up!! Only in...
  3. Hugs to you! I am speaking from the other side, but I can empathize a bit- my son is Celiac. When he was diagnosed, everyone else was eating regular food. It will be a bit harder for you in some areas as you are preparing the food for the whole family, but pick and choose the things you are willing to change for everyone or not. We have a 'clean' area...
  4. I haven't read through all of the replies, but wanted to give you an alternate view. Both my boys have Celiac. One DX through positive blood work and a scope (because that is what we were told to do and I just wanted my 'baby' to feel better, so that is what we did). He had had many health concerns prior, honestly we are only now starting to see improvement...
  5. Hey there! Just wondering how many out there were NOT ill prior to diagnosis- and now that you are gluten-free, how have things changed? I got my BW done since my two boys were diagnosed with Celiac- about a year apart. I finally went, just so it would stop hanging over me as 'something I should do'. Feel fine, no obvious symptoms. My blood work came...
  6. Nice to read this! We have a strong family history of Celiac, so when my blood work came back strongly positive, I assumed I would skip the biopsy/scope. The GI strongly encouraged it though, and I realized that 'I' need the positive scope to prove to myself that Gluten is doing damage to my body. I have felt fine, but did the blood work since we have...
  7. When we told the boys (my boys are Celiac, so far girls are not) that it looks like Mommy is Celiac as well, the first question: "does this mean WE get the big toaster now??" So cute.
  8. I am trying to understand this, but perhaps a bit of my history would be helpful to you.......... Late 2009- Sister had odd GI symptoms, blood test positive for Celiac. Her dr discouraged biopsy. She had improvement with gluten-free diet March 2010- My son had positive blood test for Celiac. History of lifetime diarrhea, bloated belly, pale, and more...
  9. I suggest posting this in the parents of kids/children with Celiac Forum!!
  10. I am interested to hear more about this-Both my son's (6 yr old non-identical twins) have Celiac and with one of them, we are sure he is reacting to 'something' but can't figure out what it is. We were thinking his 'bathroom episodes' and complaints of tummy cramps were related to cross contamination (about 1-5X/month). Well, last month, accidentally, we...
  11. Well, just a quick update........ no GI reaction AT ALL. We didn't tell them that we had made a mistake. Didn't want to cause undue anxiety. Bathroom events have been 'normal', no complaints of headache or tummy ache. Yesterday Jacob was super tired and emotionally sensitive, but that was several days after the glutening episode, so hard to say if it...
  12. Okay. So tonite, we made a HUGE mistake and grabbed a bag of pizza crust from the freezer, made the boys their pizzas and watched them chow down........ then looked more closely and they were eating WHOLE WHEAT pizza crusts!!!!!!!! They were over half way done, we figured the damage was done and let them finish their pizzas.......... Now we are waiting for...
  13. It is so hard when our little one's are unwell- trying to figure it out can be such a challenge. I usually *hope* for a fever (sounds bad- but you know what I mean-fever=sick, not gluten-horray!). Other signs I look for- for my son, headache+stomach ache+diarrhea=gluten. One all on its own is a bit harder. Also, for us, he is unlikely to eat if his symptoms...
  14. My son had fairly low numbers (13 or 15, can't remember) and his biopsy was scored 3, on a scale of 1-4. The numbers DO NOT relate to damage or sensitivity. He is EXTREMELY sensitive as well. Kim
  15. One of my boys(Jacob) was diagnosed with Celiac in March of 2010....... positive bloodwork and biopsy. It has been a challenging year. He is EXTREMELY sensitive! School (kindergarten) resulted in many episodes of cross contamination, and many tummy aches, diarrhea and headaches for my boy. Today we found out his twin brother (Gabe) also has Celiac....
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