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concernedlady

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Everything posted by concernedlady

  1. concernedlady
    Dear Mermaid's Mom, Good for you! I think you're doing everything right! :-) Sincerely, Carol (Concerned Lady)
  2. concernedlady
    Dear Mermaid's Mom, You're getting a lot of great advice, and, here's even more food for thought! My husband is "gluten-sensitive", but is not a "Celiac", and from what Dr. Kenneth Fine, M.D. has discovered over the many years, LOTS of people are "non-Celiac", but are still "gluten-sensitive" (formerly called "intolerant to gluten", AND: Your...
  3. concernedlady
    Hi Gemini, My birthday is in June, so I'm a Gemini too---and I do agree with some of your good points. I had written that one could EITHER try Dr. Fine's stool sample testing, where his EnteroLab looks for elevated numbers of IgA antibodies to various food proteins (gluten, milk proteins, soy proteins, yeast proteins, etc.), OR one could just avoid...
  4. concernedlady
    Hi Emma6, Thank you for pointing that out! I agree with you! Good points! I stand corrected. She also doesn't need to intentionally re-expose herself to gluten, since she is intelligent enough to realize that it makes her sicker! If she wants to find out if she may be sensitive to various additional proteins (besides gluten), such as milk proteins...
  5. concernedlady
    Hi gluten-free Puddin, You asked a good question! You wrote: "... As a follow-up, anyone know of other ways to test for celiac disease instead of biopsy? I fear going back on gluten for this damn test. It'll RUIN me." The answer is "yes and no". I'll explain. The test for Celiac Disease involves an invasive process of taking biopsies (small...
  6. concernedlady
    Hi Bobby! Thanks for your kind words! Thanks, Loey for your welcome, too! If anyone sees anything needing clarification or corrections to my gluten-free info in my website, let me know! I have some gluten-free info in Appendices B & E, on webpage 10 of my website.Sincerely, Carol (concerned lady)
  7. concernedlady

    My website is called: Can't Breathe? Suspect Vocal Cord Dysfunction! Here's a link to the home page webpage:

    http://cantbreathesuspectvcd.com

    I include some tips on eating gluten-free, on webpage 10, in Appendices B (reflux tips), and Appendix E (gluten-free tips).

  8. concernedlady
    Hi Bobbie and all, I first learned about Celiac Disease, from a very nice guy---friend of my hubby, and this friend was told by a doctor, 20-30 years ago, to just stop eating gluten (the friend had all the usual symptoms of Celiac Disease). This friend soon got well, and has stayed well, as long as he doesn't accidentally get "glutenized". He never had...
  9. concernedlady
    I'm sure you will get more answers from neat people here, soon! I have learned much from other folks here, and at other gluten intolerance forums. I agree with your hubby: I recommend that you try going gluten-free for one month. The "easiest" way to start, is to buy whole foods, foods that are not processed in any way. For example, meats, fish, fowl,...
  10. concernedlady
    In reading about what foods have gluten, and what foods don't, there seem to be several opinions (some conflicting) about what foods are safe, and what foods are not safe, for gluten intolerant people. Dr. Fine recommends avoiding ALL grains. Here's what I have read. If any of this is not correct, please let me know: Glutenous foods include certain...
  11. concernedlady
    Dear Kindness, You can email &/or speak by phone with Dr. Kenneth Fine, M.D. (gastroenterologist who has gluten intolerance himself, as does his daughter). Dr. Fine started a lab called EnteroLab, that does stool sample testing, looking for the presence or absence of antibodies to gluten, in patients' stool samples. Dr. Fine could tell you whether...
  12. concernedlady
    DEAR KAYLEEN, HERE ARE SOME IDEAS, AS RESPONSES TO WHAT YOU WROTE: I have almost all of the symptoms listed for Celiac disease. HAVE YOU TRIED A (STRICTLY) GLUTEN-FREE DIET, FOR A MONTH, TO SEE IF THIS HELPS YOU TO FEEL BETTER? ------------------------ But I also have a few things that I'm not sure if it would fall under this. Stress, smoking...
  13. concernedlady
    DEAR MOM OF GLUTEN INTOLERANT SON, HERE ARE SOME RESPONSES TO SOME OF WHAT YOU WROTE: What I am wondering is if I have a problem with gluten, could the little bit that I have been ingesting cause me to have increasing symptoms and now nutritional problems? YES. BUT, THERE MAY BE ADDITIONAL PROBLEMS THAT NEED TO BE DIAGNOSED, TOO. ------...
  14. concernedlady
    Dear Marsha, You can have your (gluten-free) cake & eat it! You could have a non-invasive stool sample test done, for gluten intolerance, and this stool sample testing can be done WHILE you are gluten-free, and it can be done even a month or more after you've been gluten-free. See Dr. Kenneth Fine's "EnteroLab" website, about his innovative, reliable...
  15. concernedlady
    I posted the following talk by Dr. Fine, in a Jan 17 2004, 11:28 AM message in the "pre-diagnosis" section of this forum. Dr. Fine's talk (SEE BELOW) may help to describe the differences between CELIAC DISEASE and some types of non-Celiac GLUTEN INTOLERANCE. To summarize, I believe that Celiac Disease (celiac disease) is one kind of gluten intolerance...
  16. concernedlady
    Dear Interval, You wrote: "However the weird symptom [when eating glutenous foods] is breathlessness, almost like having asthma where I can't seem to get enough air no matter how deep I breathe. This has got both myself and my doctor puzzled, as shortness of breath is not usually associated with digestive disorders. All the normal lung function tests...
  17. concernedlady
    Thank you both! I want to give credit to "JCC", the lady who first alerted people about Dr. Fine's innovative stool sample testing, over at the Gluten Sensitivity/Celiac Disease forum, at Open Original Shared Link "JCC" posts on several forums, including here, and also at the Delphi forums. She tirelessly gathers info, and shares it with others! Carol...
  18. concernedlady
    Below is a copy of Dr. Fine's talk, given in Louisville, to a Celiac Sprue Support Group, in June of 2003. He gave me permission to share this. I found it very interesting and informative. I apologize for the lengthiness. I added a few things in [ ] parentheses, and added more paragraph spaces, for better readability: Sincerely, Carol fsds@rkymtnhi.com...
  19. concernedlady
    Stephanie, I agree with your good "gut" instincts! I agree 100% with Stacie's wonderful advice! I have some "gastric reflux tips" that you can take a look at, that are drug-free. See Appendix B, on webpage 10 of my website. Here's a link: Open Original Shared Link Sincerely, Carol Open Original Shared Link
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