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mom2kae

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mom2kae

  1. mom2kae
    Sounds like we started gluten-free at the same time! My daughter's immune system is really shot too. She started to get sick at 9 mos. with a UTI & dropped weight & % rapidly, by 12 mos. she tested + for TB of all things. None of us have it, only her. By 13-14 mos. her tooth enamel started to deteriorate, she started complaining about her tummy hurting...
  2. mom2kae
    So far her testing has come back with just Gluten Intolerance, although her symptoms were all Celiac. She had(has) tooth enamel loss, major unexplained anemia, etc. along with her tummy issues. Her peds weren't the best & I had to fight them to even do the Celiac testing (go back to my prior posts for my whole story). She has been tested 2x & the...
  3. mom2kae
    Ok, so all of that is normal then! I started second guessing myself & the test results! I do see the difference in her body though so of course I knew that going & staying gluten-free is what is best for her! Jenn
  4. mom2kae
    My daughter is 4 1/2 & was found to be Gluten Intolerant & has been gluten-free since September of this year. Before going gluten-free she had the loose stools, stomach pain, & a ton more issues. Slowly but surely after going gluten-free she stopped having all of those problems & only complained that her tummy hurt after accidentally getting...
  5. mom2kae
    To start, yes. We don't always eat everything organic but try to. When you first buy all of the different flours & get all of your necessities to start is is a bit of money at the beginning. Now that we have our staples, our flours & because I bake & cook 95% of our meals it hasn't been more than normal, if not less. We don't buy a lot of prepackaged...
  6. mom2kae
    I would say both!
  7. mom2kae
    My daughter is now 4 1/2 & weighs a little less than 30 lbs. We FINALLY got her diagnosed w/gluten intolerance & went gluten free a few months ago. What a difference!! She too had floating stools (oily residue), complained about tummy aches, bone aches, head aches, tantrums out of nowhere, falling off the growth chart starting at 9 mos., not...
  8. mom2kae
    My now 4 yr. old was tested at about 18 mos. & then again at 3 1/2 for Celiac & both tests each time came back neg. for Celiac but all of the numbers rose & her IgG Gliadin came back positive at her 3 1/2 yr. test for a Gluten Intolerance. Her ped still said not to really care about taking her off Gluten because "90% of America is intolerant to...
  9. mom2kae
    I'm hoping to get her to see my older daughter's DAN! (biomedical doctor) within the next month or so. Our older daughter has sensory issues (SPD) & definitely had food issues (mainly dairy). Our regular pediatrician kept dismissing our claims about her hyper activity, weird stools, constipation, etc. She humored us & gave her an allergy test to...
  10. mom2kae
    Thank you Paula! I have a feeling we're headed in that direction. Seems like she'll be fine for a while & then start in again. Lately she's been saying her tummy hurts about 80% of the day. I do give her a lot of gluten-free choices because I happen to have some Gluten-free Casein-free recipes & such but she still eats mostly G foods...sigh...
  11. mom2kae
    I don't know everything about Celiac honestly. I've posted my first post on MANY Celiac boards/message groups, etc. & I've been told 99% of the time that if that IgG is high than it's probable that she has Celiac or that she definitely needs to see a specialist to determine if she's intolerant or has Celiac. She doesn't have a low IgA, it's "normal" but...
  12. mom2kae
    Thanks Maryann! My daughter may just be gluten intolerant, that is definitely showing, but the #'s from the other tests (although neg) are rising. Tested at 2 yrs. & then tested again at 3 & all were elevated from the previous year. My husband just got laid off at the beginning of the summer so we lost our insurance & are looking into getting...
  13. mom2kae
    & I'm back! Sorry for the delay! We went to a GI & he basically backed up what our ped said...that the other tests were neg & that because the IGg was high that it was just an intolerance to gluten (again, opposite of the research that I've been reading online). He tested her stool, urine, blood (for Cystic Fibrosis among other things) &...
  14. mom2kae
    My almost 4 yr. old has an appt. tomorrow for a gastro. to recheck her labs that she had at the peds. She tested + for the IGG Gliadin but was negative for the other tests. She has 98% of the symptoms of Celiac. Anyway, what should I have them do tomorrow? Or what should I ask? Any advice?
  15. mom2kae
    My almost 4 yr. old has had enamel problems since 1 yr. old. Her top 4 teeth started to lose enamel, then chip all of a sudden. She wasn't bottle fed, no sweets, brush her teeth, etc. We haven't gotten the official diagnosis but she did get an IGG Gliadin test back + so we're waiting for a specialist referral to get a proper diagnosis. She also has the...
  16. mom2kae
    Thanks! I'm waiting for our referral now. My husband requested the referral from her nurse so we'll see how it goes. Usually they're about 4-5 days in receiving it. I'll keep you posted!
  17. mom2kae
    Thanks for the replies! I got her lab results paperwork yesterday & it also shows low rbc, hemoglobin & hematocrit & high platelet counts. Which all point to anemia & Celiac. We left a message with her ped yesterday & we'll hopefully hear back from her on Monday. We intend to request for a referral to a specialist & if she won't give...
  18. mom2kae
    My almost 4 yr. old daughter has been dropping off the weight charts since 9 mos. old. She is only 26 1/2 lbs. & has quite a few symptoms of Celiac. *tooth enamel loss *unexplained anemia *diarrhea/loose stools *distended belly *failure to thrive/low weight/not gaining Among others... We had her tested for Celiac in...
  19. mom2kae
    My almost 4 yr. old daughter has been dropping off the weight charts since 9 mos. old. She is only 26 1/2 lbs. & has quite a few symptoms of Celiac. *tooth enamel loss *unexplained anemia *diarrhea/loose stools *distended belly *failure to thrive/low weight/not gaining Among others... We had her tested for Celiac in...
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