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DLayman

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Everything posted by DLayman

  1. DLayman
    She really is too young for a celiac panel.. My understanding is that they don't concider them accurate till about two years old.. The best thing to do is to keep up with the diet changes as long as they are helping her then do it. Lord knows you need sleep. Then when you start introducing solid foods keep a food journal.. what she eats and how it effects...
  2. DLayman
    You have had the antibody tests done did they actually give you the numbers or just tell you they were negative? Also did you have the DNA test done? Like you have been told you could have the gene and not have the antibodies as of yet. Also if they did not actually give you the numbers or a copy of the report request it.. you could have a low positive...
  3. DLayman
    when we were gluten free before having to go back on gluten for testing... (good for you for doing it right) We typically had gluten free cereal for breakfast or eggs, yogurt and fruit. I also got Van's gluten free waffles. Lunch I lucked out because he doesn't really eat sandwiches. so I would give him the insides of the sandwich.. the meat and...
  4. DLayman
    See if you can find some soft corn tortilla shells.. double check the ingrdients! Those can make good sandwiches. Presumably as he is on a gluten free diet his teeth should improve and his sensitivities may lessen, but that is a real issue! Rice cakes do make great sanwiches and they are not too hard and not too soft! they should be just right! I grew...
  5. DLayman
    Well the doctor ordered a colonoscopy for my two year old. It's movement.. on a reluctant doctors part. I guess I should be a little happy. Not looking forward to putting him through another procedure but the endoscopy went fine so I am sure this will too. I really want to get him to draw for the blood test while he is in there.. if nothing just to amuse...
  6. DLayman
    Kindness, Don't worry if they look at you like you are crazy! They do not live with this child 24/7 YOU do. YOU know your child!!!! There is no one on earth who knows her better. YOU are the expert on your child and don't let anyone tell you different. I can sympathise with you! It is very hard to try to weigh out other's opinions and get to the root...
  7. DLayman
    You could try www.pecanbread.com for some gluten free dairy and egg free recipes that are pretty kid friendly. Hope this helps! Denise
  8. DLayman
    There are some good gluten-free and dairy free recipes at www.pecanbread.com and they try to be kid friendly recipes. Try to just stick to plain foods. I got the gluten-free cereal and some cookies to start. I also got a bag of the gluten-free pancake mix. Beyond that I just stuck with plain old home cooked foods. Used corn startch to make gravies, and just...
  9. DLayman
    Does it account for children who have bottles supplemented in their diet? Or are they all exclusively breast fed? I am convinced that the gluten gets through. I noticed a seriously marked change in my own son when I went gluten-free for two months. Now I went back on gluten after he was 6 months old and he seems ok with it now but it has not been introduced...
  10. DLayman
    Wow~~ we are a chatty group!! Sorry all Welda's name popped out at me!!! Congrats to you all It looks like a great book! Denise
  11. DLayman
    Oh that is wonderful! I am glad that you guys figured out a way to get that blood draw on the youngest. Are you working through a children's hospital? When we took out little guy in for his biopsy the children's hospital was terrific. They showed him everything, got a doctors hat for Dad and a nurses hat for me.. showed him the mask and all.. he's two so...
  12. DLayman
    I was looking over the contents of a new book on celiac disease and what should I see? Yup Welda wrote a chapter!!!! Go Welda Go Welda!!! This book looks like a keeper! Check it out! Open Original Shared Link Denise
  13. DLayman
    I have also had bouts of vertigo. I went through a whole slew of tests for menieres... hehe I went throught the tests when I was pregnant.. I have not had any attacks lately, but I sure can relate to Sarah!! I have been several times crawling around on the floor because of an attack and I was pregnant and wanting to fall on the steps. Scary! Right now I...
  14. DLayman
    NeDrz, stick with the basics.. meat fruit and vegetables also cheeses if you can tolerate them. There is alot of variety just among those things if you give it a try! You can do it!!! Denise
  15. DLayman
    We just went through a biopsy with our son in January. It went fine. We did it at a childrens hospital. Ask as many questions that you need to to feel comfortable. Keep a brave face on for your little guy before hand it will help him alot to see you positive. The proceedure should take only about a half an hour, they should put him under completely for it...
  16. DLayman
    We have also had a little interesting thing happen. We gave our son lactaid milk as the family doctor said to hold off on milk till the bad diahrea stopped, well we are not supposed to be giving him juice according to the GI so we got the lactaid.. presuming the lactace enzymes are blown out of his system by the diahrea.. low an behold.. formed BMs... Every...
  17. DLayman
    Thanks Wild ones! I will most likely move on to one of the doctors reccomended to me by some local parents of celiac children. We were hoping to 'reform' this doctor but it seems he is not redeemable.. as I just found out that he has a teenager in his care with NO villi and is still not willing to say it is celiac.. GRRRR We have also had a little interesting...
  18. DLayman
    On the other hand.... there are several out there who have had a negative biopsy. So keep that in mind. It is not a really particularly difficult proceedure, but it is an invasive one.. Your body just doesn't put these antibodies out for fun.. and an endoscopy is really looking for 'end stage' celiac where the antibodies have gotten so out of hand that...
  19. DLayman
    Lauradawn, the family doc does think that this is diet related, given the history etc. Welda.. thanks that is what I was looking for, his diahrea has slowed down in frequency right now but it has not stopped. I expect he will get a pound back just for the mear fact of eating something but I don't expect any more than that. Of course the GI doc would...
  20. DLayman
    No he is not diagnosed. He had a endoscopy and that was negative. The GI doc takes that as proof of biblical proportion that he is not celiac and wouldn't even concider doing the blood test last week when we were at our follow up appt. So much changes in a week.. all the trouble and weight loss has happened in the interum. So I will get the weight check on...
  21. DLayman
    Ok give it to me straight. My little guy is in a bad way. He has had SEVERE diahrea since last Thursday. Took him to the regular doc today and he feels that it is not a virus this time around because a. no fever to speak of b. no one else got sick and c. the history of chronic loose stools and weight loss over the last year. . So here is the question I went...
  22. DLayman
    Dana Korns book is at Borders usually it's a great resource it will help you alot!
  23. DLayman
    oh ignore me today.. I am over analizing!!1
  24. DLayman
    A book you might find helpful is Kids with celiac disease by Dana Korn you should be able to find it at Borders There are several gluten free foods out there.. cereals and such most health food stores carry them, and alot of regular supermarket stores as well. Our local Acme just started carrying Amy's gluten free pizza!! So consult with the manager...
  25. DLayman
    Well the doc says no to the blood test. The other tests have all come up negative (endoscopy,fecal fat trypsin) so he feels that it will also be negative.. I can just hear Welda now.. what can he see in the blood.. So since the little guy has gained a little weight I am willing to watch him. I can always tet a test done on my own. The doc also suggested...
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