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Zizzle

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Everything posted by Zizzle

  1. Zizzle
    I was just diagnosed with EDS this week, but I know I've had it my whole life. I have hyperextendable fingers, elbows and knees and my hips and lower back have been a constant source of pain and instability. I also have thin, stretchy skin, bruise easily, etc. I have microscopic colitis, gluten and casein intolerance (now being told it's full-blown celiac...
  2. Zizzle
    I have the same thing. My ANA has been 1:1280 for 5 years. Rheumatoid factor is 27, Anti-smooth muscle antibody is 57. These are very high titers and the docs are expecting MCTD or autoimmune hepatitis to develop, but so far I only have microscopic colitis and gluten intolerance (not confirmed celiac yet). I'm gluten free hoping it will stop hepatitis before...
  3. Zizzle
    I was a healthy kid and teen with the exception of UTIs, easy bruising and canker sores. 10 years ago I developed a vicious case of traveler's diarrhea in Guatemala and had self-diagnosed IBS after that. Three years later, a stomach bug in Thailand added lactose intolerance to my IBS. After my first pregnancy, I developed an itchy rash that lasted almost...
  4. Zizzle
  5. Zizzle
    I just started the Pepto treatment after giving up on it 4 months ago. Thank goodness for Pepto tablets instead of chewables! I probably had mild post-infectious IBS for 10 years, which developed into microscopic colitis (dx'd last summer). My doc wanted me to take Asacol but I declined and pursued food sensitivity testing instead. Patch tests were inconclusive...
  6. Zizzle
    I had Enterolab testing after my gastro refused to test me for Celiac based on a negative screen 5 years ago. If you are gluten free, you can still do the cheek swab genetic test to make sure you are susceptible to celiac. I had 2 genes and this convinced my paediatrician to test my slow-growing 3 yr old. I've been gluten free for 30 days and can't imagine...
  7. Zizzle
    So let's say I skip the bloodwork and go straight to a biopsy. Do the same rules apply? Or do my microscopic colitis and chronic diarrhea suggest I might show villi damage without having to consume tons of gluten for weeks before the test? Again, I've only been gluten free 30 days - that's not enought time to heal the villi, no?
  8. Zizzle
    I'm reading this thread with great interest. I had positive Enterolab testing done and have been 99% gluten free for a month. I see my internist in one week and will ask for a Celiac panel then. If I start eating gluten now, is that enough time to get an accurate result in one week? I dread eating gluten again. A couple of mix-ups this month (corn chips...
  9. Zizzle
    I'm new here too, so I can't comment on many of your questions, but regarding dairy, you are probably lactose intolerant due to the intestinal damage, you may not necessarily be sensitive to casein, the protein in milk. If you do OK with yogurt and lactose-free milk, it's just lactose intolerance and it may go away after you heal your gut. I've been gluten...
  10. Zizzle
    I'm new to this forum and the celiac disease world. I've had IBS-D for 10 years, unexplained autoantibodies for 5 years, and recently was diagnosed with microscopic colitis. Bloodwork 5 YEARS AGO for Celiac antibodies were negative, so my gastro determined (this year) that I do not have celiac disease and never will, so there was no need to re-test or biopsy...
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