
Heathers-garden
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I left another post about questions I had regarding my symptoms. I still am off the gluten(being very careful) and dairy. For me it is very disheartening though and I wonder if anything is really helping. My joints actually are worse(just started my period...it does get worse with this) and I have been off gluten for about three weeks. Am I nuts for even trying this? I just want to eat a big greasy cheesy burger with a bun, but don't know if I am just being impatient. I don't get better like bam! does that mean this is a useless experiment? I guess I don't mean challenge as in getting the blood test, I mean reintroduce gluten. I don't think I would see a difference as my joints still hurt. boo.
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That is too funny that you mention Porphyria. I remember my aunt mentioning she wondered if her mom(my grandma) had this as I think my cousin(one with Crohn's) and my aunt were tested and had the gene. At least that is how I remember it...I will have to ask her.
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I am sure you all get so many posts like this but wanted to see if I sound completely offtrack. I don't have health insurance right now...so am kind of on my own trying to figure this out for now.
I have five children and so have spent a lot my adult like being pregnant and raising small children. After the birth of my third son about six weeks after I started getting joint pain that slowly developed into full body aching and lower leg weakness. I was tested for Lupus/RA and tested negative for both. I remember feeling very depressed, anxious, and just an overall wreck. That was about six years ago. The joint pain subsided eventually to just include my feet. I also went to a Naturopath who thought I had leaky gut and told me some foods to avoid:dairy, citric acid, sugar, and I can't remember if wheat was in there.
A couple years ago the weirdness happened again but this time was more neurological. My feet still hurt, but I had some tingling, numbness, depression, and some shooting pains in my toes. I was tested for lupus, RA, AND MS this time. I did get some relief from foot pain from an osteopath and had inserts as well. I began to think maybe it was fibro although I know the dr. checked for points and couldn't find enough. I have been interested in some posts regarding stabbing pains near the belly button. I had that with my last two pregnancies above my belly button and they said they feel no hernia. After this last baby I still get it some, and it makes me sweat, freeze, swear and feels like someone is stabbing me right above my belly button. In general though symptoms disappear during pregnancy.
I had my last baby in March and have foot, ankle, and knee pain now.
I am sure you understand how frustrating it is NOT to know what is going on. I have a couple friends who are gluten intolerant and started reading some about it. I have been avoiding it the past two weeks but don't notice much improvement. Growing up I had cold hives which I think someone said could be related, I have two cousins with Crohn's disease, a mother and grandmother with Schizophrenia and I have suffered from anxiety/depression. Am I crazy to think that maybe gluten is bothering me? I don't have GI symptoms at all. Why does my body have to be so weird?
How Long Until Challenge?
in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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I figured I needed to try it longer. Autoimmune things are frustrating because you are always seeing similarities with other conditions and never know what is going on. Do you think my symptoms in the other post don't sound like gluten intolerance. I had read that some people don't have GI issues, and I definitely have had some sort of ataxia. Thanks for your time.