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Ahbee

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Ahbee

  1. Ahbee
    Hi Ravenwood, It seems like I have periods of days that are good and bad. Even though I feel sure I gluten free, it's hard to understand why my bad days occur. I'm glad you said something about tireness. By afternoon it seems like I have lost my brain. My doc says no afternoon driving. If anything out of the ordinary happens, negative or positive, my...
  2. Ahbee
    Your B-12 is awfully low. Mine was 286 when I suddenly stopped walking one day and lost the use of my right arm. For 8 months I never new when I was going to be able to walk. All MRIs were fine. Your symptoms are so close to mine. I was sent on my way by 4 neurologists and my doc that I had for 8 years. They felt this was mental. I found a doctor that...
  3. Ahbee
    Hi Ravenwoodglass, Even though I have been totally gluten free for 8 months, sometimes I still have trouble. My doctor says I will always struggle with my brain due to brain damage. For instance, when my cat was run over within minutes I was unable to walk and use my arm. My doc say its because my brain went back to it's old damaged pathways due to the...
  4. Ahbee
    Hey txplowgirl, I don't understand about doctors not knowing about Celiacs and it's many complications. I think now their telling us that our symptons are psychological and their way of saying "I don't know, but I am too proud to admit it. Easier to blame the patient." Ahbee
  5. Ahbee
    Hi Nora, I don't know what ttg-6 is. I did go to braintalk. From there I have found out so much more information about my condition. I am extremely sentitive to gluten.. I can't even touch it without nightsweats. Gluten to me is like poison and I will never leave gluten free living. Ahbee
  6. Ahbee
    Thank you for telling me your story. It has meant so much to me. I have also had to use a wheelchair and walkers. Since going gluten free I have been walking almost everyday. If I mistakenly have gluten I cannot walk. Sometimes my muscles bind up or my joints hurt too much to walk without a walker. But for the most part I am able to walk freely most...
  7. Ahbee
    Thank you for your story. Doctors have treated me poorly and embarassed me by telling me to see a psychiatrist. My family kept me going and I found a doctor who believed in me. Yet still no answers until today. I had 3 replies and each gave me the answers I needed. Bless you. Ahbee
  8. Ahbee
    Thank you, thank you. I feel like I found the last piece to the puzzle of my ailments. When I began to read about Gluten Ataxia, I knew that it was describing exactly what has happened to me. I think I cried for an hour mostly from relief. After 4 neurologists and 1 doctor telling me it was in psychological, I felt now I have proof of the suffering I...
  9. Ahbee
    One afternoon I lost began to loose the ability to use my right side of my body. Within 2 hours I couldn't use my arm or leg. I was admitted into the hospital as a stroke victim. After many MRIs and 4 neurologists, no one had an answer. Many diseases were looked at. For 8 months I continued to go in and out of paralysis. After I was gene typed and diagnosed...
  10. Ahbee
    I have memory loss to the point I had to retire as a school teacher. My doctor calls it Mild Cognitive Impairment. I couldn't spell or remember what I was talking about. Sometimes I get so confused I can't drive. I have two gluten intolerant genes and pernicious anemia. I don't know which hit my brain first. A good book to read is "The UltraMind Solution...
  11. Ahbee
    Hello, I just joined the forum and saw your posting. I don't know if I am writing in the correct place to reply to you, but here it goes. I have to agree with the posting that discussed vitamin B-12 deficiency. I have Pernicious Anemia which is a serious B-12 deficiency. It really affects your brain,nerves, and energy. My B-12 blood count was 286. ...
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