Jump to content

leivasfamily

Advanced Members
  • Posts

    6
  • Joined

  • Last visited

leivasfamily's Achievements

About Me

My Downs' Syndrome Daughter, Elyce, recently diagnosed with Celiac Disease. She is also a diabetic. She is 19 years old and we are looking for support and ideas on cooking gluten free as well as good tasting pastas and such.

Blood Work - Negative

1st Endo and Colonoscopy Biopsy - Negative

2nd Endoscopy - Positive

  1. My daughter is going through similar issues and wondering if you came to a head with your health problems. Any suggestions that have helped you that you can recommend? I hope you are doing better than when you last posted. :-)
  2. My daughter and our entire household has gone gluten free, with a few exceptions, but have designated counter for gluten items. I finally had her checked for other allergies that cross react with gluten, and sure enough she was allergic to almost all of them. We recently cut those foods out and it's been 2 weeks, so we hope she starts getting better. ...
  3. I hear ya....I felt the same way with my daughter who already has so many limitations being Downs Syndrome, Hypothyroid, Type 1 Diabetes diagnosed in 2009, and now Celiac. I tell my husband when he thinks its ok to eat things she loves in front of her that it's like the drug addict or alcholic that you drink or do drugs in front of them when they are...
  4. Hello Everyone, My daughter has been on a gluten free diet for over 8 months and continues to have protein absorption issues or maybe protein loss. Her albumin is 1.4 and has been receiving iron infusions and b12 shots. Her b12 shot up over 2000 about a month ago, we so figured she was absorbing from the food. Her last iron infusion was a month ago...
  5. My daughter was diagnosed with Celiac since July of this year. We've been on a strict diet and have done the following: Cook 95% of meals at home using all gluten-free products, replaced toaster, replaced cookware and utensils, replaced toothepaste, soap, shampoo, conditioner, cream, etc., only drink diet sprite/z-up, propel, and Life water. She was...
  6. Hello All, I have a 19 year old Downs' Syndrome daughter with hypothyroidism and who last August was diagnosed with Type 1 diabetes and just days ago diagnosed with Celiac Disease after 3-4 months of being Iron deficient, B12 anemic, Vit D deficient, Calcium deficient, amenorrhea, swelling of ankles and legs, hair loss, Low TSH levels, Low Albumin 1.8...
  7. Is this support group still around? If so, where can I find information on meetings?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.