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tennisman

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Everything posted by tennisman

  1. tennisman
    Hi again, I didn't write down where the products came from etc , my dietician said I didn't need too. But I always eat the same foods from the same companies so could easily get the list of ingriedents from every item in the food diary. I really don't think my dietician will find anything though lol. I haven't really fasted for long only a few hours...
  2. tennisman
  3. tennisman
    My doctor always said it was a different test , I will have to ask for the name of the test. I'm from england so maybe different tests are used ?
  4. tennisman
    Thanks for all the information I have always thought I had a few food intolerances. But I have been working with a dietcian for 10 months and recently he said he thinks we can rule out food intolerance. I did 3 food journals as you mentioned . I wrote down what I was eating , what time I ate and when the pain started. I couldn't notice any patterns...
  5. tennisman
    This is a different blood test i'm talking about , I had the blood test in 2003 that came back saying I had celiac disease. But I'm talking about a different test to see weather or not people have been not sticking to there diet or if they have accidentally been eating gluten. My old doctor said they do the test when anyone with celiac comes back with stomach...
  6. tennisman
    I have had a blood test a few times that can see if I have eaten any gluten and the doctors have always told me I haven't had eaten any gluten, the test always comes back fine . Shouldn't the test say I have been eating gluten if it is the wheat starch codex if that I have a problem with ? My new doctor only suggested Refractory because of endoscopy results...
  7. tennisman
    That's good
  8. tennisman
    The only products that have the wheat starch are biscuits and pizza bases . I get these products on prescription Is it really possible for 1-2 packets of biscuits and 1 pizza base every 2 months to stop my villi healing fully ? I will drop the products , but i'm not too sure if it will help as I only started getting these products in late 2009 and my stomach...
  9. tennisman
    Thanks for the information
  10. tennisman
    Yes, I have read that on a few products I eat . I have always wondered is it really safe . I understand it's wheat with all the gluten taken out ? Today I eat a gluten free pizza base that had the wheat starch since than my stomach has hurt but usually my stomach hurts after any food . But since having the pizza I have felt exhausted, I had to go sleep as...
  11. tennisman
    I will try that idea thanks. I also eat very carefully but than I eat processed foods which could be where i'm going wrong .
  12. tennisman
    I checked everything I eat and found soya flour in biscuits but I don't really eat them much , I will double check the products I eat but can't find any other soy. If I find it in any other products I will eliminate them. I just found soya in some gluten free bread but I very rarely it that bread.
  13. tennisman
    I checked all the gluten free processed foods and found soya in some biscuits but can't find it in any of the other foods I eat . I'm from england maybe they don't use it in gluten free processed foods as much here.
  14. tennisman
    Thanks for the information on soy I have checked gluten free processed food and the other foods you mentioned and I can't find any soy in any of them . I did find soya flour in some biscuits , on yahoo it says soya and soy are the same is that right ? Also is soy ever a hidden ingredient or does it have to be named ?
  15. tennisman
    I have read that a lot not eliminating all gluten, but I have also read your stomach can respond well to a gluten free diet and than Refractory can start up a few years after.
  16. tennisman
    It's the complete opposite for me lol.I have seen many stomach doctor's as my proper stomach doctor left so I have had stand in doctor for the last few years and this is the 1st time I have heard a doctor mention Refractory.
  17. tennisman
    This is the 1st I have ever had a doctor mention Refractory and this is also the 1st doctor I have seen who seems interested in helping me . My villi still hasn't healed and I have had celiac disease for 8 years and have followed my diet 100 % . I could have a problem with cc processed foods as mentioned above . But otherwise I'm 99.9 % sure i'm not eating...
  18. tennisman
    What are soy foods ? I tried searching on google but can't find a list of foods soy is in .
  19. tennisman
    That's interesting as my doctor's have always said my stomach is very sensitive . My Mum has celiac disease and she isn't as sensitive. With some cereal there is a little bit of gluten in but it's suppose to be safe amounts . If I eat it I get stomach pain but if my Mum eats it she is ok. In 2012 in england the 20 ppm is going to end and all products have...
  20. tennisman
    It sounds like a good idea dropping processed foods . I'm not too keen on steroids either . I'm not sure about gluten free oats as I only really tried them last year I remember getting stomach pain after eating them but I was getting stomach pain after eating anything so it's difficult to tell. I'm sorry you were glutened hopefully you feel better soon ....
  21. tennisman
    I sometimes eat gluten free bread but not that much as it usually gives me stomach pain. I made my own bread the other day and my stomach was ok after that. Is gluten free flour ok ? I have been seeing a dietican and I have stopped drinking milk in march and stopped eating dairy for 2 weeks no real improvements in my stomach. I used to have a problem with...
  22. tennisman
    Your story sounds really scary I'm glad you are better now
  23. tennisman
    Thanks for the reply GFinDC I will research the immuno-suppresant drugs. I stick to my gluten free diet 100 % , but I guess I must be missing something somewhere i'm not sure how as I check ingredients about 10 times .
  24. tennisman
    Does anyone have Refractory Celiac Disease ? My doctor thinks I may have it. Is it possible to fix it ?
  25. tennisman
    Hypnotherapy seems like a great idea. I have tried a few Hypnotherapy mp3's they seem to help a little. I will look into it more , Thanks for the advice
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