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ClevelandGuy

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Latest Celiac Disease News & Research:

Everything posted by ClevelandGuy

  1. ClevelandGuy
    I just checked a copy of my bloodwork from February, and it had Calcium at 10.5 mg/dl, which is the exact upper limit for "normal". I'll definitely bring it up with the doctor.
  2. ClevelandGuy
    Hmm, our household salt is also sea salt. Are iodine levels typically checked during blood tests? I will ask for one when I see my doc on the 20th.
  3. ClevelandGuy
    K-Dawg, thanks for the encouragement. Kudos to you for having had the foresight to stick it out for 3 months... I wonder how many people simply give up before feeling better. I know I almost did. I'll be insisting on a complete thyroid panel when I see the doc on the 20th. BTW, I actually felt significantly better today. I went back to drinking coffee...
  4. ClevelandGuy
    georgie, that symptom list describes me to a T. I have almost all of them. I saw an endocrinologist a few months back (before the Celiac test), and all he came up with was "you probably have Hashimotos; your meds are fine". I'm adding "Hyperparathyroidism" to the list of questions to ask my new doc on the 20th. Thanks for the info!
  5. ClevelandGuy
    Wow, I had no idea you could have both Graves and Hashimotos at the same time. Sounds like some kind of regulator is busted. If you don't mind my asking, how long did you have the fatigue when you first went gluten-free? I expected ups and downs, but this has been ridiculous- it's all downs. I'm afraid that I'm about to lose my job over this very soon. ...
  6. ClevelandGuy
    Hmm, now I really do wonder if my levels are low. It would explain a lot. I was actually expecting that they'd normalize, if anything. I wish we had simple home testing of thyroid levels, kinda like blood sugar levels. Thanks, Skylark.
  7. ClevelandGuy
    I'm curious if it's possible/common for hypothyroidism to actually worsen for a period of time after going Gluten-Free. I'm on my 10th week gluten-free, and still feeling like crap. Although GI issues are better, the fatigue is way worse than when I began. I know it's common for thyroid issues to resolve after going gluten-free, but I'm wondering if it...
  8. ClevelandGuy
    I'd be very suspicious of any kind of homepathic "medicine": Open Original Shared Link
  9. ClevelandGuy
    AlysonAnn, you sound like me. Fatigue/brainfog is my worst symptom. I often feel it worsen 15-30 minutes after eating. I'm gluten-free for 2 months now, still waiting for that miracle change to happen...
  10. ClevelandGuy
    Hi ClevelandRocks, I can't answer any of your questions, but I just wanted to say Hi to a fellow Clevelander. :-) Tommy's in Coventry Village has some gluten-free menu items, in case you haven't been there yet.
  11. ClevelandGuy
    I think they consider it as moderate because it's heterozygous, meaning that I have one copy of it from a single parent. We really need better tests!
  12. ClevelandGuy
    Yes, I've been taking B12, D and a multi for months. Also just started some sublingual B12 (thanks, ravenwoodglass). I'm hypothyroid, but within normal levels on Synthroid and Cytomel. I'm past due to get it checked again though. Thanks cassP.
  13. ClevelandGuy
    Hi all, The results of my genetic test came in, and the doc says I'm heterozygous for HLA DQ8. She only ran the DQ2 and DQ8 panels. My understanding is that this indicates "moderate" risk, but is not indicative one way or the other of Celiac. She recommends continuing the diet, which I will do for now. I also asked her about the mild villous blunting...
  14. ClevelandGuy
    Any recommendations for a good gluten-free multivitamin and sublingual B12? I take Procaps B12 (not sublingual though), a D vitamin and a Target-brand multi currently. I want to take Open Original Shared Link, but I wasn't able to get verification that it's gluten-free (I even called them... they weren't able to tell me!) Thanks ravenroodglass.
  15. ClevelandGuy
    I'll definitely stay on the diet for a few months more. Even without a definitive diagnosis, the "mild villous blunting" is further encouragement that I might be onto something... I assume that villous blunting doesn't just happen randomly to healthy people. I just wish I could understand why my fatigue is so much worse now, rather than better.
  16. ClevelandGuy
    It would certainly be nice to have a Celiac label, but I don't think I really need that for anything, except perhaps for peace of mind. What I really want is for my fatigue to get better before I lose my job. :-( When I mentioned that I had felt better temporarily during my 1st gluten-free trial, she brushed it off as a placebo effect, and chalked up...
  17. ClevelandGuy
    So previously my GI told me that my endoscopy/biopsy results were normal. This was a little surprising, since my TTg came back strongly positive at 66. Today I requested and received a copy of the biopsy results, which I've posted Open Original Shared Link. Notice the phrase "mild villous blunting". I think this is actually her observation; the pathologist...
  18. ClevelandGuy
    That's why I was wondering if 4 weeks was a good time to try a challenge, and see if I have any reaction to wheat. I was really expecting to see some change by now, and since the endoscopy was negative, I'm beginning to doubt Celiac. There is no accepted diagnostic test for Chronic Fatigue, and anyway, in all my years of struggling with this (18+) I...
  19. ClevelandGuy
    So, entering week 5 of the gluten-free diet. Rather than improving, I seem to have added a new problem: I now throw up regularly in my sleep. The first night it happened I woke with a half mouthful of stomach acid (sorry to be gross). This has happened 5 nights in a row now. Sometimes I notice that it feels a little bit like a kind of hiccup or burp, followed...
  20. ClevelandGuy
    Yes, I was referring specifically to Rice and Corn Chex. They both say loudly "Gluten Free" right on the box, though I understand that that's something new. I eat them almost every day for breakfast. You have reactions to these cereals? Wow, what do you eat for breakfast?
  21. ClevelandGuy
    I'm still eating dairy. I actually tried giving it up, and just couldn't face breakfast without either a little yogurt or some milk in my (gluten-free) cereal. I did try soymilk recently, and that's perfectly acceptable over cereal, though perhaps problematic due to the soy. God, breakfast is so hard to do gluten-free. I don't eat anything that can go...
  22. ClevelandGuy
    I have a positive blood test (TTg 66), and negative biopsy (full story Open Original Shared Link). I've been gluten-free since my biopsy. It's been 4 weeks now, and I'm really not seeing any improvement. [edit: My primary complain is overwhelming fatigue, which has not improved. Gas & bloating is better, but still having BMs 3-4 times daily.] I...
  23. ClevelandGuy
    Today marks my gluten-free 3-week mark too. In all that time I had only one day where I felt a bit better, but apart from that, I still feel like crap. It does stink, but you're not alone.
  24. ClevelandGuy
    Yeah, I was wondering about the gluten-withdrawal. It would be a lot easier to take if I had a solid diagnosis; then I'd know it was just a matter of time. The hard part is being unsure, and having to wait. Thanks Raven.
  25. ClevelandGuy
    Hi raven, thanks for your reply. I'm making all my own meals, more or less from scratch. For breakfast I'm having gluten-free RiceChex or CornChex with some milk. Lunch and dinner are usually some kind of meat (beef, chicken) cooked on the grill, some steamed veggies, and a small amount of white rice or potatoes. No barley or oats. Today was tuna. Toaster...
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