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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by bincongo
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ARCHIVED Lab Results
bincongo replied to bincongo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am sensitive to lactose. I get my Synthroid by mail so I guess I should call them. Does Levothyroxine have lactose in it too? My sister has Hashimoto's and her specialist doesn't beleive in generic so I thought I should switch too but my sister isn't Celiac or lactose sensitive. -
ARCHIVED Lab Results
bincongo posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I posted this on another forum but it is more appropriate here. I got my labs back and I just wanted to run some things by some of the smart people on this forum. My doctor wasn't concerned about any of it. She will retest me in 4 months. I know I am a new Celiac so my IgG was 102 and my IgA 11.1, Reticulin Abs - positive 1:20, Endomysial Abs - negative... -
ARCHIVED Pain In Upper Legs And Hips
bincongo replied to bincongo's topic in Related Issues & Disorders
Ok I got my labs back and I just wanted to run some things by some of the smart people on this forum. My doctor wasn't concerned about any of it. She will retest me in 4 months. I know I am a new Celiac so my IgG was 102 and my IgA 11.1, Reticulin Abs - positive 1:20, Endomysial Abs - negative. I also had a few other things tested. I had taken supplements... -
I have a doctors appointment soon and since she is not a specialist I need to know what to tell her. Before my diagnosis of Celiac 2 1/2 months ago I had a feeling of numbness in my upper legs in the early mornings before I got up. Now I am having even more problems in my legs. I have episodes of pain in my groin, hips and upper thighs. It seems to go along...
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ARCHIVED Udi's Update
bincongo replied to bincongo's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree with GlutenFreeManna. Udi's built a new bakery because of high demand and they want to keep up with it and expand, so I would ask store about it and tell them you will buy several of the products they stock. Their bagels are good too. -
Nice way to break it down. I needed that info too. Now I think I can say I am lactose intolerant but I don't have a problem with casein.
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I wish I had the answer. I am 2 1/2 months gluten free and I have good days and bad days but the good days seem to be more frequent now. It can depend on how much damage your intestine has and if you are still being exposed to gluten although you may not know it. If your doctor hasn't checked for thyroid problems you may want that done. My insomnia has not...
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ARCHIVED Udi's Update
bincongo replied to bincongo's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't found a good hamburger or hot dog bun yet so I will be ready to buy them when they come out. I had a sandwich at their store twice and they were soooo good. -
ARCHIVED Udi's Update
bincongo posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I went to Colorado to see my 102 and 1/2 year old mother, I am sure she was never a Celiac. Anyway when I was there I visited an Udi's store and asked questions. It turns out around 6 months ago they moved their gluten free products to a new and much larger bakery. The demand for their products was increasing so rapidly that they had to make a move. Prior... -
I am still a fan of PF Chang's since I think they are really trying where other resturants aren't but I have a funny story. My very first gluten free dining out experience was a PF Chang's and at the end I got the fortune cookie. Out of habit I ate it and to this day I don't know if they are gluten free. I went again to PF Chang's last week and when she brought...
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ARCHIVED Colitis Or Cc With Gluten
bincongo replied to bincongo's topic in Related Issues & Disorders
Somewhere on this site people were talking about Magnesium so after my blood work I brought several different suppliments that were recommended. I am beginning to think that the Calcium Magnesium Citrate is my answer to my constipation and pain. I would guess that is somewhat along the line of MOM but different, anyway it is working. Mirlax was making me... -
ARCHIVED Positive
bincongo replied to tehjrow's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Divorce isn't always the answer. Maybe you or her will like the new you which usually includes a more possitive outlook on life. So many of us can relate to your story, not always quite as bad symptoms. I was afraid of flying because they don't let you go to the bathroom anytime you want too. Not sure if that was your reason but it can be "real" for a lot... -
ARCHIVED Frustrated About Incorrect, Out Of Date Posts
bincongo replied to ChemistMama's topic in Board/Forum Technical Help
I too am new and it took me a long time to figure out that there was a date at the top. It is in small faint letters but I am new to forums in general. I was desperate to get information and my doctor recommended this site. It has been extremely helpful. I just apologize to all the really old posts I responded too. The only thing that would improve it would... -
ARCHIVED Colitis Or Cc With Gluten
bincongo replied to bincongo's topic in Related Issues & Disorders
Thanks for the comments. It is hard to include my whole history but 2 weeks after my endoscopy, that found Celiac, I had a colonoscopy and I do have Diverticulitis but nothing else. It is just that this diet seems to be making my abdominal pain and constipation worse. Now during the times when I don't have pain I feel better than ever. So maybe it is just... -
I posted some comments in the post diagnosis section a few days ago. I was having abdominal pain, leaky gut and constipation. I had had it for 6 days. Well it quit for no apparent reason but in thinking back it seems I go through about 2 weeks of feeling fairly well and then 5 or 6 days of pain. I am a new Celiac of 2 months now so I don't expect to be healed...
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ARCHIVED Villi Absent
bincongo replied to bincongo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So much good information. I decided to go lactose free after having a reaction to Ben's and Jerry's chocolate/ cappuccino ice cream about a month ago. I have constipation all the time with leaky gut and gas pain. The constipation is with me all the time but sometimes I can go days without pain. I do take calcium. I am not sure I feel I have bad bloating... -
ARCHIVED Villi Absent
bincongo replied to bincongo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Plain old Taster's Choice, even says gluten free on the label. -
ARCHIVED Villi Absent
bincongo replied to bincongo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sorry I am still new to this and sometimes press the wrong key to reply. It would seem that taking blood tests for allergies would be easier than an elimination diet. If I can I will wait until my appointment to see how the other test results turn out. I am sure my doctor included TSH and it will be interesting to see if I am absorbing the thyroid medicine... -
ARCHIVED Villi Absent
bincongo replied to bincongo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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ARCHIVED Villi Absent
bincongo replied to bincongo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes it was gluten free soy sauce. This morning I tryed my coffee without any milk and still had a reaction. I use instant coffee that is on the gluten free list so I am pretty sure it is the caffeine that is one of my problems. I had a muffin with it that was made gluten free in my kitchen. -
Just curious which Tresemme you were using? I brought Tresemme in order to get away from my Redkin spray which has wheat in it. The ingredients on mine don't say wheat. It is Firm control, Tres Two spray, ultra fine spray.
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ARCHIVED Villi Absent
bincongo replied to bincongo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yesterday I had my routine blood work. Last year it turned up that I was hypothyroid and I have been on medication. This year with the help of the people on this site I called my doctor and asked to add several more tests, Free T-3, Free T-4, Vit. B12,B6,B1 and D plus Tissure Transglutaminase and Endomysial antibodies. I hope it will be a start to see how... -
ARCHIVED Villi Absent
bincongo posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I took a peak at Scott's book "Cereal Killer's" on Amazon and it looks good but it started me thinking. I looked back at my endoscopy results and it says my villi are complete absent. I am 62 years old and of course I don't know how long I have had Celiac but I was diagnosed 2 months ago. So my question is, what are my chances of recovery. I have my age against... -
ARCHIVED Udi Bread And Bagels Different Lately?
bincongo replied to Nor-TX's topic in Gluten-Free Foods, Products, Shopping & Medications
I am going to visit my mother in Colorado and while I am there I thought I would check out the Ud'i bakery where their headquarters are. It isn't too far from where she lives. Does anyone want me to talk to them about specific issues, like there shipping process and do they want to stores to keep them frozen or any other questions? -
ARCHIVED Side Effects Of Long-Term Prilosec?
bincongo replied to bridgetm's topic in Coping with Celiac Disease
Hey thanks for the info. I don't think my doctor said it would help my hiatal hernia, I said that. The endoscopy said I had diffuse gastritis so that is what the Nexium is for. My thinking is that the bloating from being Celiac and not knowing it was causing pressure on my stomach and pushing acid up so I developed GERD but I would think now that I don't...