SoyBoy

I react to GNC products and all fish oils I have tried as well.

I now avoid any supplement with tocopherols (or lecithin of course).

Hi everyone.... I really need some help here! I am getting so frustrated with this disease.. I feel like I am aging so fast, I feel that my skin, eyes and hair have taken a huge hit and its making me so so depressed. I spend so much money on healthy foods that are gluten free and vitamin supplements and nothing is working... I cant stand looking into the mirror any more. I know I have to give it time... I have only been gluten free for 4 months... How long could this take.... Does it get better? Could there be a chance I wont get better? My hair is so freakin thin I dont even look the same as I did 1 year ago......

Can you list your supplements (including quantities / dosages)? Maybe someone here can help.

Interesting feedback. Thank you everyone for your responses. I have found that my seasonal allergies and reactions to food on my bad list go hand in hand.

2010 was my best year for seasonal allergies. I wasn't certain if it was just a mild season, or if my diet change had a positive impact. I am hopeful for 2011 now.

Thanks again.

Just curious.

Make sure you also allow for some time between taking vitamins. That is, don't take your B12, B - complex, and others all at the same time. I have experienced the same feeling you describe (including your initial symptoms), and I got some relief from taking my B12 in the morning, my B-complex at lunch, followed by my multi at night. I was taking them all at lunch for a while and would be a jittery space cadet by late afternoon.

It might be worth taking the dosage down to 1000 mcg (from your current 5000) if your B12 levels are improving and your doctor allows.

What is your l-glutamine made from? Is it soy free?

You may also want to look into the use of glutamine for those of us who have a sensitivity to MSG.

You can try food-dictionary.com to find the descriptions of the mystery ingredients.

B-complex deficiency can cause mouth ulcers, and of course is common with Celiac. Since you are working on getting pregnant, do you happen to be taking folic acid supplements? I think I remember reading somewhere that folic acid may mask some B12 deficiency symptoms, and may even lower B12 levels. I

Was the tenderloin a fresh one or preseasoned one?

Fresh from the butcher.

I am soy intolerant, and have managed to avoid (GI) symptoms for the past 6 months or so with the exception of two occasions. On both occasions, I have had completely safe foods for me. the only common link is that on both occasions, I had eaten pig products (pork tenderloin and bacon). If the pigs were fed soy slop, is it possible for one to have a reaction to the animal's meat? Has anyone had experience with this?

SheaLynne,

Thanks for sharing this story. I'm sure everyone here can relate to your story.

I struggled with the label issue myself. I use the term "soy intolerant" on this forum because the folks here understand. In the real world, I have decided not to label myself (I have the same concerns as you). Instead, I just tell friends and family that soy products give me the S&%#s. It gets the message across, and it is a statement that I can say with confidence.

Peanut butter cups and reese's pieces used to get me pretty good (soy intolerance). Two of the few soy products I actually miss.

I think peanut butter cups have wheat flour as well.

I had dizziness, fatigue, neuropathy, and my heart rate was 48 (not nearly as low as yours). My B12 was at 258 at the time. I took 1000 mcg of sublingual B12 per day, and got my level up to 500. All of my symptoms improved.

Even though your B12 level is low / normal, it may be worth talking to your doctor about supplementing or shots.

Best wishes.

I don't want to belabor the point, but...

If one were to have hypoglycemia due to celiac / digestion related issues, it would make sense that your condition would improved gradually after correcting your diet.

If one were to have a rumbling stomach, I would guess...1) that person is hungry and needs to eat 2) that person is having trouble digesting food (ie. has celiac) 3) that person has a naturally rumbly tummy (like winnie the pooh or my father-in-law ).

Since your rumbling is getting better, would it be safe to guess that you're in category 2 or 1, and that you have corrected the sittuation? Either way, a rumbling stomach together with hypoglycemia would make sense. Hungry ---> rumbling stomach & low blood sugar...OR...Poor digestion / absorption of vitamins ---> rumbling stomach & low blood sugar and poor glucose control.

Just some thoughts. Best of luck.

Items 3-7 sound familiar to me.

I borrowed a blood glucose meter from a diabetic friend for a couple weeks. I noticed that when my blood sugar levels were low, I would get 1. shaky hands 2. fatigue 3. headaches 4. difficulty focusing

The hunger symptoms you describe also sound familiar.

I would get a whole other set of symptoms when my blood sugar went too high. The bottom line is that for a period of 6 months or so, I had poor glucose control.

Things are better now (although my body does give me reminders now and then to keep me in line). How did things improve? I tried to eat like a diabetic, excercised as much as I can, and took my vitamins (B12, B-complex, multivitamin)religiously. Above all, I avoided my nemesis - soy. I understand that the solution might not be that simple for most.

What does your doctor think of the L-glutamine? How do you react if you were to eat something with MSG?

Thank you for the reply. I haven't tried gluten-free because the elimination of soy made me feel so much better. Although, after reading your post, I think it might be worth trying.

Thanks again!

Lauren,

This sounds very familiar to me. I am not celiac, but am soy intolerant. Just reading your ingredient list gave me phantom abdominal cramps

For me, timing of cramping depends on the quantity and type of soy consumed. Large quantities = within 30 minutes, small quantities = next morning. Soy sauce, soy flour, and soy protein tend to be the worst. If you do not get the answer you are looking for from the gluten side, keep your mind open to the possibility of soy being the culprit.

Take care - Paul

Hello,

I have a confession to make before I start posting here...I am not actually celiac, I am soy intolerant. I hope you don't mind me jumping into your forum, but there is no other place for me to go. I have had a look at this forum, and I've found so many similartities between celiac and what I have experienced. Here is the abbreviated version of my history...

* Cramping and D since teenage years (now 34 years old)- at least 1-2 times a week

* Dermatitis since teenage years

* Last year hit "rock bottom" with the following - borderline low B12, dizziness, poor glucose control, couldn't walk upstairs (or anything physical) without extreme exhaustion, heart palpitations, MRI showed brain lesion (left unexplained), glossitis (dermatologist said low B1, B2 or B3), neuropathy, rapid weight loss.

* Symptoms (except cramping, D, and dermatitis) much improved with 3 months of 1000 mcg sublingual B12, daily multivitamin, B complex, and electrolyte drink

* Cramping, D, and dermatitis much improved with elimination of soy from diet (still struggling with this though).

Am I off in thinking that this sounds similar to the symptoms of celiac?

I was also wondering if anyone else might have good information on 1) Supplementation - In your experience, what vitamins / minerals work best. I'm not looking for brand, I'm more interested in types (multivitamin, injectables from doctor, etc.) Quantities / frequency as well would be appreciated. 2) Any good resources for managing soy intolerance - I understand that many with celiac are soy intolerant as well.

Thank you and take care,

SoyBoy - Paul